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Medications Side Effects

ATTENTION ATTENTION UC’ers,

Let’s create the world’s largest database of peer experienced side effects by and for people living with UC.  Help our community by letting others know if you have ever experienced any side effects associated with the medications you have been prescribed for treating ulcerative colitis. (DATABASE IS BELOW)

Medications:
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Age:
    Please select the age when you experienced the side-effect(s).

Side-effect(s):

Other meds:

Search the Side Effects Database Below:

Medication
Age
Side Effects
Other Meds
Date
6-MP
62
Have taken 6MP daily for the last 4 years. Receive Remicade Infusion every 8 weeks.
Wanted off the 6MP due to paternal grandfather having Lymphoma Cancer. With approval from Gastroenterologist we have stopped the 6MP cold turkey. Have been off the 6MP for about two weeks. Have developed stomachache, diarrhea, gassiness, fever and chills. Gastroenterologist feels its just a viral bug that I have caught and it's not a flare up. Have been down for 1 week. Hoping it all subsides soon as new job begins in 4 days.
On Remicade. Infusion is every 8 weeks.
March 23, 2017
6-MP
39
headache and high feverand muscular aches
lialda
February 5, 2017
6-MP
18
None
February 3, 2017
6-MP
25
sore throat, cough
remicade
January 6, 2017
6-MP
45
None
September 4, 2016
6-MP
64
Killed most of my red blood cells
Yes I was doing on Radioactive iodine for thyroid
August 28, 2016
6-MP
53
Skin cancer (non Melanoma)
No
August 22, 2016
6-MP
22
Chronic nausea, vomiting, weight loss, loss of appetite, thinning hair, chronic fatigue
sulfasalazine, wellbutrin, folic acid, multi vitamins
August 21, 2016
6-MP
36
Nausea and weight loss
Lialda
August 19, 2016
6-MP
42
None. Had complete remission from UC while on it and bloods fine each time. Took a 16 week break as had been well for 2 years. UC returning so returned to the 6mp. Waiting for the medication to work again.
Pentassa
August 15, 2016
6-MP
42
6mp is both a chemotherapy and an immune-suppressant drug which means it shuts it down (as opposed to UC which means it is active all the time) and leaves you vulnerable to other ailments. I have been on 6mp since 2012 and have experienced the following:

1. I got Shingles within a month or so after starting. My treatment was a two hour I.V. bag of Famvir and within an hour or so, the itching and pain went away and by the next day, I was ok. The scarring however, left the area a light purple which is fading away.

2. Bronchitis: I had Bronchitis in 2014, 2015, and 2016, usually around the winter time (and while the winter is not the same in Hawaii as it is elsewhere), our winters are unpredictable; cold one day, rainy another, and humid later so that combined with just being tired a lot leaves me vulnerable for Bronchitis. Each time, I was treated with a daily (every single day) of I.V. treatment for two months with a steroid called dexmethasone. If you miss a day, you have to start over, but if you are loyal to the treatment, then within a week, your symptoms clear, the breathing is regular, and you just have to stay healthy. 2014 was the worst for me because I just had my first carpal tunnel surgery which took a month and a half to completely heal. After those two, I got a really bad case of nausea and had to go back for an I.V. treatment of Zofran which within an hour, I was able to eat and drink again.

3. Nausea: It varies from time to time and it happens. Sometimes I will get it when my stomach is aching and I still have to use the toilet. Other times, if its too hot or my temperature is up which Canada Dry really does help. The ginger ale provides a soothing solution to an upset stomach and nausea while the carbonation kills the taste of the acid reflux.

4. Fatigue: Colitis can make a person feel fatigued so it's not that much difference though with 6mp, you have days where just doing things in the morning like fixing your bed, showering, hygiene, brushing your teeth, and having breakfast can make you feel like you worked an 8-hour shift. I just found out I have sleep apnea so these symptoms kinda blend together.

5. And the last is bruising. Sometimes you find bruises on your knees, legs, back, or arms and not remember how you get it. It's not like you hit it on something but just happens.
I take Avorstatin for blood pressure, Lipitor for cholesterol, Wellbutrin for anxiety and depression (it is no surprise that with this physical craziness that it won't affect your mental health), and Delzicol.
August 13, 2016
6-MP
53
Rash from exposure to sun while on 6-MP
August 12, 2016
6-MP
23
Severe nausea even though I was taking anti-sickness meds at the same time. Leg pain. Lethargy and constantly felt tired. General health wasn't good for the entire time I was on it. I even had abnormal cells in my smear tests.
Prednisolone and domperidone
August 11, 2016
6-MP
18
My 14 yr old daughter took 6MP and very quickly developed high levels and was not feeling very well.
Dr added on Allipurnal, took for a short amount of time and we decided to take her off both Meds. She is back to Lialida 4 pills a day
Lialda
July 27, 2016
6-MP
35
Hair fell out, always exhausted, blood counts went out of wack with higher dosage.
None
July 20, 2016
6-MP
41
Anemia, leukopenia, jaundice
Allopurinol
July 17, 2016
6-MP
57
Thinning hair. Other than the first week taking 6MP feeling a little headache there is no obvious side effects felt.
I also take 3- 800mg Asacol HD and 1mg folic acid tablets per-day
July 17, 2016
Apriso
22
Inflamed pancreas shown in blood work, very extreme nausea, vomiting, abdominal pain, cramps under the ribs, diahrrea
No
December 7, 2016
Apriso
28
Blood vessels in hands more apparent and do bruise more easily.
N/A
October 31, 2016
Apriso
28
Also, I posted already, but I have also noticed that my blood vessels seem more apparent (in my hands, etc) and I do bruise more easily.
N/A
October 31, 2016
Apriso
28
Tired feeling after taking; hair loss, although it may just be my body getting used to the medication; I feel like underneath my eyes I have more wrinkles or dark circles, which do not go away.
n/a
October 31, 2016
Apriso
18
Non-stop headache the 3 months I was taking it. Also made my hair fall out.
Mesalamine
October 23, 2016
Apriso
63
Tinnitus
Atenolol Armour Thyroid
October 23, 2016
Apriso
55
stomach acke
no other meds
September 29, 2016
Apriso
21
Unformed stools, more hair loss in my hair brush, fatigue, cramping, bloating, gas, bruise more easily, nausea-especially when bending over
daily probiotics
September 28, 2016
Apriso
39
Sneezing, swollen stomach
August 14, 2016
Asacol / Delzicol / Asacolon
27
knee pains, pimples, gas trouble
omnacartil tampered doses
April 1, 2017
Asacol / Delzicol / Asacolon
56
Pain in left lung/shoulder/arm. Tingling itchy skin.
Coughing
No
March 19, 2017
Asacol / Delzicol / Asacolon
46
Aches pains
no
March 12, 2017
Asacol / Delzicol / Asacolon
42
Dry skin, dry mouth, headaches, stomach aches, bad eyes sight, high blood pressure, high sugar
Tramadol
February 13, 2017
Asacol / Delzicol / Asacolon
34
Migraine
Nose pain
Swollen joints
Mood swings
Steroids on and off
February 4, 2017
Asacol / Delzicol / Asacolon
44
Terrible headaches at least twice weekly.
Rowasa
January 1, 2017
Asacol / Delzicol / Asacolon
47
Diarrhoea got much worse
October 25, 2016
Asacol / Delzicol / Asacolon
26
Back pain and neck acne
Prednizone
October 23, 2016
Asacol / Delzicol / Asacolon
59
Increased diarrhea, abdominal pain, nausea
Insurance will no longer cover Delzicol
Linzess, Well Fiber,
October 23, 2016
Asacol / Delzicol / Asacolon
53
Hair loss
September 29, 2016
Asacol / Delzicol / Asacolon
25
Pancreatitis
None
September 27, 2016
Asacol / Delzicol / Asacolon
28
None
September 27, 2016
Asacol / Delzicol / Asacolon
59
Abdominal pain and bloating, nausea, joint pain, headaches.
September 27, 2016
Asacol / Delzicol / Asacolon
18
Hair loss
September 26, 2016
Asacol / Delzicol / Asacolon
66
Raising my blood sugar levels
September 7, 2016
Asacol / Delzicol / Asacolon
73
Aching joints
No
September 4, 2016
Asacol / Delzicol / Asacolon
58
None
No
August 20, 2016
Asacol / Delzicol / Asacolon
61
Intense stomach pains and extreme diarrhea
No
August 16, 2016
Asacol / Delzicol / Asacolon
25
Felt bloated and experienced more pain from the flare up in my abdomen which went away as soon as I switched to Pentasa
August 15, 2016
Asacol / Delzicol / Asacolon
45
Reaction to hair dye
August 7, 2016
Asacol / Delzicol / Asacolon
75
Fever, flu-like symptoms, joint pain, esophagitis
July 30, 2016
Asacol / Delzicol / Asacolon
51
joint pain
July 30, 2016
Asacol / Delzicol / Asacolon
53
None
None
July 28, 2016
Asacol / Delzicol / Asacolon
39
None
Salofalk granules

