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My UC and Symptoms – Melissa O’s Story

Meet Melissa:

I have UC since i was 15 but it was never really bad until i was pregnant with my 1st son my UC started really acting up. So i was okay taking medicatiom until the summer of 2016 my UC really flared up i started taking Liadal it didnt work at all. Now I’m taking Sulfasalazin it has been okay but i do get headaches and my hair has beem falling alot. I need to change medication again. I was recently at the hospital because i have inflammation in my left hip related to my UC. My orthopedic Dr said my left had inflammation related to my UC and going to happen when its going to happen basically but of course i can take medication for it but the orthopedic Dr wants my GI Dr to approve the medication first. UC has not been easy at all it holds me back from alot of things in life. It’s really horrible im always careful like okay am i going to be okay eating that i get nervous whenever im at a kids birthday party or at a restaurant.

Some more about Melissa:

My hobbies are going to the gym and jog and i love going to the beach. But my UC holds me back.

Symptoms:

My symptoms are constantly going tp the rest room especially in the morning right after i eat. But recently i was in the hospital i had inflammation in my left hip related to UC.

Melissa’s Story:

My GI Doctor is great but his PA sometimes doesn’t understand me.

So i have to be constantly telling her like no the medication is not working, then she tells me give the medication at least a month but I know my body so well i know if the medication is not working.

My family are kind of supportive, but they don’t understand how UC controls my life. They don’t understand UC can be very painful and make you insecure at times. Sometimes I do become depressed because of my Ulcerative Colitis always controlling my life, I wish I could control it, i wish there was a natural way to control my UC instead of depending on medications all the time. I just wish there’s a cure for UC.

Then any UCers wouldn’t be stressed over their UC and be more in control. UC is so serious if only there was a vaccine for it or something. Sometimes i want to take a roadtrip with my kids or go to a restaurant with my kids but i can’t because of my UC. I’m always worried what if i get sick and it’ s only my kids and me. So it is very hard having UC. There are days i feel great but i do have my bad days as well. Its really only the mornings i do have a hard time. Sometimes when i do eat in the morning i have to go to the rest room right away. Its irritating because sometimes i want to go for a jog but i dont know if i can go for a jog what if i have to go to the rest room and there’s no rest rooms close by. That’s the stressful part. I can’t do the things i want to do any more.

Medications / Supplements:

Liadal didn’t work at all amd the Aloe Vera juice doesn’t help me either. Sulfasalazine has been Okay but it gives me headaches and makes my hair fall alot.

written by Melissa O

submitted in the colitis venting area

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3 Responses to My UC and Symptoms – Melissa O’s Story

  1. Amanda Wicks May 8, 2017 at 7:25 pm #

    Melissa,

    I totally understand what you are going through. My life seems to revolve around the nearest toilet. I am super self-conscious and terrified of dating. My friends and family try to be supportive but unless a person deals with it, they don’t have a clue what it’s like. It’s so embarrassing to have this problem. I struggle with depression too. I’ve been on Lialda and I broke out in hives all over my body. I’m currently on Sulfasalazine, but it gives me headaches and makes me super sweaty. I have good days and bad days. I pray for a cure… one day, I hope.

    Hang in there! You are not alone in your struggle.

  2. Shaswat May 8, 2017 at 10:33 pm #

    Melissa,

    Yes, I am also an UCers since last 4 year. I can understand how it change life. I have to also in continuous search of rest room whenever I go out. No one can understand about this feeling. This seems so annoying sometime. But yes we have to struggle with it and fight it. And keep trying things which can relax. So keep trying new things.

  3. Jan May 9, 2017 at 3:20 am #

    Hi Melissa. I am so sorry to hear your story. Your story was my story three years ago after having my daughter. Terribly unwell and i couldn’t see myself ever having a normal life. I too was taking sulfasalazine, 4 a day. Didn’t seem to do much. In pain and depressed I sought the opinion of a bio-doctor. I found out that I have Pyrrole disorder which would account for me having UC. I would urge sufferers to look into this for themselves. It has been life changing for me. After treatment for this genetic disorder, I have been in remission for 18mnths and feel I have my life back. My thoughts are with you x

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