Ulcerative Colitis Tips


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Over 8 Months on SCD :)

Hey Everyone,

I haven’t written in awhile but I wanted to update you all on how I’m doing on the SCD!

So, I have just past the 8 month mark on SCD! I am so happy and proud of myself that I have made it this far. The journey to where I am now hasn’t been fun or easy, but I am happy to report that for the past 3 months I have NO symptoms. I experienced a pretty bad flare when I got back from South Africa in November. It lasted about 3 weeks. During those 3 weeks, I was pretty depressed, I just wanted to get better. I must note that the flare wasn’t as bad as it was pre-SCD. I went back to SCD basics (easy to digest foods and soup) and in 3 weeks I was back to normal! During that flare I also started acupunture twice a week. I really feel that this helped me as well.

I went to Jamaica at the end of December after the flare was over. It was pretty easy staying on the diet while I was there, I ate alot of FRUITS AND VEGGIES! I didn’t drink at all which was the most difficult thing for me. But I still managed to have a great time and feel great as well!

Its been 3 months since have seen blood and mucus! I am pretty regular going about 2-3 times a day mostly all solid! I couldn’t be happier. Thoughts of UC no longer control my life. I feel free and in control.

With regards to missing food, obviously its hard sometimes when you crave something that you cant have. But I always remind myself that no food is worth the pain in the ass (literally) of Ulcerative Colitis.

Yesterday I was sooo happy. My mom made me butternut squash fries and chicken wings. I actually felt normal and enjoyed every bite of my dinner!

I know alot of you out there are struggling with UC. I read the stories all the time and feel sad because I know how bad it can be. I wish everyone found success using the SCD but I know that’s not the case.

Currently I am still on Salofalk tablets. I also take a SCD probiotic everyday and go to acupuncture once a week. I have a followup appointment with my GI next week. I am curious to see what he will say about my improvement.

I am a lil worried that I will see the 9 month flare that Elaine talks about in BTVC. Now that I look back on it, I did have a mini flare at 3 months and another one at 5-6 months like she predicts. I am hoping that I skip the 9 month one!

I also think alot about the future and how long I will stay on SCD. Since it has worked so well with me I sometimes feel that I want to stay on it forever! I am only 25, so that is a LONG time! I know for sure that I will not go back to the way I was eating before!

I wish everyone happiness and health. This support group has really helped me get through the good times and the bad times. It reminds me that although UC sucks, it doesn’t have to be the end of a happy life for us. It could be the beginning of a new and improved life like it has for me :)


Jessica’s story is now entered into the 2011 Ulcerative Colitis Writing Contest!!! You Can Join too, click here for details

 

For more information on the SCD and ideas on how to give it a try, visit the Diet Page




blood, flare, mucus, SCD, SCD diet

8 Responses to Over 8 Months on SCD :)

  1. Steph March 10, 2011 at 12:36 pm #

    Hey Jessica! Did you have to take anything extra to get over your flare, or just the intro diet and acupuncture? Way to stick to the diet even away from home, that would be so difficult! Stories like yours make me so excited about the SCD make me want to keep up with it. I hope things keep going well for you.

  2. Jessica March 10, 2011 at 12:52 pm #

    Hi Steph,

    During the flare I did not take anything extra.

    Everyday I take my 6 salofalk pills, a probiotic and a multi vitamin!

    Good luck and keep on goin with SCD! It works!

  3. Jen March 12, 2011 at 3:20 pm #

    I’ve been working with SCD for a couple weeks now and I’ve screwed it up a bit here and there. But I keep coming back to it. I’m also trying acupuncture and I went for my first treatment today. They were having a wellness fair so I got my first session free. I’ll be going back Wednesday. Messages like yours keep me inspired. Well done on sticking to it! God knows it aint easy.
    Jen

  4. char March 20, 2011 at 10:04 am #

    Im so glad to hear you are doing well, my son is 17 and we are in the hospital right now. He has a doctor that tells him nutrition has nothing to do with his UC, he was diagnosed in Nov. 2010. He is in a lot of pain right now and is back on IV steroids, the doctor wants him to have surgery and with all this pain going on he wants to seriously think about that option. I am very scared and wish he would try the diet thing first but he says he cant stand the pain and they will not give him pain meds because they say it will slow things down. It seems like his pain is getting worse and lasting longer, can you suggest anything that might help with the pain

    • Alice July 16, 2011 at 7:46 pm #

      hey,
      when cramping is at its worst visceral manipulation works! I am talking about a treatment from a osteopath or craniosacral therapist who can release all the bent up and tight connective tissue around the gut and decrease the crazy painful spasms. one session will reduce it right away.. you might need like 3 in a row to totally settle it.

    • Ryan February 18, 2012 at 4:08 am #

      I can’t believe the doctor wouldn’t give him anything for the pain short term especially while he is admitted in the hospital under their care.
      Everytime I have gone to the ER in terrible pain and weight loss they would give me something for the pain short term and that would help me to get my eating, drinking, and sleeping back on track. For me the corticosteroids do not work anymore, but short term narcotic pain medicines work great like those always did for me before, except they can cause constipation, which I’ve never experienced and is usually from a litle longer term use and drinking plenty of fluids can help avoid that as well.

  5. Katherine March 20, 2011 at 11:26 am #

    Hi,

    I hope I can help you, please try and convince your son that surgery is not an option at such an early stage and early age too. Ask for codeine. I find a very small dose helps me to cope with UC, it does slow things down a touch, but works most of all, and my GI is happy for me to take it as and when, the bonus is that you get relief of toilet symptoms too and a good nights sleep.

    Please ask them at least to consider it, I take a brand called solpadol.

    Katherine

  6. Liora June 26, 2012 at 11:53 am #

    Jessica it’s so nice to hear inspiring news for a change. Every doctor we’ve been to just upsets my dad even more. My dad has been diagnosed with UC for 13 years already but he’s never had a flare as horrible as last month’s. We recently started the SCD diet but i dont see any improvement. My dad is constantly in pain, constipated, bleeding and depressed. I really want to help him but I don’t know how. Do you recommend Remicade? He’s currently taking Prednizone.
    Thanks
    Liora

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