Omega 4,6,9 supplement

Azapress

Calcium supplement
July 28, 2016
Asacol / Delzicol / Asacolon
27
Asacol - no side effects!
July 27, 2016
Asacol / Delzicol / Asacolon
33
None
Geodon
July 27, 2016
Asacol / Delzicol / Asacolon
49
Tiredness
No
July 27, 2016
Asacol / Delzicol / Asacolon
32
None
July 27, 2016
Asacol / Delzicol / Asacolon
37
Headache
July 27, 2016
Azathioprine (Imuran)
47
Faint voice in evening like if super tired
headaches
fever
More bronchites in winter
Pentesa
June 14, 2017
Azathioprine (Imuran)
50
severe joint aches, chills, fever
April 24, 2017
Azathioprine (Imuran)
54
Nausea, insomnia, body feels warm
Asacol
March 3, 2017
Azathioprine (Imuran)
18
dry mouth, dry eyes, dry mucous membranes
Eltroxin, Topzole, Sertra
February 28, 2017
Azathioprine (Imuran)
19
Tearful and mood swings
Had contraceptive injection
February 23, 2017
Azathioprine (Imuran)
32
Tiredness, insomnia, headaches and migraines,mood swings,feeling weak all the time but it has sorted my uc symptoms out for now,(touch wood)
November 12, 2016
Azathioprine (Imuran)
18
Insomnia
Mezavant
October 31, 2016
Azathioprine (Imuran)
32
Pharmacological pancytopenia (my bone marrow stopped working: no red cells, nothing); Hemoglobine dropped to 4.9! , two blood tranfussions after, in the hospital 3 weeks. Stop taking the pills, bone marrow started to work again.
Mesalamine
October 26, 2016
Azathioprine (Imuran)
48
Liver bloods (ALT's) went very high so had to discontinue with Azathioprine
Prednisolone - 40mg tapering down to 0 by 5mg each week
October 25, 2016
Azathioprine (Imuran)
62
Was prescribed Azathioprine, 200 mg a day a little over two months ago. I just recently started having dark urine, itchy skin, rashes. My doctor told me yesterday my liver enzymes have increased almost 10 fold. She took me off this med immediately.
Prednisone, Mesalamine
October 14, 2016
Azathioprine (Imuran)
28
I switched to Azathioprine after 2.5 months of Prednisone. The first 2 weeks were horrible because of severe nausea and stomach ache. I did a CBC a month later and there was a drop in both red and white blood cells plus hemoglobin. My period was also a week late that first month. It's been 2 months now and no nausea or stomach pain but I have not repeated the CBC yet. There is definitely noticeable hair loss and increase in split ends.
Iron supplement, Vitamin C, folic acid, vitamin D, Omega 3
October 12, 2016
Azathioprine (Imuran)
18
flu like symptoms, extreme exhaustion ,high temperature, swollen throat, dizziness
mezalazine
October 5, 2016
Azathioprine (Imuran)
30
After 1 week of Azoron tablet 100 MG, i got severe numbness in head and also headache....Now it is almost 3 months of having Azoron tablet....once in a 2 days headache on and off....but numbness still persists....
September 27, 2016
Azathioprine (Imuran)
35
Headaches
Nausea
Rash
Hair loss
Mezavant
September 26, 2016
Azathioprine (Imuran)
45
None so far, been taking for about 3 months, all UC symptoms gone with this medication! Although, I have to remain on the Lialda as well.
Lialda 4 per day. Esomeprozole
September 26, 2016
Azathioprine (Imuran)
18
This medication increased mood swings and emotional panic attacks.
I was also taking Humira and omeprazole
September 23, 2016
Azathioprine (Imuran)
59
Took this drug for three weeks and hair started breaking and falling out which was rather distressing. Then I had severe flu symptoms of fever, aching limbs and joints for about 4 days. Called my consultant who advised me to stop taking it immediately and to start Mercaptopurin. Ended up with pancreatitis! Have now been offered Humira but it sounds just as awful!
Pentasa suppositories and granular sachets.
September 15, 2016
Azathioprine (Imuran)
43
None - I'm far from being out of the woods so-to-speak but i have not experienced any side effects from when the get go.
I started azathioprine as a 100mg in the morning & then 75mg additional which I am on at night so...175mg a day for about a year. Weekly blood tests followed by monthly now limited to when I visit my specialist & never shown any signs of weirdness other than UC symptoms. They say this drug is slow burner.
Prednisone. Then...
Goliumab. Then & now...
Entyvio. (Feel better now than I have in 4 years)!
September 13, 2016
Azathioprine (Imuran)
55
None. After 22yrs & diagnoised crohns. IMPORTANT do regular bood tests & be good to your liver!
Lialda
September 9, 2016
Azathioprine (Imuran)
42
I started this medication with one tablet a day and increased to two after a few days, an hour after taking my first dose of two tablets, I got extremely sick. Vomiting like I never did before and a serious dose of the scuts. I was so sick that I asked my wife to stay with me as I thought I might choke on my own puke. Needless to say, I stopped that medication immediately. I tried it again a few years later and the same thing happened.
No
August 27, 2016
Azathioprine (Imuran)
31
Headaches
Remicade (7 weeks since last infusion), uceris every other day, Wellbutrin, armour.
August 27, 2016
Azathioprine (Imuran)
26
Immune system depressed enough to get C diff.
Apriso, Uceris
August 19, 2016
Azathioprine (Imuran)
54
Very tired for first 2 days after injection, lack of energy and flu like symptoms, chills, dragging myself to bed
some probiotics, glutamine
August 15, 2016
Azathioprine (Imuran)
61
Joint ache
Asacol
August 15, 2016
Azathioprine (Imuran)
26
Fatigue, chemical pee
August 12, 2016
Azathioprine (Imuran)
23
Extreme vomiting so I was only on it for a couple of days.
Prednisolone
August 11, 2016
Azathioprine (Imuran)
49
Nausea, vomiting, diarrhea, total lethagy/having to ly down and rest(1-2hrs), abdominal pain. These side effects only started after i'd been taking 125mg for 5mths (sept2015-jan2016) i experienced no side effects during first 5months.
prednisone / pentasa
August 9, 2016
Azathioprine (Imuran)
41
Pancreatitis
Lialda, 4 tablets,day
August 8, 2016
Azathioprine (Imuran)
77
First month was fine. Second month and I started to get flushed and then broke into a sweat an hour after taking the pills. Next came nausea and weakness. This lasted about 2 hours. Blood test second month showed high liver enzymes. Dr had me stop the med but stay on apricot and Canada suppositories. I have been in remission almost 3 months now, 3 weeks of that on only the apriso and canasa.
Apriso and canasa suppositories
August 8, 2016
Azathioprine (Imuran)
61
Vertigo
Nausea
Remicade
Prednisone
July 30, 2016
Azathioprine (Imuran)
50
Fever
Entyvio
July 29, 2016
Azathioprine (Imuran)
40
Fine at first (3-6 months), then became very lethargic and no skin colour (grey). Wasn't improving BMs then developed very bad skin rash. Consultant advised coming off them.
Pentasa
July 29, 2016
Azathioprine (Imuran)
39
Severe bleeding, flare up
Salofalk
July 28, 2016
Azathioprine (Imuran)
38
racing heartbeat
no
July 28, 2016
Azathioprine (Imuran)
53
Elevated liver enzymes
No
July 28, 2016
Azathioprine (Imuran)
24
Mediaction worked perfectly for me until a few months in when I started vomiting 4 hours after taking it- you could set your watch by it. I stopped the medication and saw my GP who did some liver function tests and they were off the charts, had to wait a few months for them to return to normal. Didn't try Aza again!
Probably prednisolone
July 27, 2016
Azathioprine (Imuran)
47
Nausea at first, subsided after only a month - otherwise - nothing
July 27, 2016
Azathioprine (Imuran)
29
Sensitive teeth.
Weight gain.
Bad mood swings.
Pentasa
Azathiaprine
July 27, 2016
Azathioprine (Imuran)
70
knee and leg soreness weakness
July 27, 2016
Azathioprine (Imuran)
51
According to my doctor, I metabolize the "good' part not as well as the "bad" part of the med so my white count goes crazy and he has to adjust the dosage.
Colazol
July 27, 2016
Azathioprine (Imuran)
20
Bradycardia
Preventricular contractions
Vomiting
Remicade
July 23, 2016
Azathioprine (Imuran)
53
Cancer.
Asacol, Bentyl, Tylenol #3, Rowasa.
July 22, 2016
Azathioprine (Imuran)
23
Was fine for the first 6 weeks but as the medication started to kick in (takes some time) I experienced severe nausea, vomitting and exhaustion. This would last for hours then finally go away. I changed the the time I would take it to see if that helped but the exact same thing happened. Had to stop taking it as the side effects were too much for me.
Salofalk granules 1.5mg
July 20, 2016
Azathioprine (Imuran)
32
Pancreatitis
July 20, 2016
Azathioprine (Imuran)
45
No side effects so far, low dosage, and not been a month yet, however all UC symptoms seem to be gone!
Lialda, 4 per day
July 17, 2016
Azathioprine (Imuran)
45
Hair thinning, felt tired the first month
Salofalk
July 17, 2016
Azathioprine (Imuran)
29
The nausea experienced with this drug was almost debilitating. Nothing helped ease the discomfort. It also gave me ridiculous heartburn. I'd never experienced heartburn before starting this drug. After 6 weeks, I ended up coming off of it as my liver numbers were really elevated. The nausea went away as did the heartburn.
Remicade and Prednisone
July 17, 2016
Canasa (Suppositories)
35
Hairloss, general fatigue - unable to fight off other infections well, reduced immune response, other medications don't clear system quickly, puffy, general malaise, skin rash on tops of hand and knuckles
Thyroid
June 6, 2017
Canasa (Suppositories)
64
Very strangely it causes nasal congestion. Otherwise no other side effects noted.
No other meds during the use of Canasa
August 16, 2016
Canasa (Suppositories)
54
turns blood and mucous black
no
July 27, 2016
Colazal
58
Heart Palipitations
January 3, 2017
Colazal
35
Felt just about nothing and pretty sure the medication didn't do any thing for me.
prednisone
October 23, 2016
Colazal
35
Severe abdominal cramping, increased symptoms, diarrhea, nausea
September 27, 2016
Colazal
75
hair loss
no
August 25, 2016
Colazal
62
Bad headaches.
Nasacort and Advair.
August 24, 2016
Colazal
49
Joint pain
Fatigue
Sustained UC symptoms
July 27, 2016
Colazal
63
Cramping
Diarrhea
July 27, 2016
Entyvio (Vedolizumab)
18
Dry skin
No
June 26, 2017
Entyvio (Vedolizumab)
49
Heart flutters, pressure
Imuran
Lialda
March 28, 2017
Entyvio (Vedolizumab)
64
Fatigue
February 19, 2017
Entyvio (Vedolizumab)
64
Fatigue
February 19, 2017
Entyvio (Vedolizumab)
43
Joint pain in hands, wrist, ankle and elbow.
Delzicol
January 22, 2017
Entyvio (Vedolizumab)
50
joint pain, swelling, stiffness, weakness (hands, wrists, shoulders, knees, ankles). Pain is worse at night / through the night / first thing in the morning. The pain moves around, day to day.
Azathiaprine
January 16, 2017
Entyvio (Vedolizumab)
18
Thirst
December 8, 2016
Entyvio (Vedolizumab)
66
I think it is interfering with Pramipexole 1mg. and Zopiclone 5mg.
Apo- Ranitidine 150mg
Flecainide 100mg
Prolopa 50/12.5mg
Teva-modafinil 100mg
Act-Ropinirole .25mg
G0-Atenolol50mg
November 15, 2016
Entyvio (Vedolizumab)
54
Joint pain
November 13, 2016
Entyvio (Vedolizumab)
43
Joint pain in ankles knees elbows and wrists
Azathioprine
Asacol
November 12, 2016
Entyvio (Vedolizumab)
62
High blood pressure
Yes ,Uceris and norvasc
November 11, 2016
Entyvio (Vedolizumab)
59
Sinus infection
November 10, 2016
Entyvio (Vedolizumab)
26
Nausea
No
October 6, 2016
Entyvio (Vedolizumab)
23
Headaches, nausea, joint pain and extreme fatigue. A bit of depressive tendencies, but it's manageable.
Purinethol
September 26, 2016
Entyvio (Vedolizumab)
42
Nausea and itching 20 days after the infusion
Canasa, Delzicol
August 24, 2016
Entyvio (Vedolizumab)
55
Started Entyvio November 2014. Had more than usual upper respiratory infections and other infections during first 1.5 years. I was in full remission after one year, and have been doing great ever since. I do best when preparing my own whole food small meals -- fruits, mostly cooked/few raw vegetables, and fish and chicken (red meat is rough on me). It is a miracle drug.
No
August 22, 2016
Entyvio (Vedolizumab)
19
hair loss
prednisone
August 17, 2016
Entyvio (Vedolizumab)
43
Weight loss
None
August 14, 2016
Entyvio (Vedolizumab)
18
Dizziness during infusion, headache after

