Comments on: My Girlfriend was diagnosed with UC, Help Please http://www.ihaveuc.com/my-girlfriend-was-diagnosed-with-uc-help-please/ Tue, 07 Feb 2012 14:50:28 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: richardhttp://www.ihaveuc.com/my-girlfriend-was-diagnosed-with-uc-help-please/comment-page-1/#comment-1501 richard Tue, 26 Oct 2010 07:26:26 +0000 http://www.ihaveuc.com/?p=1282#comment-1501 thanks adam, she was diagnosed back in august of this year so everything is still new to her with the meds etc, i will look out for that book cheers. thanks adam, she was diagnosed back in august of this year so everything is still new to her with the meds etc, i will look out for that book cheers.

]]> By: Adamhttp://www.ihaveuc.com/my-girlfriend-was-diagnosed-with-uc-help-please/comment-page-1/#comment-1491 Adam Mon, 25 Oct 2010 23:21:18 +0000 http://www.ihaveuc.com/?p=1282#comment-1491 Hey Richard, First off, you are a stand up act for sure!! We need more people like you on this planet for darn sure. Since I'm the one with UC, I can't totally relate to your current situation, but I can say that I know I was acting very strangely(and I am pretty sure my wife would say I still do from time to time) after I was diagnosed with UC. For sure much of what I said to people was me talking out of my mind(quite possibly steroid/depression/not knowing what was going on related etc...). But sure enough, after some time, I did come around. Of course I don't know if your girlfriend was recently diagnosed or if it was a long time ago.... My advice would be to get her a "Breaking the Vicious Cycle" book if she hasn't read it already. It talks about the diet that I follow which got me better and off medications etc... Its a hard diet to follow for most people, but it can work. Either way, I wish you two the best, especially you for being such a good person and looking out for someone with UC! Best of luck! -Adam Hey Richard,
First off, you are a stand up act for sure!!
We need more people like you on this planet for darn sure.
Since I’m the one with UC, I can’t totally relate to your current situation, but I can say that I know I was acting very strangely(and I am pretty sure my wife would say I still do from time to time) after I was diagnosed with UC. For sure much of what I said to people was me talking out of my mind(quite possibly steroid/depression/not knowing what was going on related etc…). But sure enough, after some time, I did come around. Of course I don’t know if your girlfriend was recently diagnosed or if it was a long time ago…. My advice would be to get her a “Breaking the Vicious Cycle” book if she hasn’t read it already. It talks about the diet that I follow which got me better and off medications etc… Its a hard diet to follow for most people, but it can work.
Either way, I wish you two the best, especially you for being such a good person and looking out for someone with UC! Best of luck! -Adam

]]> By: richardhttp://www.ihaveuc.com/my-girlfriend-was-diagnosed-with-uc-help-please/comment-page-1/#comment-1490 richard Mon, 25 Oct 2010 22:27:07 +0000 http://www.ihaveuc.com/?p=1282#comment-1490 hi mate, my girlfriend or ex as it is now has uc and is not taken it very well hence why she broke up with me, i really dont know how to be there for her when shes pushing everybody away did ur gf ever feel like this? i care for her alot a want to support her. my sister has uc and crohns so am familiar with the symtoms etc. i just dont want her to feel like shes on her own. we had plans to get wed next year so its all a shock any advice would be brill thanks hi mate, my girlfriend or ex as it is now has uc and is not taken it very well hence why she broke up with me, i really dont know how to be there for her when shes pushing everybody away did ur gf ever feel like this? i care for her alot a want to support her. my sister has uc and crohns so am familiar with the symtoms etc. i just dont want her to feel like shes on her own. we had plans to get wed next year so its all a shock any advice would be brill thanks

