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Nicole’s Colitis in the Midwest

NicoleIntroduction:

Hi there! My name is Nicole and I live in the Midwest USA. I am married to my best friend and the mother of five fabulous children. I’m 33 years old and was recently diagnosed with colitis in early February 2013. When I was first diagnosed, I threw myself a pity party, then started researching this disease, and found this site. I’ve been lurking for a couple of weeks, and finally found the strength to introduce myself.

Some more about Nicole:

I’m a pretty laid back person with a fun-loving attitude and a great sense of humor, if I do say so myself. I used to be really big into crafty things, like knitting and scrapbooking, but most recently, I’ve been an avid reader, a part-time gamer, and I’ve developed a passion for food (which is why I was so devastated when I was diagnosed…silly, I know.) I love spending time with my family, I’m into tattoos, piercings, and most things random.

Symptoms:

After my diagnosis, I was started on Asacol, and I am currently on that to manage my symptoms. I went from going to the bathroom 20+ down to 2-3 after my hospitalization and medication. Thankfully, I actually FEEL significantly better.

Colitis in the Midwest – Nicole’s Story

My family and friends have been amazing in helping me cope with this difficult time in my life. My husband basically saved my life by taking me to the hospital when I was close to withering away to nothing. It sucks having to take days off of work because I can’t seem to stay out of the bathroom, but my job is super understanding and being approved for FMLA definitely helps. I just hate not being able to live the life I once lived.

However, my diagnosis may very well be the best thing that ever happened to me. As I previously mentioned, I have had symptoms of UC since I was a child, and no doctor ever took me seriously. I mean, what 12 year old as bloody stools and recurrent diarrhea on a regular basis?! So, even though I hate having to live with this disease, I at least know now what is wrong with me and I don’t have to feel like I’m crazy because no one can tell me why I feel the way I do. Now I know why.

My journey with Ulcerative Colitis actually started when I was 12 when I had my first colonoscopy, but it was misdiagnosed and went untreated until recently when I had my wisdom teeth removed and was prescribed Clindamycin for aftercare. After a week of taking my antibiotics, I ended up with c-diff, which I wrote off for 3 weeks as a bad stomach bug. Finally, I went to the doctor and was put on antibiotics for c-diff and thought all was well until I ended up being hospitalized for a week for severe dehydration from not eating or drinking and having severe diarrhea for a week. In the hospital, I tested negative for c-diff, but had another colonoscopy and was diagnosed with UC.

written by Nicole

submitted in the colitis venting area





6 Responses to “Nicole’s Colitis in the Midwest”

  1. Anna in DC
    AnnaMarch 5, 2013 at 8:53 pm #

    Nicole! I urge you to look into the GAPS diet – it’s tough but WORTH it.

  2. bevMarch 6, 2013 at 12:53 pm #

    Hi Nicole…welcome! Happy you got up the courage to post your story!

    I’m just curious, Nicole…did you take alot of antibiotics when you were young? Or any at all?

    I did, and probably had symptoms of UC longbefore I was officially diagnosed, too. I had very bad tonsils as a young child, and used to have to get antibiotic injections in my butt…the needles were huge and painful…but I digress.

    Then, in my twenties, I took accutane four times, for acne. Accutane is a notoriously dangerous drug that has been proven to cause UC. After taking it, and also quitting smoking, my UC came out full blown.

    Three strikes I’m out…antibiotics, accutane, and stopping smoking. A UC trifecta!

    I am always interested in why wee get this condition…that’s why I ask.

    Cheers,
    Bev
    :)

  3. Midwest Nicole
    NicoleMarch 6, 2013 at 9:37 pm #

    Hi Bev –

    Thanks for the warm welcome!! I did take a lot of antibiotics when I was VERY young (I honestly believe my mother suffered from Munchausen by Proxy syndrome…but I digress) – but then I was diagnosed as allergic to most antibiotics. Since then, I have rarely taken them because doctors hesitate to prescribe them since there are so few I can take – right now, the list of “approved antibiotics” for me is around 5, one of which is thought to have caused me to get C-Diff.

    • bevMarch 6, 2013 at 10:48 pm #

      Aha! Good old antibiotics. Yet another antibiotic story. I hear it over and aver again.

      Thank you for answering my nosy question about them. It seems we’ve all been down that path in our lives at one time or another…and now we have UC.

      Maybe antibiotics were NOT the greatest invention of the 20th century after all…

      Bev
      :)

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