Weight gain/bloating
August 11, 2016
Entyvio (Vedolizumab)
72
Miracle drug so far; colonoscopy in November 2015 - severe ulcertive colitis.
Started entyvio January 2016, 5 treatments so far.
Sigmoidoscopy July 2016, now mild to moderate ulcertive colitis.
6mp, lialda
July 28, 2016
Entyvio (Vedolizumab)
69
Have had 11 doses over the last 1 1/2 years. Began working well between the 4th and 5th doses. Fatigue, joint and muscle pain, hot flashes and night sweats. Can live with all these side effects because it works very well. Been off Prednisone for a year, that's such a blessing.
Lialda 4 pills a day
July 28, 2016
Entyvio (Vedolizumab)
69
It's effective but creates fatigue. I also become nauseous after eating. I'm not sure if entyvio causes it or if it's because I'm now off the prednisone.
July 28, 2016
Entyvio (Vedolizumab)
54
Tiredness at first, but gotten used to it. No effects now. This stuff is magic.
Bystolic
July 28, 2016
Entyvio (Vedolizumab)
42
Fatigue!!!!!! Joint pain, headaches. Had 3 doses(loading dose) and have not really seen any change. Still having alot of abdominal cramping/pain, still loose, watery stool.
Methalamine, thyroid meds, xarelto
July 28, 2016
Humira (Adalimumab)
36
Severe loss of appetite
March 29, 2017
Humira (Adalimumab)
37
water filled rash tiredness
March 26, 2017
Humira (Adalimumab)
33
Drug Induced Lupus
None
March 21, 2017
Humira (Adalimumab)
55
Only side affects are when stopping the medication
March 20, 2017
Humira (Adalimumab)
40
Dry patches on buttocks and upper legs. Fatigue.
Celexa
February 3, 2017
Humira (Adalimumab)
66
Chronic fatigue hair thinning, boils, insomnia
Losarten asprin
January 10, 2017
Humira (Adalimumab)
52
Weight gain
Asprin
December 13, 2016
Humira (Adalimumab)
52
Weight gain
December 13, 2016
Humira (Adalimumab)
30
Hair loss, aching and stiff joints, headaches.
December 3, 2016
Humira (Adalimumab)
28
Injection site reaction on stomach. Swelled and got itchy (size of an egg). Also experienced chest tightness and slight issues breathing.
Buspar, Celexa
December 3, 2016
Humira (Adalimumab)
68
Hair loss, bruising (could have been from the prior prednisone), extremely dry skin, itching (psoriasis?)
Balsalazide and Uceris. Other medications unrelated to UC; metformin (consequences of taking prednisone), losartan, naturethroid.
November 14, 2016
Humira (Adalimumab)
62
I experienced extreme abdominal pain, the worse diarhhea I've ever had, rapid weight loss and general all over aches and pain. It started almost as soon as I had my first injection and lasted for the entire two and a half months that I took the injections.
Apriso
October 26, 2016
Humira (Adalimumab)
47
Bone loss
Canasa
October 15, 2016
Humira (Adalimumab)
47
Extreme mucas production in upper airway. Thickened mucas in the throat that causes gagging
None
October 12, 2016
Humira (Adalimumab)
66
I get a big red rash on my thigh every time I give myself a shot and it itch for a week.
Yes calcium 600-bit d3 200 tablet,folic acid,azathioprine 50 mg tablet,alendronate sodium 70 mg tab and amlodipine best late 5 mg tab
October 3, 2016
Humira (Adalimumab)
66
I broke out all over body with a really bad hives rash so was very allergic to hu ira
Took aleve @ aleve pm just to get some rest at night because of the terrible itching rash I broke out in
September 26, 2016
Humira (Adalimumab)
87
Severe headaches, weakness, and joint pain.
August 31, 2016
Humira (Adalimumab)
44
Sinusitis, Joint Pain, Depression, Irritability.
Lialda
August 27, 2016
Humira (Adalimumab)
44
PLEASE WATCH ON YOUTUBE HUMIRA DID TO ME SIDE EFFECTS, THANKS
August 17, 2016
Humira (Adalimumab)
65
I had several infusions of Humira as my rheumatologist felt it could help my RA with psoriasis as well as my UC however I experienced extreme freezing and shivering during the infusions and eventually stopped them. Didn't have the freezing feeling except while infusing but did not notice any improvement in my condition either. Perhaps did not take it long enough for it to work.
No other meds.
August 15, 2016
Humira (Adalimumab)
35
Fatigue
First few injections- nausea and headache gets better 2 months later
Ive had a flare while on it still giving it a shot for abt 6 more weeks to decide on its effectiveness

