Just wondering if any other fellow UC’ers experience night sweats with their flares?
I never sweat, really, I don’t…I used to be VERY active “pre-UC” and don’t ever remember sweating much. Even when running, doing other cardio, playing sports, etc. Over the past few years I’ve noticed some major night sweats come and go, particularly during flares. I am in a pretty bad flare right now and I’ve been waking up once or twice each night drenched! (sorry if you think it’s gross…my husband thinks so!) I literally have to wake up, change clothes and put towels under me when sleeping! Very strange. I’ll mention it to my doctor but I was just wondering if anyone else experiences this. I’ve had my thyroid checked and that’s fine. I’m only 32, so I doubt it’s menopause. I haven’t changed meds recently and it’s been happening only this past week or so. FYI- I’m on sulfasalizine, methotrexate, mesalamine, and a bunch of otc supplements-vitamins. Just wanna see if colitis may be the cause.
January 8, 2011 at 10:10 pm
Hey Angie,
I know exactly what you are talking about. On my initial several year flare much of which was before I was diagnosed, I had night sweats several nights (maybe 10 times in all). It was like just jumping out of a swimming pool but being in bed and all sticky/sweaty/wet. Pillow totally drenched, sheets totally drenched etc…
My GI doctor said it was somewhat common when in a bad flare.
To deal with it, I started wearing a shirt to sleep(which I never did before) and when i woke up drenched, I just changed it and flipped the pillow over, and this seemed to work for the remaining night sweat days.
-On a side note, I am so sorry to hear you are in a nasty flare at to start 2011. I’d be real interested to hear what you doctor suggests to you to help fix your current situation. I really didn’t do anything different, I was taking massive steroids at the time as I recall.
best of luck with getting through this flare quickly Angie!
January 8, 2011 at 10:48 pm
Definitely had these too, at home and in the hospital. I was using hydrocortisone enemas at the time, and assumed that was causing it (increased sweating is listed in the side effects), but the flare itself could have contributed too.
Hope you feel better soon!
January 9, 2011 at 8:51 am
I had those with UC nd I still have them with pouchitis flare ups. My Dr told me its just part of my body fighting the infection.
January 9, 2011 at 2:53 pm
I used to have these as well. I remember a couple of times having to change my pajamas two to three times during the night because each pair became soaked. My doctor didn’t do much to explain why they were happening. He only speculated that they were perhaps due to my UC “flare” (which lasted months). I’ve only had mild episodes since I’ve had my j-pouch surgery.
January 10, 2011 at 6:26 am
Yep I have suffered from night sweats too at 27 my mother thought I was having early on set menapause but it turns out it was a symptom of latent tuberculosis. I also have UC. Don’t want to worry anyone but thats what it was for me. Best of luck!
January 10, 2011 at 12:04 pm
Hi Angie,
Sorry you are flaring, I am too. I have been having the nasty night sweats as well. I always thought they were a side effect of the meds, but I see from reading all these posts, perhaps not. I am on the hydrocortisone enemas,(my flare is only in my rectum this time, but equally as miserable)) and just weaned off prednesone. I always thought it was the prednesone that did it. But your body fighting infection can probably do it. I have felt better the last 3 days after about almost 5 months of flaring, so hang in there & keep a stack of night clothes or t-shirts next to the bed.
January 13, 2011 at 3:19 pm
Day 4 in the hospital! Another one or two more
60 mg steroids, had 1st ever remicade infusion last night.
I am feeling better, and hopefully this flare is on the mend. NOT the outcome I wanted, but oh well!
January 19, 2011 at 6:01 am
Uggh! I’m in a flare too! I’ve been dealing with gut problems my whole life it seems. The last 6 or 7 years I’ve been actively trying to figure it out. I’ve been to numerous docs and had my share of tests and colonoscopies. Oddly enough, I was diagnosed with UC in Feb 2010 after I got really sick. I had a colonoscopy in December 2009 and by Feb I was in my first major flare and that was accompanied by a MASSIVE colon infection! I was in the hospital for a week, lost 20 lbs, took a month or so at home to recover! Anyway, I’ve been in this flare since early December – went into the hospital just after Christmas and got out the 2nd of Jan. Happy New Year!! I get MAJOR night sweats, due to the steroids I assume. I barely sleep anymore – when I do fall asleep – I sweat profusely!! I have to change PJ’s through the night and sleep with a towel! I can’t sleep in my bed – I’m couch bound! I just can’t lay in my bed like that, it’s that uncomfortable! I’m trying to drink a TON of water to flush my system and I read that the earlier in the day that I take my steroids, the less I might sweat. I didn’t sweat quite as much last night, but I was awake most of the night. Dozing here and there, sweating here and there! Not sure there is much more I can do, but wait for the weaning to begin. Hoping that will start on the 25th when I see my doc. I’m pretty sure I’ll be weaning until late spring, early summer, as that is what happened the last time I was on this dose. I also have moon face and my emotions are a little erratic. No fun! Trying to be positive and not focus on the bad stuff!! I’m getting better every day and I can eat again! SO, that’s my super condensed story and my explanation on my night sweats. Haha! Not sure if it was helpful at all! I guess it was really just an FYI and a “I got it too babe, your not alone”! Best of luck! Prayers to all!
April 30, 2011 at 5:25 am
Dam those night sweats, I have UC and get these night sweats only when i’m in a flare which makes me wake up and run to loo 2-4 times during my sleep. I have not touched steriods for 2 years I am only taking pentasa so I feel the sweats are not drug related for me.
April 30, 2011 at 8:01 am
When I have a flare upI go hot anc cold. Blankets on and off all night. I sleep with a fan on all year long.
August 7, 2011 at 6:09 am
Also experiencing night sweats. These have persisted before and after taking prednisone. So, in my situation it seems it is related to body fighting infection.