Am 38 year old single woman!! Working as a massage therapist and Bowen Technique therapist too. Been diagnosed with UC for 3.5 years now and looking for advice on surgery.
Ulcerative Colitis Surgery or Not:
I developed UC from being on the lighter life diet in the UK and getting compacted bowels and then deciding to stop the diet before the time the leader wanted me to do it. I chose unhealthy foods after being on shakes and at a time when my father was dying of cancer and I had decided to quit smoking. The combination of all that caused the start of my UC.
Since then I have been hospitalized twice, not really had a time of remission since I was last hospitalized except for a brief period when I decided to start smoking again. Got to love the irony of that! Every time I see my specialist he tells me ulcerative colitis has not been identified with a known cause and there is no medical evidence to support the fact that it is diet related. Very frustrating for a fatty like me who would love to just be told sort your diet out and you will get better! The overwhelming evidence from so many users online is that diet really does improve your condition so I think, New Year, New me! I’ll try again. Last time I tried giving up wheat, dairy and lactose and sucrose and ended up getting terrible migraines and went to hospital! I just didn’t know what to eat to keep my energy levels going. I guess the answer is more protein. I ended up feeling really weak. I have just bought some aloe Vera drink too so am going to try that too see if that can help. But I think I know, my mainly carbohydrate based diet is causing the problems. Too much sugar. And red meat also for me is a no go. And alcohol, well wine and sparkling wine cause the most problems. I have had some terrible occasions with this horrid disease of not making it to the loo in time in public and all in the past year and I am wondering how much longer will I go on still not changing my diet to help myself.
I wish I had more self control!
Am currently on prednisolone 5mg daily, pentasa granules 4 mg daily, methotrexate 25mg weekly, folic acid once a week, adcal (calcium) daily. And was on azathioprine but it was damaging my liver so had to quickly come off it.
I think the only thing that really works for me is the steroids and long term they are not the answer to this problem.
My next stop is surgery.
written by Amanda
submitted in the Colitis Venting Area