Pentasa 4g
Cortisone 20 mg
August 15, 2016
Humira (Adalimumab)
22
Rash
Pentasa
August 14, 2016
Humira (Adalimumab)
53
My UC symptoms got better and then stopped improving and started going the other way - blood tests revealed my body was producing antibodies against it :(
6 MP
August 12, 2016
Humira (Adalimumab)
23
Muscle weakness, sinus inflammation, shortness of breath
August 12, 2016
Humira (Adalimumab)
23
Terrible sinus problems (extremely sore throat, congestion, headache, nasal polyp) everyday for a week after each injection, rash (psoriasis) on arms, shortness of breath
August 12, 2016
Humira (Adalimumab)
30
Extreme worsening of my atopic dermatitis. Especially eczema on the scalp, ears and face. Caused me to lose much of my hair because I would basically scratch it off.
August 12, 2016
Humira (Adalimumab)
72
I am getting pimples in my scalp. Could this be from the Humira
August 11, 2016
Humira (Adalimumab)
27
Sunburn like rash on hands/wrists

Extremely dry skin
August 11, 2016
Humira (Adalimumab)
22
pyroderma gangrenosm
August 9, 2016
Humira (Adalimumab)
35
30
Asacol
lialda
Canada
humira
August 9, 2016
Humira (Adalimumab)
65
Severe joint pain, a new shingles outbreak and ringing in my ears
None
August 8, 2016
Humira (Adalimumab)
51
After two months of injections ( with each time having a larger reaction) , I had a raised 4 in circle around Both sites. They were swollen and whelp looking. MD discontinued.
August 7, 2016
Humira (Adalimumab)
63
Nerve problems, 75% effective.
August 7, 2016
Humira (Adalimumab)
56
Joint pain ,swelling of ankles,hip and knee pains always on my left side,when first take my shot itching all over.
August 7, 2016
Humira (Adalimumab)
36
- swollen, VERY itchy, and hard lump at injection site. It would eventually turn into a large bruise a week later after swelling went down.
- rash on inside of arms. Had to see a dermatologist and go for skin cancer screening. Ended up having a spot removed from stomach and needed stitches. Results showed abnormal cells (pre-cancerous) so had to see a surgeon to do a deeper and wider incision to get the rest of the area around it.
-anemia and blood count not good
-flare up and developed c-difficile (lost 32 lbs)
colazal, 6mp, rowasa
August 5, 2016
Humira (Adalimumab)
77
Rectal bleeding. Been going on for over six weeks now. Lost over 45 pounds past six months. Went to Dr today. Increased Humira from 40 mg sq every two weeks to 80 mg.Totally exhausted!
Sulfasalazine. for over a year now.
July 28, 2016
Humira (Adalimumab)
52
Drug induced Lupus, systemic fungal infection, pneumonia and breast cancer!
Wish I had never taken Humira.
None
July 28, 2016
Humira (Adalimumab)
18
congestion and sometimes wheezing
July 27, 2016
Humira (Adalimumab)
72
Pimples on scalp
July 27, 2016
Humira (Adalimumab)
18
Multiple sclerosis
Asacol hd.
July 27, 2016
Humira (Adalimumab)
53
Sepsis
July 27, 2016
Humira (Adalimumab)
22
pyroderma gangranosm
July 24, 2016
Humira (Adalimumab)
28
Hair loss, joint pain, acne
No
July 21, 2016
Humira (Adalimumab)
32
swollen, itchy, hot bruised injection site
fatigue
achy joints particularly first few days after injection
prednisone
canasa
July 20, 2016
Humira (Adalimumab)
36
Weight gain, exhausted after taking the shot and the next day, sometimes bruise at injection site, slight itchy feeling at injection site for a short while after using the pen. Migraines first two months of using, went away once body got use to the drug. Typically have a bad day the day before I need to take the pen.
None
July 20, 2016
Humira (Adalimumab)
29
After taking the loading dose I started to experience skin problems that became severe. The skin on my hands, feet, and shins became very itchy and started to scale up and fall off. At times it became so bad that I started to have open cuts/wounds. Additionally, within two to three weeks of starting the humira, I started to have very awful joint pain in my shoulders and back.
No other meds at the time of Humira.
July 17, 2016
Lialda
24
Extreme fatigue
Nausea
Asacol
Birth control
June 7, 2017
Lialda
54
short of breath
no
May 14, 2017
Lialda
64
Lose bowels, some headaches, light headed, tastes have changed somewhat.
BP medication low dose
April 10, 2017
Lialda
38
Acidity ion stomach, right kidney pain
Canasa
April 7, 2017
Lialda
44
sleepy, dizzy
February 21, 2017
Lialda
63
Severe joint pain in hips, shoulders and knees, stomach pain, diarrhea, chest pains, scalp sores,dry cough, sinusitis, headache, dizziness, dry eye, eye pain, increased pressure in eyes (pre-glacoma), tinnitus.
(Sometimes) prednisolone,
omeprezole, rowasa enema
February 16, 2017
Lialda
18
None
February 3, 2017
Lialda
28
Joint, muscle pain, flares up in my eyes , chest pain and rib pains. And sometimes but not often hard time getting out of bed. Diarrhea, runny nose bleeding nose. Light sensitivity, arthritis like pains
Valtrex, pain meds
January 31, 2017
Lialda
53
Hives every evening and at night. Mild headaches and sleepy all the time.
None associated
December 27, 2016
Lialda
49
Severe chest pain and tightness, shortness of breath, dry cough after 2.5 weeks. MD said I got pericarditis as a s/e of Lialda. Also experienced low back pain and fatigue.
Canasa
(Advised to discontinue as well as Liada)
December 17, 2016
Lialda
18
grey teeth
insulin
December 6, 2016
Lialda
52
Bad breath ( like skunk spray ), vomiting, vaginal smell (again like skunk)
November 30, 2016
Lialda
64
None
November 12, 2016
Lialda
71
High blood pressure
November 12, 2016
Lialda
65
no sleep
October 23, 2016
Lialda
46
Joint pain. It makes me feel old and sore!
October 23, 2016
Lialda
54
When taken shortly after head for toilet.
Uceris
October 23, 2016
Lialda
25
Diarrea, nausea, stomach pains, runny/stuffy nose. Green in corner of eyes, dry mouth, sleep problems. Tired, achey, headaches
Prednisone
October 21, 2016
Lialda
46
Flu like symptom, runny nose
October 12, 2016
Lialda
22
vagina odor
October 6, 2016
Lialda
37
After 2 wks on Lialda I started experiencing shortness of breath while exercising and after 2.5wks I ended up in the hospital due to severe chest pain and inability to breath properly. I was checked for all clots in the chest, all sorts of heart exams, the works and was determined it was a serious reaction to Lialda. I've stopped taking it for 4 days and the pain is starting to subside and my breathing is improving.
Remicade, methotrexate, salsalate for 20 yrs
October 5, 2016
Lialda
50
bad taste in mouth
October 1, 2016
Lialda
18
bruising
September 28, 2016
Lialda
49
Really haven't experienced any
September 26, 2016
Lialda
45
Aching legs, sharp pain under rib cage, fatigue. I have quit and resumed this medication to make sure, and always these side effects as soon as I restart them. However, it seems I need them to stay in remission.
Imuran, esomeprozole, iron
September 26, 2016
Lialda
55
I have occasional bloating, hair thinning, and mainly my lower back hurts pretty much all the time.
Medroxyprogesterone, estradiol, pantoprazole, and bupropion. Also 2 Lialda a day.
September 10, 2016
Lialda
55
Bloating
Azathioprine, calcium citrate
September 9, 2016
Lialda
32
I developed severe hives and swelling of the face and throat
Bentyl
Zofran
Prilosec
September 3, 2016
Lialda
44
Weight Gain
Humira
August 27, 2016
Lialda
59
Flu like symptoms. Body Aches and nausea.
August 27, 2016
Lialda
36
difficulty urinating, very bad gas (sometimes uncontrollable), hair loss (random patches).
too many to list, but all other medications stayed the same from several months before to about 6-7 months after getting diagnosed with UC/ getting prescribed Lialda.
August 23, 2016
Lialda
61
Stomach pain immediately after taking the medication which then subsides over time.
Prestiq and Xanax
August 22, 2016
Lialda
24
Dry mouth and hair loss
Glycopyrrolate
August 17, 2016
Lialda
54
Headaches, Dry mouth, Foul smell stools,
B complex, Calcium, Zrytec, Singular, VSL probiotics, Mutivitamins,
August 15, 2016
Lialda
66
it seems I always have to take a larger dose than when I take Lialda, another anri-inflamatory
August 15, 2016
Lialda
65
hair thinning
ativan
August 13, 2016
Lialda
71
IBS
August 12, 2016
Lialda
52
I have been on Lialda for 9 years for my UC the medication has caused constrictive bronchiolitis its rare lung disease. I have also taken Remicaide, cimza, and Humeria, and more. I would be interested if anyone else has this disease.
August 11, 2016
Lialda
47
Sharp stabbing shoulder pain, side pain like an elephant was sitting on my rib area. Also made diarrhea worse.
Prednisone, uceris
August 11, 2016
Lialda
27
Intolerance due to severe headaches
Mesalamine enemas nightly
August 11, 2016
Lialda
69
Some nausea, but if I make sure I have eaten before taking Lialda, I do not notice any side effects.
No other meds.
August 11, 2016
Lialda
50
Low back pain, joint pain, tendinitis and frozen shoulder
No other meds at the same time
August 11, 2016
Lialda
33
gave me diarrhea and upset my stomach. Turned my stool Orange
Humira
August 11, 2016
Lialda
20
Significant hair loss.
Azathioprine, Remicade
August 11, 2016
Mesalamine
60
Hair Loss, Decreased Libido
No
February 23, 2017
Mesalamine
77
Difficulty in expelling gas as it is preceded by mucous or feacees. Have to rush to washroom, or else?
February 13, 2017
Mesalamine
28
None
Welchol
January 12, 2017
Mesalamine
61
hair loss
November 15, 2016
Mesalamine
39
All symptoms of UC flared up. Cramping, bleeding, hypersensitivity of gag reflex. I was told I was "translucent". Was on it for a couple of weeks until my doctor took me off it and put me back on Prednisone. Synmptoms subsided in a matter of hours. Gastroenterologist thinks it may have been an allergic reaction. Was put on Colazide (Balzalaside). No side effects and have been on this for two and a half years.
October 24, 2016
Mesalamine
62
Four 1.2gm pills a day, bloating and gas at first, some cramping.
Prednisone, Azathioprine
October 14, 2016
Mesalamine
18
Hair loss, weight gain, and headaches
September 21, 2016
Mesalamine
18
Weight gain, dry cracked mouth
September 21, 2016
Mesalamine
37
Been on it for 3 years, get extremely fatigued, muscle weakness, and joint aches. I am in remission, but I had to give up gluten and dairy also. I struggle to exercise and hold onto excess weight.
September 19, 2016
Mesalamine
34
After 6 months or so on Mesalamine, my bms got weird, I started having trouble with a yeast-fungus-type infection that has only gotten worse since (6 years) to the point where I can't eat anything. Definitely not UC.
Prednisone off and on.
August 23, 2016
Mesalamine
30
Kidney abscess, severe renal failure
Prednisone
August 23, 2016
Mesalamine
18
Headaches everyday, ranging from minor to severe. Thinning hair/hair loss.
August 12, 2016
Mesalamine
20
Caused my bone marrow to stop producing red blood cells.
No
August 11, 2016
Mesalamine
48
Hair loss
Prednisone for 3 months.
August 8, 2016
Mesalamine
24
Rapid heart beat
Hair loss
Anxiety
Fatigue
Cramping
Joint pain
Rash
Nausea
Donnatal anti cramping
Anti nausea
August 7, 2016
Mesalamine
31
Diarrhea, blood, rectal pain, urgency worse
Hydrocortisone enemas
August 7, 2016
Mesalamine
28
Pericarditis
August 7, 2016
Mesalamine
52
elevated liver enzymes
Salofalk
August 3, 2016
Mesalamine
65
constipation
July 29, 2016
Mesalamine
18
Diaorrhea
July 29, 2016
Mesalamine
74
bloody diarrhea
July 28, 2016
Mesalamine
47
Itchiness on the upper part of my body, like food inthoxication
no
July 28, 2016
Mesalamine
18
Skin
Lialda
July 28, 2016
Mesalamine
18
Neck pain
No
July 27, 2016
Mesalamine
30
Mild headaches from time to time, otherwise no side-effects.
Multivitamin and probiotic
July 27, 2016
Mesalamine
58
Loose unformed stools, gas, hair loss, water retention.
Amoldipine, Trazodone, Ativan, Multi-vitamins,
July 27, 2016
Mesalamine
18
Hair thinned on head and fell out completely on my arms and legs, skin lesions. My body felt dirty on the inside and I could smell the meds when I would sweat. Discontinued and my hair is back. Managing colitis with diet and stress reduction. Also, switched my HIV meds and discontinued Hep.B meds.
Hepsera, Baraclude, Lexiva, Epivir and Norvir.
July 27, 2016
Mesalamine
48
None
Prednisone
July 27, 2016
Mesalamine
22
Hair loss, joint pain
July 20, 2016
Methotrexate
36
Mass on side of head and chin
Amitriptylin
March 30, 2017
Mezavant
28
Erectile Dysfunction at 4 tablets a day. Lesser effects at 2 a day.
June 15, 2017
Mezavant
34
Hives
May 11, 2017
Mezavant
46
After 3 weeks with major side effect suffered extremely severe large joint pain requiring hospitalisation for 4 days. Immediately taken off mezavant
50mg prednisone
May 10, 2017
Mezavant
38
Stomach ache
March 20, 2017
Mezavant
19
acne
March 15, 2017
Mezavant
49
Heart palpitations
December 19, 2016
Pentasa
47
Acne
No
June 8, 2017
Pentasa
27
Shortness of breath
May 22, 2017
Pentasa
20
Mucus, skin rashes
April 26, 2017
Pentasa
39
Exacerbated colitis. Increased diarrhea and bleeding, severe rectal pain. Side effects of the drug were worse than the colitis.
Prednisolone
January 2, 2017
Pentasa
59
Muscle cramping in leg and cramping in bowel, I have reduce the symptoms of this by taking magnesium supplements.
Idaprex combi
November 12, 2016
Pentasa
47
Bad abdominal pain, diarrhoea
October 25, 2016
Pentasa
58
None
Asacol
August 22, 2016
Pentasa
26
None
August 15, 2016
Pentasa
60
Indigestion
No
August 9, 2016
Pentasa
23
Tiredness
August 8, 2016
Pentasa
41
My hair thinned noticeably. I was taking 4, 500mg tablets twice a day. It grew back eventually on stopping Pentasa.
No
August 7, 2016
Pentasa
52
On it for two now getting sore joints
No
August 7, 2016
Pentasa
38
Yellow skin.
Prednisone. Agitation, Trouble sleeping, hyperactive, Trouble focusing
July 28, 2016
Pentasa
48
Eye pain & chest pain when breathing. Never had either of them before the medication and they both disappeared when I stopped taking it.
None
July 24, 2016
Prednisone
47
Sensitive teeth, weight gain, headache
Lialda, Effexor 75 mg
May 22, 2017
Prednisone
46
Insomnia
Moon face
Weight gain
Blurry vision
Sore throat
Skin tags
Moody
Colazide
May 10, 2017
Prednisone
43
Shortness of breath
Vaginal mucas/blood
Bloating
Tired
Spark
Pro biotic
April 18, 2017
Prednisone
55
Hair thinning.
December 19, 2016
Prednisone
18
Hair loss/thinning.
December 19, 2016
Prednisone
63
Sleeplessness, a bit hyper but it makes feel great. Tapering off right now, was up to 40mg a day for two weeks.
Lialda, Omeprazole
December 11, 2016
Prednisone
64
Serious spike in eye pressure related to Glaucoma.
November 13, 2016
Prednisone
28
Ah, where do I start. I just saw my doctor Monday who told me "you basically have all the aide effects you could have, to their extreme." Awesome.