]]> By: Zachhttp://www.ihaveuc.com/my-girlfriend-was-diagnosed-with-uc-help-please/comment-page-1/#comment-1426 Zach Thu, 21 Oct 2010 16:28:16 +0000 http://www.ihaveuc.com/?p=1282#comment-1426 Hi my girlfriend also has UC and its really really bad. Night after night she makes anywhere from 3-6 bathroom trips and comes back in pain. I don't know what to do. She has no medical insurance because she can't work full time because of this disease. we've tried to get governement help. it just seems like nothings works. shes been on those steroid meds for a year now and nothing seems to be helping at all. it just breaks my heart to see her in pain everyday and i can't do anything about it. is there anything i can do? I can only watch her cry for so much longer before i force her to the hospital which would cost her a fortune. help please!!!! Hi my girlfriend also has UC and its really really bad. Night after night she makes anywhere from 3-6 bathroom trips and comes back in pain. I don’t know what to do. She has no medical insurance because she can’t work full time because of this disease. we’ve tried to get governement help. it just seems like nothings works. shes been on those steroid meds for a year now and nothing seems to be helping at all. it just breaks my heart to see her in pain everyday and i can’t do anything about it. is there anything i can do? I can only watch her cry for so much longer before i force her to the hospital which would cost her a fortune. help please!!!!

]]> By: Adamhttp://www.ihaveuc.com/my-girlfriend-was-diagnosed-with-uc-help-please/comment-page-1/#comment-1060 Adam Mon, 02 Aug 2010 02:13:11 +0000 http://www.ihaveuc.com/?p=1282#comment-1060 My wife just started to use Remicade. It has been about 3 weeks from the first treatment, 1 week from her second treatment and she has seen minimum changes. Did Remicade take a while to kick in for you? Everyone we talk to said it was pretty immediate. Regards, Adam My wife just started to use Remicade. It has been about 3 weeks from the first treatment, 1 week from her second treatment and she has seen minimum changes. Did Remicade take a while to kick in for you? Everyone we talk to said it was pretty immediate.

Regards,
Adam

]]> By: Melanie Bryanthttp://www.ihaveuc.com/my-girlfriend-was-diagnosed-with-uc-help-please/comment-page-1/#comment-1018 Melanie Bryant Tue, 20 Jul 2010 19:52:23 +0000 http://www.ihaveuc.com/?p=1282#comment-1018 Sorry to hear about your girlfriend, I always feel bad when new people are burdened with this disease. Like Adam said everyone is different I have been in a flare for about a year trying different drug therapies it is a pain in the butt (excuse the pun! lol) The main side effect from the steroids that I have had ( I am on prednisone as well) is the appetite and weight gain and moon face. I hope this helps and hang in there and I think it's great you are so supportive as that is the main thing she needs is to not feel alone and have someone to talk to about her illness! Kudos to you! Mel Sorry to hear about your girlfriend, I always feel bad when new people are burdened with this disease. Like Adam said everyone is different I have been in a flare for about a year trying different drug therapies it is a pain in the butt (excuse the pun! lol) The main side effect from the steroids that I have had ( I am on prednisone as well) is the appetite and weight gain and moon face. I hope this helps and hang in there and I think it’s great you are so supportive as that is the main thing she needs is to not feel alone and have someone to talk to about her illness! Kudos to you!
Mel

