Ulcerative Colitis Tips


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OK, Where Did This Come From?

Intro:

I am 40 and proudly live in Canada. I’m married to a very understanding wife and have a picture perfect girl and boy. I started running races again after a long time off and have really surprised myself. I guess you could consider me really lucky. Accept for my Colitis.

UC Symptoms:

Bloody, tarry stool 15 times a day.

My Story:

I was assigned UC in 2003. I started a long battle to back up from my grade 9 weight with the “help” of predisone, salofaulk and then imuran.  I can’t tell you how many times I had to find a toilet where there wasn’t one. How many times my wife has had to sit at a table alone at a restaurant waiting for me. I can’t tell you how many times I’ve had to put my daughter over my shoulder and race through a mall looking for a washroom. Mind you I tell you now; the reason why my daughter before she was 3 years old new all of her colours, shapes, numbers and letters because all the times i had to bring her into a stall with me. I would turn around , sit down and then have her look around ( carefully) for those letters, colours, etc. Eventually I got through it although it never seemed to completely go away. One day I realized I was feeling good all over again.  No need to bring my nap sack (with 2 pairs of underwear) every where I go. I was going only 3 times first thing in the morning and that’s it. I was running and racing 10km or more daily ( and not for the toilet).  I was medication free for over two years and raced in my first half marathon and place 12th. And than April 24th 2012 came and was right back where I started with the bloody\tarry stools and going 25 times a day. I am so mad and really down in the dumps now I’ve had to take time off work again and have stopped running all together. I am now on a new med called Mesalamine and today was the fist day I actually felt OK. Wish me luck.
God speed.

Where I’d Like to be in 1 year:

Running and winning my age group in a 10km race

written by: Canadian Sean

submitted in the Colitis Venting Area



Canada

4 Responses to OK, Where Did This Come From?

  1. Eric May 23, 2012 at 7:45 pm #

    Dude, I feel your pain. And have lived through very similiar good times and bad.
    Good luck withe Mesalamine.

    My specialist has never even mentioned it. Nothing but Asacol, Prednisone, and “You could try surgery”

    This disease does suck, but life could be worse. Every day on the right side of the grass is a good one.

    Cheers,

    Eric

  2. Adam
    Adam May 24, 2012 at 6:04 am #

    Yo Sean,

    I’m right behind Eric above, I’m feeling for you man.

    It’s so crazy how you can be out in public, just like you said at a restaurant or something, and tell whoever you’re sitting with that you need to “RUN” to the restroom but you’ll be back “soon” and then next thing you know… a half hour has quickly passed. I definitely remember those days. But hang in there, you’re gonna get out of this, the UC symptoms don’t last forever.
    take care,

    -Adam

  3. nikki May 29, 2012 at 8:32 am #

    Hi,
    I don’t know if any of you have read ‘listen to your gut,’ I have been following all the protocols in this book for my daughter and she is off all her meds and symptom free. She has been like this for four months now and I know its early days but I am elated.
    Hope that it can help others too. George’s always aloe vera is a god send.

  4. Wendy
    Wendy May 29, 2012 at 9:06 am #

    I was hospitalized in October for a week in 2011. I am still not totally recovered so I understand exactly what you are feeling (probably both physically and mentally). I have a five-year-old, a seventeen and a half year-old and a fifteen-year-old. My fifteen-year-old weighs close to my weight and she borrows my clothes and she’s a professional ballet dancer, so she’s not overweight at all, which tells you something about how my weight is seeing as I have to be so careful with food. My five-year-olds toys were stored in the bathroom since I spent so much time there when she was two and three years old. I quit working because it is unfair to my employer to spend six hours out of an eight hour shift on the toilet in the washroom. Weird thing at the time was that I would get better then get worse, then get better, so I didn’t know when I could work or not. I am thinking about surgery. Good luck to you and your family.

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