-sleeplessness
-weight gain (I have what's called centripetal obesity)
-increased appetite
-muscle weakness
-lower back pain
-irregular menstrual cyclet
-facial hair growth (I now use facial nair for women)
-anxiety/depression
-steroid induced bipolar
-crying all the time
-talking a lot
-impulsivity
-extreme dry skin
-thrush
-easily over stimulated in large or loud groups
-OCD
-decrease in sex drive
-wounds heal less quickly

That's all I can think of for now!
Delzicol 400mg
October 23, 2016
Prednisone
19
Severe stretch marks all over my arms, back and thighs. Don't know how to get over it
Immuran, mesalazine.
October 23, 2016
Prednisone
62
Was prescribed 60 mg a day about four months ago. Most notable side affect was nervousness, shaky hands, weakness and tingling in my extremities. Also had anxiety, insomnia. Finally being weened off this med. I'm currently taking 15 mg a day now.
Azathioprine, Mesalamine
October 14, 2016
Prednisone
30
Sweating, specially night sweats, weight loss, hair changed textured but became nicer, hunger all the time, hard to sleep. Puts me in a great mood.
September 18, 2016
Prednisone
73
Face swelling up,mood change,bad side effects trying to get off ofprednisone
Remacide
September 15, 2016
Prednisone
44
6th day after stopping uceris and starting prednisone....some stomach pains are back, diarrhea more than I had it on the 7th week of uceris.
Hungrier but could be in my head. Bloated pretty bad. No other side effects so far.
No other
September 15, 2016
Prednisone
40
Daily: Sweating, puffy skin, thirst, hungar, weight gain, adrenal rush, ringing ears, unclear decisions. LONG TERM: (3months doses, prescribed every 18months for Chrons flare ups; total usage after 7years, bone scan revealed significant bone loss!
Azathioprine, asacol then, pentasa, then colazol, then lialda
September 9, 2016
Prednisone
58
Insomnia, heart burn & reflux, leg weakness, feeling low, strangely weight loss, agitation, severe tiredness in the afternoons, palpitations
Pentasa,
September 4, 2016
Prednisone
18
Moon face,weight gain,weakened bones(deficiency of calcium),Candida,mood swings,heart burn,mouth ulcer .etc
Pentasa,imuran
September 2, 2016
Prednisone
29
Acne, depression, bone pain
Entyvio, tacrolimus, dificid, citalopram
August 27, 2016
Prednisone
55
Leg weakness
Hair loss
Foggy head
Moody
August 24, 2016
Prednisone
18
hyperactivity
remicade
August 16, 2016
Prednisone
25
Weight gain
August 15, 2016
Prednisone
58
Weight gain, insomnia, irritability, acne, hot flushes.
Pentasa
August 12, 2016
Prednisone
49
shakes
August 10, 2016
Prednisone
22
lack of sleep Acne Moon face
Asacol Azathioprine
August 9, 2016
Prednisone
18
Bloating
Mood swings
Depression
Weight gain / always craving for food
pimples

