New To This – First Colonoscopy Coming Up, Should I Worry?

35 year old taking prednisoneIntroduction:

I’m a 35 year old educator from the southeast region of the United States. I am single, and the younger of two boys. I enjoy life.

Some more about me:

I love music of all types and genres. I’m in a not for profit book club, so I guess it goes with out saying that I enjoy books. I’m also a former comic book geek, so I enjoy sci-fi flicks. I’m also a news and political junkie. I enjoy listening to opposing view points on a variety of topics. Self proclaimed history buff as well. My favorite sports teams are the San Francisco 49er’s and the Boston Celtics.

Symptoms:

I have bloody stools, abdominal pains, diarrhea, nausea, and general malaise.

New To This

I’m a 35 year old male who was recently diagnosed with UC. At about the age of 21 I suffered my first flare up. The attending ER doc, informed me that it was colitis and sent me on my way with some meds. Little did I know that I had a condition that would never go away entirely.

For the past decade or so I have been experiencing symptoms of UC, but I had no idea what the causes were. They were so infrequent that I just figured it was my diet and my Lactose intolerance. So I basically brushed it off. I had really just adapted to eating certain foods at certain times.

Fast forward 14years and I’m awakened in the night with intense abdominal pains, diarrhea, and vomiting. I was literally confined to my bathroom floor for over 8 hours. Once I was able to drive myself to the ER, I was admitted for 4 days. The Doc’s said that My entire colon was inflamed, and my Potassium levels were low due to the diarrhea ( 20 or more times that day).

I got home from the hospital last Saturday night (1 week and a day ago), not scheduled to go back to work till this ( its Sunday night here now) Wednesday. I’m still having some discomfort. Mostly dull to sharp pains in my abdominal area. My appetite has returned within the last two or three days now. I started off with just chicken soup for the most part, as I’ve read that this is tolerable for those suffering a recent flare up with Ulcerative Colitis.

I have an appointment with the Gastro in the morning. I will be having my first colonoscopy. Should I be worried? Or is this normal for someone with UC? I’m new to this, any insights are welcome.

Medications I’m Using:

I’m currently on prednisone (20mg), Metronidazole (500mg), Asacol hd (800mg), and Ciprofloxacin (500mg).

written by Willard B

submitted in the colitis venting area









8 Responses to New To This – First Colonoscopy Coming Up, Should I Worry?

  1. mj November 6, 2013 at 5:54 am #

    Hey Willard,

    It’s completely normal to have a colonoscopy – I’m surprised you were diagnosed with colitis without one? It’s the best way for the GIs to find out what’s going on inside.

    I’ve had UC for about 13 years now (I’m 31) and have had 4 or 5 colonoscopies and an endoscopy over the years. The prep is not fun, but the whole thing is over before you know it – you’ll be waking up thinking, has it happened yet? My GI likes to keep an eye on things, so every few years I’ll have a colonoscopy.

    Chicken soup is definitely good during a flare – have you tried the SCD diet yet? I started it after my last hospitalisation because my UC was so bad, that was about 5 weeks ago. I haven’t felt this good in years, I feel like I have my life back! It’s hard at first because it is restrictive but it’s totally worth the sacrifice. Adam’s book is great too :) Packed full of experiences & info.

    All the best with the colonoscopy!

  2. Adam November 6, 2013 at 5:57 am #

    Hi Willard,

    I’m not sure if you’ve already had your gastro appointment or not, but I don’t think you should be worried. Colonoscopies are very normal, and you’ll have some nice pictures to look at afterwards showing exactly how your colon looks from the inside.

    Also, since this sounds like an initial meeting with a GI doctor, make sure you feel comfortable with this doctor. If that’s not the case, maybe you have some options in terms of seeking out a different GI doc who may have more experience with UC patients. Or one whom you simply like better. (Nothing wrong with actually liking your GI doc, especially if they’re gonna be doing the colonoscopy camera snake on you in the future.)

    Sounds like you’ve done a pretty darn good job of controling the symtomps you’ve had for many years, so that’s pretty amazing, and great job.

    Trust your gut instincts, you know them well, and thanks again for sharing.

    -Adam

  3. Graham from England
    graham lee November 6, 2013 at 6:23 am #

    Hello Willard,

    It seems odd to me at least that you were diagnosed as having UC without a colonoscopy but the symptoms do sound familiar.

    This procedure is very necessary in order to check the inflammation etc as well to help successfully target any treatment. Unfortunately, perpetual bowel inflammation carries a significant cancer risk so we should be checked every couple of years.

    I’ve had 2 colonoscopies this year, the prep will slightly aggravate symptoms but please make sure you follow the guidelines thoroughly.

    Nothing worse than going through all this to have an inconclusive examination. Stop taking any multi vitamins or iron tablets to help ensure you are empty. I tried to be brave and chose to have mine without a sedative but definitely will next time.

    Good luck and hope all goes well!

  4. Cindy Subotich November 6, 2013 at 6:51 am #

    The most difficult part of a colonoscopy is the fast the day before! The prep concoction becomes almost revolting towards the end of the day, but with something to hide the flavor somewhat (I used Crystal Light pink lemonade), it was doable.
    Buy yourself some banana popsicles and lemon jello to eat the day before to stave off the hunger pangs. The procedure itself, well, you’ll miss it because you’ll sleep right through it! Afterwards, you’ll have good, detailed info about your condition, and peace of mind that you’re doing all that you can to be as healthy as possible.
    It’s human nature to be nervous-everyone is the first time. God bless you.

  5. Wendy
    Wendy Hammond November 6, 2013 at 6:59 am #

    From the symptoms you listed, it seems exactly like pancolitis, which is what I have. Colonoscopies are normal for people with UC. I Think diet greatly affects UC, but if it gets bad enough, I think anything you eat, even chicken soup will aggravate your colon. Hope things turn out well.

  6. PeterNZ November 6, 2013 at 6:32 pm #

    Its a breeze mate. The worst part is drinking the prep stuff and not eating.
    don’t worry at all.

  7. UC Family Boy
    UC family boy November 8, 2013 at 11:42 am #

    Willard,

    Having the scope would ease your mind. I had UC for at least 2 years or so since seeing my GP but I haven’t had a colonoscopy.
    It’s planned for this coming Tuesday to see what we are dealing with. I’ve been doing FMT and introduced EVO at which point I really turned a corner. Drastic improvement and I’ve learnt some helpful…potentially helpful strategy to combating UC successfully. Over the last 2 years I’ve been doing nothing but this, and finally think I have found what could work. Too long to explain here, but will write up after my scope.

  8. jim November 12, 2013 at 1:30 am #

    hey willard- i have had 5 scopes in 12 years. i am age 58. mostly the scopes are demeaning for me. but i soldier up and get through them as a necessary evil. they are essential for determining how mild or severe the uc is.
    however, there are exceptions to every rule. scope #3 started out normal- mild sedation laying on my side in the procedure room. then i experience some “internal pain” i was groggy but when that pain started i was soon groaning and trying to get off the table! the dr ordered more sedation and back to sleep i went.
    the next 2 were no problem. also my dr uses a combination of drugs for the sedation. 1 of the drugs is called vistaril and it causes me some confusion and short term memory lapses. nothing life threatening. just keepin it real!

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No matter what, colitis flares don't last forever, don't forget it:)