Ulcerative Colitis Tips


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OK Ulcerative Colitis, Let’s Give this Another Try

Its been about 2 whole months, wow time flies even when you’re dealing with colitis symptoms, and I’m back drug free once again.  That’s right, off the prednisone, and hopeful that those little white pills won’t make their way near me for a long long time.

But first: Thanks to everyone who has shared your UC story.  We’re nearing 100 New Stories so far in 2011.  And from the over 30,000 visitors, I’m definitely not the only one who’s learning more and more about ulcerative colitis this year.

For me, It has been a pretty strange trip the last two months, from starting off 2011 in a relatively nasty UC flare, and then going onto 15 mg per day of steroids and seeing nearly instant decreasing symptoms.  And then about a month into the steroids and beginning the taper noticing some old signs of weird skin stuff on my right foot.  But all along, feeling pretty darn good about gaining back the weight I had lost in December, and seeing the bleeding go way way down to almost nothing at all.

But I ain’t going to tell a lie, for me its always a bit scary when you see good results from prednisone in terms of wacking your symptoms and then finally you swallow your last 2.5mg quarter pill knowing it will be your last and the taper is over.  But life goes on.  And so does the Specific Carbohydrate Diet or SCD plan for me.  That’s the one thing that has not changed for about 16 months now.  I feel like this is going to be another time where I really put the SCD diet to the test once again.  I know that although I’m drug free for about two days now, my colitis is still very mildly active (not always hard stools, and every 4-5ish days I’ll notice little old red man on the toilet paper a bit).  So, if over the next short while things can get even more under control with simply sticking to a specific diet, well, that will be alright by me.  And I’m pretty confident things are going to go my way this time.  I mean come on, I’ve been making new batches of SCD yogurt every two weeks or so.  Also, I’m not putting any milk in my morning cup of decaf coffee(and often times afternoon and evening cup), only some honey which I’m now fully addicted to.

Let’s see, what else am I doing to further the remission of my UC, well I’m starting to do yoga, my mom got me a yoga mat for my birthday.  And, my dad got me a bee-hive for a birthday present.  It was a double new hobby wammy birthday this year.

me grilling with my brother at my B-day party recently

I’m trying not to get all stressed out with work anymore, come on, work is definitely not as important as staying sane.  They don’t take paychecks when you’re trying to get out of the mental home, or do they?

Something else, I’m just beginning which is more of a hobby than anything else is beekeeping.  That’s right, some of you may have watched my first video, but

top bar bee hive

my home built top bar bee-hive

soon enough 3 pounds of bees and 1 Italian Queen will be arriving.   And, yes, this will be my first mail order bride.  There are high hopes that this hive will start cranking out some serious honey, as we’re going thru now about 3 pounds per week of it here.(The SCD diet allows honey, and bees make honey…)

I can’t say enough about getting into a new hobby.  Of course all of us are living busy lives, where at times it seems impossible to plug something new into our daily routines.  If you are looking to change your life around (like I am), what better way than to start a new hobby.  Maybe something that you have always wanted to do your whole life since you were little, but haven’t yet.  Maybe something that you became interested in recently.

I’m not sure when my next post will be, or what the update will look like.  But for right now, I’m really happy to bee

Carolyn, my mentor from the local beekeepers association

a part of this website and to be able to share my stories with everyone else who has and understands the life of a UC’er.  We’re most definitely a very special international group of people, that’s for sure, and it blows my mind reading others stories when they land in my inbox.  I get pissed off at myself when at times I’m bogged down with work or something else and it takes me a day or two before I can publish one of your stories(please don’t take it personal if that happened to you).  The variety of stories that have been submitted are amazing.  What’s really cool for me and hopefully everyone else is to notice through the comments everyone leaves how people with sometimes “unusual” personal stories can find another UC’er on the other side of the globe with the exact same colitis situation.  It is a small world, and a large intestine after all.

Until next time, I’ll definitely keep posting the stories everyone submits, filming (hopefully) funny videos, getting the bee hive started, and working on some more scientific interviews with some local researchers.

Adam

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10 Responses to OK Ulcerative Colitis, Let’s Give this Another Try

  1. Amber March 16, 2011 at 10:16 am #

    Hi Adam! Good luck with the bees! I hope your wife is not too jealous of your mailorder bride….after all if she makes her too mad she certainly has one heck of a sting! *cough* anyways….:) The reason I’m making a comment is that I LOVE the line where you say “It is a small world, and a large intestine after all.” I think that will be my new catch phrase if you don’t mind…it is the most brilliant thing I have heard in a long time and would love to pass it on.
    You are so funny and inspirational! Keep it up!

    • Adam
      Adam March 16, 2011 at 9:02 pm #

      What up Amber,
      thx for the comment, so far so good with the Italian queen being accepted into our family, but that could change quick you know… fingers crossed over here.
      happy you’re getting kicks out of the one liner.
      Laters,
      Adam

  2. love March 16, 2011 at 11:16 am #

    Hey Adam =) Good luck with the bees and SCD.. i’m agree with Amber, ‘small world and large intestine’ is amazing :)

    • Adam
      Adam March 16, 2011 at 9:03 pm #

      thx Love,
      There’s hopefully going to be some interesting bee updates, just really hoping they don’t fly away right after they see the hive.
      time will tell. it all comes down to the italiana queen, they will follow her wherever she goes i was told.

      Adam

  3. Peter NZ March 16, 2011 at 3:38 pm #

    Happy St Patricks day Adam,
    Happy to hear you are off the Pred.
    Nie one,
    Peter

    • Adam
      Adam March 16, 2011 at 9:04 pm #

      yo peter,
      I’m thinking you might be the first to get on with St patty’s.
      And you might be well into the whiskey by the time you read this, thx bud,
      Adam

  4. Dawn March 16, 2011 at 6:56 pm #

    Hoping you can stay off the Pred and feeling good, Adam. I definitely know the love/hate relationship with that stuff. SCD yogurt is one of the things that makes me glad I gave SCD a try even though it never really worked well for me. I still make the yogurt on a regular basis for my whole family and we love it! Good luck with your bees. :-)

    • Adam
      Adam March 16, 2011 at 9:05 pm #

      Hey Dawn,
      Thanks so much. I’ll try to steer cleer of old white man pills.
      they scare the doodies out of me.

      Maybe you and I should have a yogurt making contest?
      What do you think?

  5. DavesNinja March 17, 2011 at 7:03 am #

    AWESOME! New hobbies are always fun! Bee keeping sounds GREAT! I look forward to hearing your bee keeping stories.

  6. DeKay March 17, 2011 at 5:45 pm #

    A beehive, that’s just awesome.

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