Hi my name is Lynn from Queensland Australia and my 26 year old son has recently been diagnosed with ulcerative colitis after having symptoms for about 6 years.
Our Journey So Far
Three weeks ago my son was diagnosed with mild to moderate pan colitis after years of loose bowel motions around 6 a day.
Around 5 weeks ago the urgency lead him to have a few accidents and his first bloody stool. So his GP sent him for an ultrasound then off for a colonoscopy. When he was diagnosed the gastroenterologist prescribed mesalamine tabs and a salofalk enema at night, working in pharmacy I wasn’t too happy to see him going on these drugs long term, anyway he started the drugs and really struggled keeping the enemas in and was waking every hour to run to the loo so he stopped using them for a few nights until he went back to the gastroenterologist who said to keep persevering with the enemas, but they were just making his symptoms a,lot worse so much so he was hospitalized last night with extreme dehydration, temperatures and having loose bowel motions every 15-20 minutes, so now he is off the enemas and they have him on prednisolone which seems late today to be helping, but once again a drug that is certainly not fantastic to be on long term. He had a dietician see him this morning and she is giving him lots of food ideas, he has a few food allergies we think that are not helping his symptoms.
He has lost 7kg in the last 3 weeks and he is malnourished because of these enemas……..his symptoms were mild compared to how they have been since starting on the enemas & the mesalamine. We too were really craped off when we asked the gastroenterologist about diet, he said no this disease has nothing to do with diet, it’s all very frustrating!!!!! We are changing gastroenterologists already and we will be closely monitoring diet and looking at alternatives to drugs to treat this disease. This site has given us lots more info than what any of the doctors he has seen have been able to give so thank you all for your stories and great information.
written by Lynn