Naturopathic Disaster

Tiffany the cook fullIntroduction:

I am almost 25 years old; I was diagnosed at 18. Following my diagnosis, I was in denial about my disease and couldn’t afford my meds. Thankfully, I had mild symptoms and functioned fairly normally until I went downhill and the end result was a 5 day stay in a hospital. I had lost 10lbs in water alone and couldn’t stop shivering between the anemia and extreme lower back pain. I came out in recovery/remission and restarted my life. Fast forward some years and I have been switched to Azathioprine and probiotics (of my own initiative). I live with my accepting, loving boyfriend and my beautiful 12 week old boston terrier. I work as a cook at an upscale retirement community and I am loving life when I’m not in pain.

Some more about me:

I’m a cook by trade, but a pastry cook by hobby. As a result of going gluten free, I have taught myself how to bake gluten free. I make birthday cakes for people I love :)

Symptoms:

I have a fair amount of pain around bowel movements; watery poo/diarrhea are a constant and blood and mucus are ever present. Depending on the day, I use the bathroom upwards of 10 times after which, of course, my abdominal area is sore and it can be painful to stand. I usually require at least a nap a day and I have to stop for bathroom breaks anytime I try to workout.

Naturopathic Disaster

About 2.5 months ago, I had just started my new job and was in remission; I was feeling pretty great. I had an opportunity to have a nutrition test at a naturopath at a reduced price, and because it was non-invasive, I figured “why not?”. While there, they recommended that I try some homeopathic remedies and again I figured “I’m in remission, why not?”. The very next day I was sick. I’m taking the same medications as before, but I can’t seem to shake this flare; its effecting how I work and I’m so tired of using the bathroom so often and at inconvenient times. Any recommendations for getting back into remission?

UC has caused me to look at life differently. One of the weirdest things to me is how little people know about it – if they know at all. Even when I try to explain, people don’t seem to comprehend what it’s like. They understand that I have to use the bathroom a lot and when I leave the room, it’s about 95% of the time for the bathroom. I can’t wait to finally get a smart phone so I can finally download the bathroom finder app!

Being a mathematical thinker, this disease has screwed with my head. Logically, there should be some kind of formula for what I should take and what I can/cannot eat; this is not so. I have found mostly what works for me, but this does not seem to necessarily resonate with other people who have Ulcerative Colitis. Because my train of thought has been disrupted, I find that I have developed more of a sense of apathy and a better understanding of chaotic nature. There is no formula for life and the sooner we understand this, the sooner we can move on with our lives.

Medications:

I passed Asacol whole, Prednisone is awful but works, and Azathioprine makes me feel weak but works for my colitis. Probiotics are amazing!

written by Tiffany

submitted in the colitis venting area





7 Responses to “Naturopathic Disaster”

  1. KevinMay 27, 2013 at 5:58 am #

    Tiffany

    As an accountant by trade, I know exactly what you are talking about when you say there has to be a rational, formulaic way to combat this disease. The most frustrating thing for me when I was battling it was that I couldn’t just take medication and make everything better. I suspect this is the struggle many go through when they find out they have cancer, its just that, up to this point in my life (and I suspect yours), I have always had answers, there was always a solution.

    Unfortunately (or fortunately I haven’t decided yet), after trying all alternatives, I ended up having surgery on May 3rd of this year. That was my “cure”.

    If you would like to talk further about the process I went through with this disease feel free to email me @ kevindschalk@yahoo.com

    Take Care

    Kevin

    • KMJuly 17, 2013 at 8:47 pm #

      What you said is so true Kevin. We are currently going through this frustration. My husband has been diagnosed with UC in January. He was told he has severe UC and was put on Prednisone. 13 weeks later he got moved to Asacol. Then suddenly 10 days ago his symptoms are back and he has a flare up again. He is back on Prednisone again…

      I have always had solutions for all the problems (mine and his). Being a Problem solver, seeing him suffer and cannot offer any solutions is frustrating… I hope some of the things I read hear will help him.

  2. Don
    DonMay 27, 2013 at 8:09 am #

    Hi Tiffany! Thanks for sharing your story. It makes me sad to see another young, beautiful, vibrant person suffering with this condition. I can totally relate to what you’re going through as I am the kind of person who solves problems and I have been battling this one for 6 years with only some success. The SCD diet has kept me in remission and I strongly suggest it for you. It’s alot of work and I still have ups and downs but for the most part I am leading a normal life again. It takes a long time to heal after a flare. You have to be very gentle with your system and patient. I ate only SCD legal veggies and meats for a few weeks making sure I cooked the vegetables well and pureed them. It was like eating baby food, only tasted really good. That allowed my system to absorb the nutrients quickly and my digestion improved rapidly. I also kept a food journal that allowed me to see my reactions to foods as I added them to my diet. Good luck and I hope you feel better soon.
    Don

  3. SharonMay 29, 2013 at 1:10 pm #

    Thanks for taking the time to tell your story. Do you know what natural stuff you took? Unfortunately, natural does not always mean good for you, especially with UC. I am on Humira now but take probiotics too. I am starting to increase my dose in hopes of weaning off of the Humira but started a low dose of prednisone today to try to get into full remission first. It is a never ending balancing act but great to have each others support and encouragement.

  4. joannaJune 1, 2013 at 6:44 pm #

    yeah, I’ve found this disease has no logical cause or treatment. it really makes no sense to me at all. it is frustrating when you see someone take one little supplement and they are fine and then some people try a ton of things and need their colon removed. my dad is like that and doesn’t understand what I go through on a daily basis.

    I don’t really see a cure coming in my lifetime just because doctors are as clueless as the patient.

    • bevJune 2, 2013 at 7:20 am #

      I hear that Joanna. It literally keeps me up at night trying to figure out why some achieve remission and some don’t…it does not seem right, or fair even.

      There has to be a reason or answer and I am thinking that it is perhaps as simple as why each one of us got UC in the first place. Depending on the cause, that is why there could be that different ‘magic bullet’ for each one of us…believe me, I’m working on it…

      :)

      • jayJune 6, 2013 at 9:38 pm #

        Hi Bev,

        Just wondering i live in Australia, do you know of a probiotic that’s equivelent to the renew life you take? If i import your one it costs too much getting it through customs. Im not sure how to ask this question to the whole group have not completely figured the site out yet.

        Thanks Jay

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