My Son’s Struggle with IBD

Introduction:

My name is Jade I’m 29 & a mother to two amazing kids. Tyler who is almost 11 & Ryleigh who is almost 3.

My Son’s Struggle with IBD

My son Tyler presented symptoms of what we thought was a nasty stomach virus on March 24th the usual abdominal pain, nausea, vomiting & diarrhea. but buy March 29th he got worse & I called an ambulance after he went to the bathroom & it was all blood.

We were admitted to the hospital that day with a diagnosis of severe colitis. They immediately put him on IV fluids, complete bowel rest (he didn’t est or drink for four days) & nausea meds & Tylenol for pain. they ordered stool cultures to check for different bacterias which all came back negative. we were discharged after six days & were told to go home & manage symptoms at home until we could see a specialist. we saw a specialist a week later & she confirmed our worst fears. Tyler has IBD she said she would need to do two scope procedures an endoscopy & colonoscopy done at the same time to determine if its UC or crohns, however she is confident its UC. He is not scheduled for the scopes until April 30th & we were again sent home to manage symptoms with out meds until scope procedures (I am weary of the meds) because meds could alter the scope results.

We were managing the symptoms ok at home until about two days ago when his pain increased again & his stools went back to being all blood. we had been managing his symptoms ok with strict diet change (low residue, gluten free & diary free) as well as taking a probiotic everyday & vitamins. My son hasn’t been able to attend school since this all started & we don’t know when he will be able to return. I’m feeling very frustrated as he is too because it seems to be taking so long to get answers and help. we are day 24 of my boy suffering. I don’t know what to do & I’m afraid of the damage it is doing to my sons insides. he is so young to be robbed of his childhood & I feel like we could be getting better quicker treatment. I� 39;m not sure what I’m looking for in this post, support, encouragement, advice anything really would be greatly appreciated. thank you.

written by Jade

submitted in the Friends and Family of Colitis Folks section