Imuran
Mesalazine
August 8, 2016
Prednisone
36
I was able to finally taper off of prednisone for the first time in two years. I am currently experiencing severe joint and muscle pain in most of my body. So far my stomach has been good but these pains keep me up at night.
Lialda
Azathioprine
Entyvio Infusions
August 8, 2016
Prednisone
29
Acne, severe thirst, issues with my blood sugar really high around 10-15, couldn't stop eating, put on 35lbs in 4 months.
Imurian
August 8, 2016
Prednisone
18
Muscle pain in quad directly above the knee in both legs, caused pain when bending and a constand dull ache.

Swollen ankles midday making it painful and difficult to walk.

Swollen left thumb.
Mezevant
August 8, 2016
Prednisone
18
agression
August 7, 2016
Prednisone
63
Feeling dizzy when turning quickly. Nauseous when driving.
Asacol
August 7, 2016
Prednisone
53
Massive weight gain
Asacol
August 7, 2016
Prednisone
41
Moon face
Trunk fat gain
Insomnia (now chronic insomnia for the last 3 years in UC remission - not sure if triggered by pred or UC)
Hair loss upon tapering

Mesalazine (Mezavant)
August 7, 2016
Prednisone
53
Hair loss, 10 lb weight gain, overall feeling of bloating.
was not taking another med at the same time
August 6, 2016
Prednisone
18
Hair loss
Pentasa, imuran
August 6, 2016
Prednisone
29
Increased frequency and diarrhea. Severe insomnia, depression and anxiety.
Lialda
Imuran
August 5, 2016
Prednisone
29
Hair loss, weight gain, swollen body, swollen face, moon face, joint aches, increased appetite, increased heart rate
Lialda
July 28, 2016
Prednisone
24
i got way bigger. unbearable joint pain that curled my spine and prevented me from walking. insatiable appetite. mood swings
July 28, 2016
Prednisone
37
gritty teeth, joint pain, gritty teeth, shutting down my emotions, anxiety, no energy at 3pm, awake at 3am, and my favorite - moonface
Lialda, which was insufficient to maintain remission

Today, 6 years later - no meds, in remission
July 28, 2016
Prednisone
30
Weight gain. Blurry vision.
Canasa. Delzicol.
July 27, 2016
Prednisone
35
Acne, moon face, weight gain, mood swings, insomnia, osteopenia.
Asocial, immuran
July 27, 2016
Prednisone
18
Heart hurts when breathing in
July 27, 2016
Prednisone
48
Severe heartburn @40mg
Staph infection @40mg
Insomnia
Colazol
Antibiotics
July 27, 2016
Prednisone
21
Severe mood swings, achiness, headaches
Remicade
July 27, 2016
Prednisone
66
High blood pressure cannot sleep made feel strange no sleep had to go on a sleeping pill. Had to take water pill to bring down pressure ended up in hospital 3 days the water pill took made my sodium level go way below normal .....Abd the sad part was on Predisone 30 days did not do a thing for my UC....
No
July 27, 2016
Prednisone
69
While on a 60 mg (7 days for each 60 thru 10) Prednisone taper for 6 weeks, I experienced inability to sleep through the night; jitters; weakness in my legs; weakness in the muscles in my thighs. My legs felt very heavy and I found it hard to walk up stairs in my house. Around the 4th week of taking the Prednisone, I would need a cane to help support myself. This was the second time on the Prednisone. I was also on it last year for 6 weeks and in addition to the above side effects, I also developed a soreness in my right ankle and then it appeared swollen and tender to the touch. Went for an ultrasound and found out I had superficial phlebitis in that area. I don't know if it was directly related to the Prednisone, but I didn't have it prior to taking this medication. One good thing is that once done with the Prednisone, the strength comes back in the legs. I also took Vitamin D3 and Calcium while on the Prednisone, and also ate more bananas for Potassium.
I was also taking my diuretic for BP, and the second time on the Prednisone, I was started on Lialda for my UC.
July 27, 2016
Prednisone
28
Moon-face, insomnia, hunger, hyper, osteopenia and osteoporosis later on - 59 yrs. old now. Did nothing for my U/C symptoms and have not taken any since.
Dipentum
July 27, 2016
Prednisone
73
red spots weakness in lower legs
July 27, 2016
Prednisone
67
Hair loss after stopping prednisone
July 27, 2016
Prednisone
41
Every course of steroids gives me rosacea which is a flushed red face and spots (after food). You can get rid with oral antibiotics but this causes colitis to flare. You need to take the topical cream for 8 weeks to clear.
Asacol.
July 27, 2016
Prednisone
18
Leg pain thigh
July 27, 2016
Prednisone
60
Catteracs within 4 weeks of taking a high dose
July 27, 2016
Prednisone
48
Anxiety, depression, major mood swings
Lialda, Azathioprine
July 27, 2016
Prednisone
28
Weight gain, hair loss, acne, swollen face, thinning of skin, dry skin patches, fatigue, high heart rate , night sweats, insomnia, weakness
None
July 21, 2016
Prednisone
22
Moon face that lasted months, severe weight gain due to always being hungry, night sweats, mood swings and trouble sleeping
Salofalk granules 1.5mg
July 20, 2016
Prednisone
30
Weight gain, moon face, insomnia, easy to bruise, thin skin resulting in stretch marks, osteopenia and osteoporosis, hip fracture.
Asacol, colazol, uceris, Humira
July 20, 2016
Prednisone
25
Extreme night sweats, joint/ knee pain, tremors in my hands, insomnia, mood swings
Lialda
July 20, 2016
Prednisone
27
Rapid heart rate, weight gain, trouble sleeping, chipmunk cheeks, acne, anxiety from knowing all the bad things that can happen with long term steroid use!
I've had to combine Prednisone with different meds. I am now combining them with Humira. In the past I have combined them with mesalamine. I've also combined them with Canasa. I've also combined them with sulfas. Doesn't matter what I combine them with, they still produce the same side-effects.
July 20, 2016
Prednisone
31
-Reduced sleep
-Dry skin on hands to the point of cracking
-Moon face
Lialda (started 1 month into Pred)
July 19, 2016
Prednisone
26
-sensitive teeth from anything slightly cold
-tongue sores and pain
-insomnia
-weight gain
-things smelled and tasted different....almost metallic
-severe hair loss
Remicade and Imuran
July 17, 2016
Prednisone
41
Osteopenia
6mp
July 17, 2016
Prednisone
42
Extreme sensitivity to cold on my teeth. I had to drink everything through a straw it was so bad. When I asked my GI he said it wasn't the Prednisone but my dentist thought it could be. Now that I see other people have had this side effect, I know it's for real. Plus a few weeks after I finished the medication the sensitivity disappeared.
July 17, 2016
Prednisone
26
Weight gain
Hunger
Insomnia
Mezavant
July 17, 2016
Prednisone
33
Extreme agitation, anxiety, headaches and red face at 40mg dose. Increased appetite.
Octasa
July 17, 2016
Prednisone
23
Not able to sleep, pain in knees, alot of hunger, mood swings
July 17, 2016
Prednisone
37
Prednisone: insomnia at high doses, joint pain in fingers when weaning off.

