I’m a newbie. My symptoms started in Dec 2011. I had a sigmoidoscopy in March 2012 and was diagnosed with UC.
Some more about me:
I was always a healthy kid. Active, into sports, got my pilots license right out of high school……… haha random. Worked at a hardware store and then became a hair stylist! I guess I must not handle stress very well – had shingles before due to stress and I’m almost certain, for me, that’s where my UC came from.
I love to laugh, be with friends and family, entertain…….
I’m easy to get along with. I like to play volleyball, snowboard, ride my motorcycle, cook…………aaaaand a lil crafty too.
Colitis Symptoms Right Now:
I recently switched meds again and other than a little mucous and some cramping I’m doing ok.
Wanting To Get Pregnant
Hi my name is LaNae………….28 year old female and diagnosed with Ulcerative Colitis in 2012.
I was living 4 hours away from where I am now – had my life in order – never sick, never had any bowel or stomach problems ever – no history in my family either. Then, I met my husband online and moved to where he was in June 2011 and my whole world changed drastically. I now live in Lethbridge, Alberta Canada. At Christmas time 2011 I started noticing weird stuff going on: urgency to go to the bathroom, mucousy stools, and then……. the blood started. I went to the doctor as soon as I could. I was scheduled for a sigmoidoscopy right away but the procedure never actually happened till March. I am new to the area I live in, with limited docs taking new patients and 1 GI doc for the whole southern part of the province.
The doctors never made it really clear after the the procedure was done what was actually going on – which I think could have been and be the most frustrating part. I knew my symptoms led us to believe it was colitis but my biopsy was a “sparatic pattern” which would be more crohn’s related. (it wasn’t until my last doc appointment that he actually said “ulcertive colitis” but he still beat around the bush!!!) I was put on asacol (8 pills at 800 – I think) right away and I found myself going through about 10-14 days that were really good (hardly any symptoms) and then about 10-14 days where I seemed to be in the bathroom a lot.
This cycle went on for about 3 months and then June 2012 went into a huge flare (lost my appetite, bathroom at least 15-20 times a day, lost 10 lbs in 2 weeks) for 2 months until I was put on prednisone. Prednisone was a life saver. I started feeling better and as I was tapering off the prednisone my doc started me on imuran (2 pills at 50mg?) at the end of Sept 2012. I thought things were getting back to normal until I noticed I was losing A LOT of hair. I rode it out a bit but I knew this wasn’t normal. I went back to the doc, he took me off imuran and he put me back on asacol which is where I am now – I’m doing great actually but I can’t help but wonder and wait when my symptoms will start again.
I guess my BIGGEST concern now is I was married a year and a half ago and my husband and I want to start trying to get PREGNANT. First off, I am the worst at being patient and my doc says I need to be in remission for a while before we try (I’m not getting any younger here!). Second, I’m super nervous to be on meds while trying and being pregnant even though my doc thinks its perfectly fine and I’ve read tons of blogs on women who were on asacol and had healthy babies, I still hate the idea.
I am super pumped I found this website and all of you! Its definitely the emotions for me and feeling alone in my disease on top of a lonely beginning in a new life with my husband here.
My question is: in getting healthier (the thing is I’m actually doing ok right now) but I feel the meds are just masking the symptoms and problems right now -
how do I start the SCD diet with little symptoms and taper off my meds? do I tell my doctor (though he thinks diet has nothing to do with it)?
if the SCD diet works for me – how long do we wait to start a family and is this a healthier/safer way to go? risking a flare during pregnancy.
THANK YOU SO MUCH!
desperate, frustrated, nervous and wanting to get pregnant……….yours truly,
I just feel like all these meds are bandaids…………they cover the problem but they aren’t healing the problem. Maybe they are needed at times but I am interested in a more natural way.
I am currently taking 5 pills 800 asacol, biotin (mostly to help recover from the hair loss), folic acid and iron.