In 2008 I became very ill and had severe stomach pains following with blood loss.
My mom had taken me to the emergency room, I couldn’t walk, hadn’t eaten in about 2 days,and I was severely dehydrated. The doctors had done a bunch of test and came up with my diagnosis of Ulcerative Colitis. At the time I was only the age of 11 and didn’t understand exactly what was wrong. Two weeks later I was sent home with what felt like every medication in the world! I was taking about near to 12 pills a day just to get through the day. As the years passed I had more flares and now it is the year 2011 and i have been on steroids since 2008 as well as all of my other medications. I felt as if i was just going to have to live with it and learn to deal with the pain. But for my mom that wasn’t an option she wanted to make my life better.
This past summer I took a trip to Dallas for a second opinion and the doctor had told me my current doctor was giving me the worst treatment I can get and recommended me to have surgery. We went back home and talked to my doctor about the surgery and he finally agreed to do it. Now my problem is that because I’ve been on steroids for so long my body depends on them now and every time they try to take me off my body reacts in a bad way. Also in order for me to make surgery an option I need to get off the steroids.
One question I have is life more of and improvement after surgery or would it not be worth it?
written by Jasmine
submitted in the Colitis Venting Area