Salofalk (mesalamine): no side effects so far.
No
July 17, 2016
Prednisone
28
Shortly after taking a high dose of prednisone, I began to feel sensitivity in my teeth, that only after inquiring with my dentist did I learn is something that many other patients have experienced.
At the time I was taking a 5-ASA medication called colazal
July 17, 2016
Remicade (Infliximab)
25
bleeding
no
June 15, 2017
Remicade (Infliximab)
24
Acne
Nothing else but I maintain a healthy diet. Had moderate to severe U.C. prior to Remicade. Though Remicade works great for now, hoping to switch to CBD someday and use that exclusively with diet. I do not trust medicine, doctors or the government with what they label as "safe."
May 31, 2017
Remicade (Infliximab)
41
Dizziness, confusion
Diazepam
May 2, 2017
Remicade (Infliximab)
54
shingles
March 31, 2017
Remicade (Infliximab)
54
psoriasis
March 31, 2017
Remicade (Infliximab)
46
Exhaustion
Dizziness
Shortness of breath
February 23, 2017
Remicade (Infliximab)
49
psoriasis all over body and red spots all over
yes,lialda,topomax.lomotil, tramadol,triamerene,gabapentin
February 21, 2017
Remicade (Infliximab)
44
Hodgkin Lymphoma
Azathioprine
February 4, 2017
Remicade (Infliximab)
50
muscle pain
February 4, 2017
Remicade (Infliximab)
35
Anaphylaxis
Pre-meds in effort to avoid negative reaction. Solumedrol, benedryl, Tylenol.
February 3, 2017
Remicade (Infliximab)
64
sick to mu stomach and no energy
aspirin 81mg
February 2, 2017
Remicade (Infliximab)
32
Melanoma, hair loss, skin rashes
6 mp
December 30, 2016
Remicade (Infliximab)
54
Fever that wouldn't go away every night. Oral thrush.
Uceris, Bentyl, Allegra, Ibuprofen, VSL3, Iron, MultiVitamin, Vit D and Calcium
November 13, 2016
Remicade (Infliximab)
52
tiredness
November 13, 2016
Remicade (Infliximab)
50
Aches in knee joints at times, bloating from time to time when I'm getting close to my next infusion.
Some fatigue.
It got me out of a terrible flare which I was hospitalized
for a week. I get it every 8 weeks now since April 2016
Methotrexate 12.5 MG once a week
Folic Acid 5MG
November 4, 2016
Remicade (Infliximab)
32
shingles
none
November 4, 2016
Remicade (Infliximab)
56
My hair thinned out and I got scaly plaques on my scalp diagnosed as Lichen planopilaris, an autoimmune disorder. Also have joint pain in my hands and feet. The fun never ends.
Lialda
October 26, 2016
Remicade (Infliximab)
47
Symptoms similar to MS, including drop foot, loss of dexterity in my hands and weakness in my left side. Stopped Remicade and still some lingering issues 8 months later.
No
October 14, 2016
Remicade (Infliximab)
20
Fatigue, suicidal thoughts, itchy rash all over my body, moods swings. Get angry very quickly,join pain and swelling
CYMBALTA, SULFASALAZINE, NEXIUM, ATIVAN, VENTOLIN INHALER,
September 17, 2016
Remicade (Infliximab)
48
Immediete allergic symptoms, after 3rd dosage too far apart, therefore developed immunity
Azathioprine, asacol, calcium citrate
September 9, 2016
Remicade (Infliximab)
57
Joint soreness, fatigue
mesalamine
September 7, 2016
Remicade (Infliximab)
34
lot of bacterial infections (mouth sores, ear, cheeck, joints), abscess, acné, shingles, ..because of low (or none) resistance
This happens more and more the last years...i get remicade since 11 years.
The day i get my remicade..i'm very sleepy, warm and sweaty...and HUNGRY !!!
In the beginning: Hair loss
Psoriasis came, went, came back, went again...

no (or maybe some cbd...)
September 3, 2016
Remicade (Infliximab)
30
Nausea and head aches. Lots of headaches. I will feel down and out for at least a day after infusion as well.
September 3, 2016
Remicade (Infliximab)
60
Been on remicade for almost a year. Had hair loss but not sure if it was from that or a combination of other meds I was on at the time. Anyway.. it came back curly! Now the only medicine i'm on is the Remicade every 8 weeks. Now i'm getting extreme bloating, like my stomach has a spare tire. I've started walking 3 miles / day and it's not helping at all. Also I get abscesses constantly. Some very severe.

August 27, 2016
Remicade (Infliximab)
55
Broke out in a rash while receiving the infusion. Added Benadryl and that took care of it. Dr. says I have developed antibodies to Remicade so now not sure what will happen. He has me going to Mayo Clinic next month for another opinion.
August 22, 2016
Remicade (Infliximab)
68
Hives, itching, rash, fatigue
August 19, 2016
Remicade (Infliximab)
57
Cough, fever, itchiness, insomnia, anxiety
Yes...I am taking mesalazine 6 tablets a day, azathioprine 50mg on Monday, Wednesday & Friday; 75mg rest of the 4 days. BP meds Amlopidine Besilate 2.5mg daily.
August 18, 2016
Remicade (Infliximab)
60
Headache for 2 -3 days after infusion; not debilitating
Voice is weak and hoarse for a couple days after infusion
I get an injection of prednisone immediately prior to infusion.
August 15, 2016
Remicade (Infliximab)
37
Had first dose when hospitalized in around 2010. Worked great and got me out of a terrible cycle of flair ups and prednisone .
6 weeks later went for follow up dose and had anaphylaxis . Chest felt right, hard to breath , face flushed and confusion . My mom who was there recognized it and got nurse immediately. Reaction began to leave as soon as the nurse stopped the med. nurse also immediately administered Iv benedryl
Asascol; prednisone
August 15, 2016
Remicade (Infliximab)
52
Drug induced Lupus - while my UC symptoms were getting better, I couldn't get moving again. Exercising was torture - yoga was torture. I kept thinking I just needed to push through it and I was being lazy. Blood tests revealed Lupus. I stopped Remicade and it went away.
Steroids
August 12, 2016
Remicade (Infliximab)
32
My liver became blackened and dead. I required a liver transplant.
Dotheipin Hydrochloride. Yasmin.
August 12, 2016
Remicade (Infliximab)
34
Psoriasis on the palms of the hands.
Lialdia
August 11, 2016
Remicade (Infliximab)
37
Remicade worked well until I built antibodies...BUT it did make my hair fall out, in chunks.
August 11, 2016
Remicade (Infliximab)
61
weakness
August 9, 2016
Remicade (Infliximab)
25
I occasionally get eczema as a side effect, vomiting occasionally, nausea, my equilibrium feels off, sensitivity to light at night, sensitivity to sun, bloating, occasional constipation, extreme fatigue, hot flash type symptoms where my face will turn red and flushed and I get really hot and feel like I have to vommit
Asacol
Omezaprole
August 8, 2016
Remicade (Infliximab)
18
Suicidal ideation. Awful.
August 8, 2016
Remicade (Infliximab)
62
hives
nightmares on night of infusion
pred 5
meloxicam
atenolol
tramadol
August 7, 2016
Remicade (Infliximab)
66
Low blood pressure
Itching over whole body starting while getting infusion
Bad Headache for 24 hours
Inability to stand in one spot for more than a few seconds without leg pain and weakness
100 % antibodies to drug within 1 year of starting it determined through the prometheus blood test




