I am 25 yrs old and diagnosed with Ulcerative Colitis at the age of 20. I was on Asacol and suffered horribly then switched to Imuran and went into remission for about 4 years (no meds).
I am experiencing my 1st flare after diagnosis. I started to notice random swelling of my eyes and joints before the GI symptoms started. I was in Chicago for business and I noticed that diarrhea and discomfort started. I immediately left Chicago and returned home (Houston) so that I could get treatment. Unfortunately, the GI doctor is horrible. She does not listen and often rushes me out of the office with a new medicine. Anyways, after a colonoscopy she said she couldn’t determine if it was Crohn’s or Colitis. My previous doctor told me it was Colitis so I don’t know why she is saying Crohn’s. Does anyone know the difference when diagnosising the two?
Also, I had high alkaline phosphotase in my blood work, which I am told is evident of liver damage. This really concerns me considering that this all hit so quickly. I was tested and it’s not hepatitis but my ANA levels were high (autoimmune antibodies). If anyone has experienced this please let me know what the outcome was because I am worried about this. I am scheduled for an ultrasound and biopsy soon.
Lastly, I am really frustrated because the prednisone is no longer working as well as it once did. I was put on 40 mgs and I was still having diarrhea and unbarable stomach pain at night. My primary doc increased the dose and told me to take a round at night for the belly pain. The GI prescribed some antibiotics but I refuse to take anything she prescribes because she’s a mess.
I would love a natural cure for all of this and I am particularly interested in JTP’s “Listen to your Gut” but I am a little apprehensive because I don’t know how trustworthy it is. If anyone has tried anything naturally and has had success let me know because I can’t continue with these meds long term. Until I find something that works prednisone and Imuran it is.
Down but not out,
Submitted in the Colitis Venting Area by “Praying For Long Term Remission”