My husband, age 43, was recently diagnosed with UC, in July of 2013. We live in Florida and have a 10 year old son. I tend to eat a fairly healthy diet and exercise regularly, however, my husband is and has always been inclined toward eating “junk,” and has a great fondness for food, especially Italian. As you can all relate to, he is feeling quite discouraged and depressed right now, and I am feeling helpless.
He is currently on 1,500 mg of Colazol 3X per day, and we are starting the SCD diet right now.
I have been reading a lot of the personal stories on this site, and while there is a lot of hope, there is also a lot of fear as we move forward with this disease. When the doctor diagnosed my husband, I was in the room, as it was just after his colonoscopy and he was still groggy. So, the doctor said it was Ulcerative Colitis (the way he said it implied it was no big deal) and hubby would get some meds and could continue to eat as he always had.
Based on what I have now seen we are up against, it seems like the Dr. should have had a serious sit down discussion with us about this disease, its long term effects, and what we could anticipate in day to day struggles. But, that did not happen. Hubby still is hung up on “…but the Dr. SAID…”, while I am far more inclined to educating myself and searching for alternative treatments.
He is now 3 days into the SCD diet cleanse phase, and we will start on phase 1 in another day or two. He is also on 750mg colazol (2 tabs at a time, so 1,500 mg per dose, with three 1,500 mg doses daily.) This is an increase over what he began on, as the original dosage was providing no relief at his one month follow up w/ the GI Dr.
The cleanse period seems to have reduced soiling “accidents, ” however, he is very tender on the left side of his abdomen. Also, he continues to feel urgency and cramping frequently, but usually nothing is coming out except for the occasional blood/mucous.
My question right now is (and I am sure I will have MANY more as time goes on), it the cramping and urgency with either nothing coming out or just blood/mucous a typical symptom? My concern is that there could be some sort of blockage??
Now, granted, he has had ONLY the SCD intro diet for almost 3 days now. (Broth, pure cider, 100% grape juice jello, weak iced tea, farmers cheese with honey, broiled fish; he did have some broiled beef patties at first, but was not tolerating them, so we removed them.) Any feedback would be greatly appreciated.
written by Jen
submitted in the “Family Members and Friends of UC’ers” section