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On the Road to Recovery

Bryan C fullHi, I’m Bryan 34 years old. I Have UC. I’ married with 2 dogs, work for a major food distributor …US Foods. And I’m on the road to a better life!

Some more about me:

I love to snowboard go fishing and do outdoors stuff. Going to football and baseball games. Going out to see some good local bands.

Symptoms:

Right now I have no more symptoms my colon is gone so the UC is GONE!
Before I had surgery I was so tired and weak all the time bleeding really bad crampy like someone was stabbing me in my side with a knife. Sick to my stomach joint pain

On the Road to Recovery

14 years ago I was diagnosed with Ulcerative Colitis so back in 2000. Colitis ruined my life.

This horrible disease hit me like a tornado out of no where. I lived most of my young life with it. The worst part was I didn’t go into remission one time not once in 14 years. I was just hoping it would go away or they would come out with a new pill but that never happenred. I wasn’t getting any better I was actually getting worse. I couldn’t eat anything without suffering for it . I couldn’t go anywhere because I didn’t want to have to worry about looking for bathroom or making sure I was close to one. I couldn’t do my Job I would have to pull over to the side of the road a lot of times. I was to the point I was losing control of not only my bowels but my whole life was spiraling out of control too. I was tired of it all tired of crapping myself spending nights sleeping on the bathroom floor crying my eyes out, tired of pain so many trips to hospital. Well about a week ago I had another trip to hospital. This time I was about to do what I was d reading for 14 years. I told the Doc in the ER I was tired and couldn’t live like this anymore and two days later …I had my colon removed. It was the hardest decision I made in my entire life. I had my whole colon removed and now have an ileostomy. My surgeon said it was just disintegrating when he would touch it my colon was so burnt out and I should of had this done 10 years ago. It might of been the hardest thing I ever did in my life but I’m so glad I did it my pain is gone except post OP pain from surgery I’m not sick to my stomach anymore, no more PILLS!!!! I can eat again and not feel bloated and have to run to the bathroom 5 minutes later and the urgency is gone. So in 5 months I’m having the j-pouch done and I’m so thankful I feel like I have a new life. I would also like to ask the people that do have a jpouch is it a good choice to make. Thanks for reading.

Medications:

I take no more Meds except for anxiety medicine and pain meds from my surgery

I use to take every med you could think of

written by Bryan C





11 Responses to “On the Road to Recovery”

  1. JOctober 2, 2013 at 7:14 am #

    Hey Bryan,

    That’s awesome to hear that you’re doing well after surgery. I’m 29 and have an ileostomy after having surgery 6-7 months ago and it has been 1000 times better than my life was when I was living with UC. With the ileostomy, I would suggest a couple of things: 1) I’m sure you were told this by your doctors and nurses, but make sure to chew your food well when you eat to avoid blockages. I’ve had to go back into the hospital a couple times because of blockages. 2) Try to make sure you’re getting enough sleep if you can. I’ve been having to get out of bed 2-3 times each night to empty the bag and that can make me tired during the day if I don’t get enough sleep the rest of the night.

    Best of luck with your post-surgery life!

    • Bryan C
      BryanOctober 3, 2013 at 9:33 am #

      Thanks man yea it took me 14 years to get the surgery but your are so right about life being a 1000 times better. I just got out of the hospital with a blood clot. Yea I get up about 2 or 3 times a night and that’s cause im peeing more and then I empty my bag but compared to getting up 15 to 20 times and getting 2 or 3 hours of sleep im getTing 5 to 6

      Take care
      Bryan

  2. Juliet
    JulietOctober 2, 2013 at 7:39 am #

    Well it certainly is always good to hear someone come through all this misery, smiling on the other side! I’ve not had surgery, I am scared of the thought, but not ruling it out for the future.

    I wish you well for your recovery! And the chewing food well tip is a good one, colon or not!!! :-)

    • Bryan C
      BryanOctober 3, 2013 at 9:34 am #

      thank you ! I hope you get well soon too!

  3. bevOctober 3, 2013 at 6:19 am #

    What a fantastic story…Thank you Bryan.

    There is hope for all of us. It’s just how long we are willing to put up with the struggle!

    Live again!
    Bev

    • Bryan C
      BryanOctober 3, 2013 at 9:36 am #

      your welcome bev…. just remember there is hope and relief and surgery is not the end of the world and 14 years was enough for me!

      • bevOctober 3, 2013 at 5:16 pm #

        I hear that Bryan…I’m in year 16….but luckily am in remission for the past two years on a good probiotic and L-glutamine but I’ll tell you this….if it comes back (and we all know what the odds of that are), I will opt for surgery before I’ll take any of those nasty meds again.

        Cheers
        :)

  4. Richele
    RicheleOctober 3, 2013 at 7:57 am #

    Hi Bryan!
    Congratulations on your new pooper!! Glad to hear you are living, (with or without a colon) doesn’t matter….You are alive and well :)
    Good luck on the rest of your journey!
    Richele

    • Bryan C
      Bryan youOctober 3, 2013 at 9:37 am #

      lol thank you I don’t have a new pooper yet but in 6 months I will Im having the reversal and wont need my poop bag…….best of luck

      Bryan

  5. Don
    DonOctober 3, 2013 at 11:53 am #

    Hi Bryan and thanks for sharing your incredible story! I have been doing the UC shuffle for 7 years, Christ I can’t imagine 14 years! I am glad you are doing well and that you can resume living. I sure can relate to your suffering. I get mad when I hear stories like yours because I just know that there is a cure for this. They just don’t want to find it because there is so much money in treating the symptoms. Bastards just let us suffer! Good luck to you and stay healthy!
    Don

    • Bryan C
      BryanOctober 4, 2013 at 10:04 am #

      Yea its been a rough road man . Yea they prolly do have a cure and your right the money is a big thing if they found a cure they wouldn’t make no more money and the docs would have
      to find another profession yea bro thanks and I hope you get well soon.

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