I am 34, and from the lake district in the UK. I am usually an energetic fun loving happy person but UC is currently kicking my ass and making me a little depressed. Help me good people of the world and I will share my experiences with you too.
Some more about me:
I love music, when I am well, I am DJ, promoter and events organizer in North West UK.
Mega-tired all the time, have to be very careful what I eat, got blood and mucus going on at the moment and churney stomach. A general loss of drive…
My Colitis Story:
I was diagnosed around 3 years ago but have had the condition for about 4. I have been in remission for the last year but it’s just come back.
Shall I accept the meds or keep trying with diet and alternatives?
I really really love my food so diet is sooooooo hard…And how do I get my energy back?
I have found that my social life has suffered massively and having a girlfriend is very difficult and embarrassing when flaring.
It’s weird, when you are in remission you almost forget there is anything wrong with you, I was drinking quite a bit, partying hard (which is kinda part of being a DJ and events organizer) and eating pretty much anything I liked with no regard for the consequences as I wrongly thought that I was fine again. But then BOOM it came back and now I am a hermit once again.
Now it feels like there is no light at the end of the tunnel and my personal, social and working life is suffering because of it. I am certainly in some need of some encouragement and advice and someone to convince me that things are gonna be fine again.
My brother is being very helpful I must admit, he is always doing research for me and telling me about foods that are supposed to be good for me and stuff. But really I would like to talk to some lovely people that are experiencing the same things as I am.
Also I would like to know how often people out there are having the bum camera or colonoscopy or whatever you wanna call it, I have only had it once when I was diagnosed, should I be having it again to keep and eye on things?
Anyhow thanks for listening.
Medications I’ve worked with:
Pred foam has worked best for me but I had to stop taking asacol as they said errrr can’t remember what you call them levels were dangerously low so took me off them, so how do i go about staying in remission?
written by Dave