]]> By: Amyhttp://www.ihaveuc.com/my-girlfriend-was-diagnosed-with-uc-help-please/comment-page-1/#comment-1017 Amy Tue, 20 Jul 2010 16:33:26 +0000 http://www.ihaveuc.com/?p=1282#comment-1017 Hi I am also a person suffering w/ U.C., and yes every ones symptoms can be very different! I first started suffering when planning my wedding and quit smoking all at the same time! (Dr.'s say there is a link between tobacco and U.C., Dr.'s have tried patches to see if it relieves symptoms and flare ups with U.C. and to no avail yet) I started off having blood in my stool with frequent bathroom trips, it started affecting my work ethic because I wasn't getting things accomplished! I pushed off going to the Dr. for about 2 yrs when I found out I was pregnant! Then my symptoms got much worse, then is when I decided to see a Dr.! Since I was prego there wasn't many meds I could use, I did however use Imodium until I delivered, using up to 12 Imodium a day at one point! So after seeing the dr. he put me on Prednisone, this med is ok short term but long term can do alot of damage! affects your liver, kidneys, not to mention you can get very depressed, weight gain! i was on prednisone for almost 4 yrs, and gained 30 lbs! Always remember if you don't like the dr.'s advice there's always another one out there! I have had 5 Dr. in the 13 yrs I have suffered with U.C. and tried many meds including Colozal, I am now on a I.V. therapy 1x3 months and a a med called imuran to keep me from rejecting the I.V. med called Remicade. It has kept me in remission for 3 yrs, when otherwise I would have a flare-up at least once a yr that would take 3 months to straighten out! Just a little F.Y.I. also hard candy peppermint will relieve that bloated, crampy feeling in your stomach after having a bowel movement! Hope this helps! Hi
I am also a person suffering w/ U.C., and yes every ones symptoms can be very different! I first started suffering when planning my wedding and quit smoking all at the same time! (Dr.’s say there is a link between tobacco and U.C., Dr.’s have tried patches to see if it relieves symptoms and flare ups with U.C. and to no avail yet) I started off having blood in my stool with frequent bathroom trips, it started affecting my work ethic because I wasn’t getting things accomplished! I pushed off going to the Dr. for about 2 yrs when I found out I was pregnant! Then my symptoms got much worse, then is when I decided to see a Dr.! Since I was prego there wasn’t many meds I could use, I did however use Imodium until I delivered, using up to 12 Imodium a day at one point! So after seeing the dr. he put me on Prednisone, this med is ok short term but long term can do alot of damage! affects your liver, kidneys, not to mention you can get very depressed, weight gain! i was on prednisone for almost 4 yrs, and gained 30 lbs! Always remember if you don’t like the dr.’s advice there’s always another one out there! I have had 5 Dr. in the 13 yrs I have suffered with U.C. and tried many meds including Colozal, I am now on a I.V. therapy 1×3 months and a a med called imuran to keep me from rejecting the I.V. med called Remicade. It has kept me in remission for 3 yrs, when otherwise I would have a flare-up at least once a yr that would take 3 months to straighten out! Just a little F.Y.I. also hard candy peppermint will relieve that bloated, crampy feeling in your stomach after having a bowel movement! Hope this helps!

]]> By: Vicki Thomashttp://www.ihaveuc.com/my-girlfriend-was-diagnosed-with-uc-help-please/comment-page-1/#comment-1015 Vicki Thomas Tue, 20 Jul 2010 15:10:11 +0000 http://www.ihaveuc.com/?p=1282#comment-1015 Wow - what excellent questions. Funny since just one year ago I and my husband were asking the exact same questions. As Adam says, this disease is 100 per cent individual. Some people have only one or two flares ever. Others seem to be constantly in and out of flares. Unfortunately because the disease is so individual it is hard to tell you what to expect. I have never been on Prednisone, I'm taking Budesonide (another steroid) and I'm experiencing no side effects from this medicine. I'm in my second major flare in a year now. But it is important to know I was in remission for seven months between these flares... I think the best thing for you to do is to keep posting your questions here and as well visit the Crohn's and Colitis Foundation of America web site - excellent forums on this site from which I have learned a lot. If you'd like some suggestions on books that are useful - let me know. Remember that you and your girlfriend are not alone - there are lots of us out here that can help you do don't be shy. We've all gone through it and now how you feel. cheers, vicki Wow – what excellent questions. Funny since just one year ago I and my husband were asking the exact same questions. As Adam says, this disease is 100 per cent individual. Some people have only one or two flares ever. Others seem to be constantly in and out of flares. Unfortunately because the disease is so individual it is hard to tell you what to expect. I have never been on Prednisone, I’m taking Budesonide (another steroid) and I’m experiencing no side effects from this medicine. I’m in my second major flare in a year now. But it is important to know I was in remission for seven months between these flares… I think the best thing for you to do is to keep posting your questions here and as well visit the Crohn’s and Colitis Foundation of America web site – excellent forums on this site from which I have learned a lot. If you’d like some suggestions on books that are useful – let me know. Remember that you and your girlfriend are not alone – there are lots of us out here that can help you do don’t be shy. We’ve all gone through it and now how you feel.
cheers,
vicki

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