Lialda 8 per day
August 7, 2016
Remicade (Infliximab)
41
No side effects that I could detect
August 7, 2016
Remicade (Infliximab)
36
Stiff joints high blood pressure and pain all over
No other meds
August 7, 2016
Remicade (Infliximab)
67
At 1st I was just very tired..all the time. I was not sleeping well either. These both come and go. About 1 year into therapy the pain started...1st in my L foot, then R foot, then my hands until I could barely walk. I was finally diagnosed with drug induced Lupus, though through it all I am in remission, the pain is now manageable with prednisone (20>5mg a day)
At this time with the level of my pain where it is, and how my body is cooperating, I can enjoy my life
I would be hydrated in the ER and given oxy for the pain
at one ER visit early on, my thyroid went from hypo to hyper so they changed my synthroid levels
August 6, 2016
Remicade (Infliximab)
43
Drug induced lupus. (too bad because it was the first med that put me into remission)
Asacol
July 29, 2016
Remicade (Infliximab)
35
Edema
Prednisone
July 29, 2016
Remicade (Infliximab)
72
Effective for 1st year, then ineffective. Started to get severe pain night of infusion.
Platelets dropped from normal to 44,000.
Stopped Remicade, now platelets are normal.
6mp, Lialda
July 28, 2016
Remicade (Infliximab)
48
Memory loss
no
July 28, 2016
Remicade (Infliximab)
28
Fatigue, joint pains, insomnia, nightmares, depression
Tramadol, Omeprazole, antrptyline
July 28, 2016
Remicade (Infliximab)
25
Sometimes, the day of the IV i have weird head sensations: ending up in a room w/o knowing how I got there, head feels like a bowling ball. Since I started taking it I get the occasional blockage of peripheral vision. Also my wife said that since I began I became generally more depressive.
July 28, 2016
Remicade (Infliximab)
50
Mouth sores/pain. Psoriasis on limbs and scalp. Acne.
None
July 28, 2016
Remicade (Infliximab)
36
Blister like growth on my gums.
Imuran, asocal
July 27, 2016
Remicade (Infliximab)
18
14 yr old daughter tried Remicade after Humeria. Developed sever reaction after first dose. Was unable to move, her whole body hurt could hardly walk, get dressed, all her joints hurt. Very bad reaction
Lialdia
July 27, 2016
Remicade (Infliximab)
64
Took it for a year with no problems.
July 27, 2016
Remicade (Infliximab)
57
Hair loss. A few muscular spasms in fingers. Tired.
Prednisone.
July 27, 2016
Remicade (Infliximab)
18
PSORIASIS
July 27, 2016
Remicade (Infliximab)
25
Chest pain, full body rash (became allergic according to Doctor)
Prednisone, pantaloc, pentasa
July 27, 2016
Remicade (Infliximab)
55
SEVERE eczema of my eyes - extremely swollen eyelids/both eyes, by the 3rd infusion
Asacol HD
July 24, 2016
Remicade (Infliximab)
24
Have only had one infusion so far when I was in hospital and no side effects from what I can tell. If anything I felt better after it.
Steroids and salofalk granules
July 20, 2016
Remicade (Infliximab)
47
Leg pain. Hair loss
Azathioprine
July 17, 2016
Remicade (Infliximab)
26
-severe night sweats
-for the first 6 months I would get incredibly tired lasting a couple days after the infusion
-low BP
Imuran
July 17, 2016
Remicade (Infliximab)
18
Serum sickness in hospital for days . Couldn't walk high fever
July 17, 2016
Salofolk
35
no
no
March 8, 2017
Salofolk
44
I take salofalk when I have a flare. Like most fall seasons, I had a bad flare in Oct and increased to 8 tablets a day. 2 weeks later of being bugs vigelent onbit, abdominal pain gone and more solid BM. But I also cut out most wheat, dairy and sugar at this time too.
I increased my probiotic and aloe
October 23, 2016
Salofolk
21
Gas
Remicade
September 28, 2016
Salofolk
34
Pain tiredness
September 27, 2016
Salofolk
45
Massive massive tiredness to a point you could hardly function at all
August 15, 2016
Select Medication
27
Weight gain, hair loss, severe sepsis
January 12, 2017
Select Medication
57
Balsalazide. Foggy feeling, fatigue, body swelling up, itchy red spots that look like eczema. Causes lots of gas and belching. Small bumps on my arms and legs. Cough.
January 8, 2017
Select Medication
20
Pancreatitis
LIALDA
November 3, 2016
Select Medication
57
Hunger tearful angry week legs shaky and fast heartbeat and loud hears it in my head. Dont know if its the prednisolone doing it or itd part of the copd I akso take spiriva and seritide
September 30, 2016
Select Medication
29
None that I can notice.
Prednisone- only with an active flare-up.
September 6, 2016
Simponi (Golimumab)
30
Slight skin rash
None
August 27, 2016
Simponi (Golimumab)
32
None
No other meds
August 7, 2016
Simponi (Golimumab)
31
Painful when injecting and causes bruising
Prednisone & 6mp
July 22, 2016
Stelara (Ustekinumab)
57
Hot flashes, anxiety, chest tightness, mouth ulcers
April 24, 2017
Stelara (Ustekinumab)
42
Bruises on back of legs
Lialda
March 5, 2017
Sulfasalazine
43
diarrhea
December 13, 2016
Sulfasalazine
55
Headache
Dizziness
Salazopyrin Tablets 500mg

November 27, 2016
Sulfasalazine
69
Achy joints
October 23, 2016
Sulfasalazine
30
I don't have pains or nobody aches but I still have diarrhea.
Lialda didn't work at all. I was still getting pains and severe cramping and bloody diarrhea
September 11, 2016
Sulfasalazine
57
Tiredness. Could not be bothered doing anything and preferred to sleep the day away instead. Started to lose a lot of hair after being on it for a few weeks. My red blood cell count was low because of this medication. I stopped using it. I feel better now. I will try and see if there are more natural ways to deal with my UC. I am taking a high dose probiotic, kefir and kombucha products and fermented foods. Not going to take the toxic rubbish that doctors prescribe.
I was taking prednisone for 5 weeks at first but tapered off slowly, as advised.
September 3, 2016
Sulfasalazine
43
Rash, shortness of breath, increased heart rate, fatigue, increased abdominal pain and redness of skin that lasted for several weeks after stopping the medication (sunlight made it way worse)
August 21, 2016
Sulfasalazine
31
Heart palpitations
Joint pain
No
August 9, 2016
Sulfasalazine
50
headaches
(they can be minimized by drinking plenty of water, which may also help with the other side effects)
none
August 7, 2016
Sulfasalazine
23
Soon after being prescribed sulfasalazine I was diagnosed with drug induced Lupus.
It took 3 months of tests to prove sulfasalazine was the cause during which time I had intensely painful, inflamed joints throughout my body, as well as UC.
Steroids
August 7, 2016
Sulfasalazine
27
After taking 3x2 salazopyrin a day for about a year, my kidneys flared. I think it was called glomerulonephritis. After the flare has gone my kidneys left in a 3rd state of insufficiency.
August 4, 2016
Sulfasalazine
48
None
July 29, 2016
Sulfasalazine
72
Extreme tiredness, ringing in the ears, tingling in fingers.
July 27, 2016
Sulfasalazine
63
Blistering on my chest
Atenolol
Premarin
July 27, 2016
UCERIS (Budesonide)
59
Bone pain, cramps, vitamin d deficiency
August 7, 2016
UCERIS (Budesonide)
63
High blood sugar
August 7, 2016
UCERIS (Budesonide)
53
Some hair loss, 5 lb weight gain
was not taking another medication at the same time
August 6, 2016
UCERIS (Budesonide)
18
I have not had a period for 10 years. I am 50 yrs. old. This is my 7th day in Uceris 9 mg/ daily. I started vaginal bleeding this morning.
I also have had nausea and vommiting along with flatulence and diarrhea! I thought this medication was going to ease my symptoms! This has NOT been the case. I will gladly go back to prednisone and suffer the adverse side effects! Best of luck to all who suffer.
July 29, 2016
UCERIS (Budesonide,Entocort)
49
Extreme fatigue and very vivid dreams.
I take Lialda 2 tabs per day. Krill 500mg per day, Nutrí Calm one per day. I also OxyPowder 3 tabs every other day.
June 4, 2017
UCERIS (Budesonide,Entocort)
53
Weight gain, vaginal bleeding, increase facial hair
Triamterene/hctz, cymbalta
May 17, 2017
UCERIS (Budesonide,Entocort)
58
medication helped my symptoms, but after 4 weeks had moon face and swelling in ankles. Also frequent urination at night (5 times most nights). I have also had weight gain. Dosage was 9mg per day. Discontinued medication.
Lialda, gabapentin, verapamil
May 2, 2017
UCERIS (Budesonide,Entocort)
36
abdominal pain
Pentasa
April 25, 2017
UCERIS (Budesonide,Entocort)
51
I have UC and have taken Uceris for 18 months continuously and it has helped somewhat. 5ASA, imuran, etc. have not worked on me. Side effects include, sleeplessness, tired, weak legs and I am always hungry. I am trying to wean myself of Uceris by taking it every other day and I am experiencing itching symptoms on my things and arms.
No
March 30, 2017
UCERIS (Budesonide,Entocort)
19
Even after one week on the med, still in severe pain, bloodier stool, extreme nausea (nausea meds help little). Patiently waiting...hoping.
March 2, 2017
UCERIS (Budesonide,Entocort)
67
Headache, achy joints, dizziness.
No
February 22, 2017
UCERIS (Budesonide,Entocort)
19
Stomach pain, fatigue
None
February 11, 2017
UCERIS (Budesonide,Entocort)
45
Severe nausea
February 1, 2017
UCERIS (Budesonide,Entocort)
58
Had to get off Lialda because of kidney damage. Started flaring so I tried Uceris for 4 days. Bad idea. Debilitating cramps every time I tried to eat and no change in the blood amount. Glad it worked for some. It contains lactose, which I am highly sensitive to, which many or may not have been the problem.
Asthma meds symbicort, albuterol, zyrtec.
January 10, 2017
UCERIS (Budesonide,Entocort)
24
Pressure on chest, blurry, restless, weird jittery feeling in body
January 4, 2017
UCERIS (Budesonide,Entocort)
52
Hives. Would start in the evening under arms and over night spread all over torso. Mild headache
December 27, 2016
UCERIS (Budesonide,Entocort)
41
increased appetite, weight gain, bloating, gassy, puffy face, hair growth on face
Liadla
December 14, 2016
UCERIS (Budesonide,Entocort)
52
Frequent urination - up every 2 hours at night. Had to stop after 2 months. Also caused my blood to get very 'thin'.
Warfarin, Balsalazide
December 11, 2016
UCERIS (Budesonide,Entocort)
38
Loose stools, itching on top of feet, swollen leg, liquid leaking from swollen leg, tired, mood swings
Ursodiol, azathioprine, bupropion, asacol hd
December 10, 2016
UCERIS (Budesonide,Entocort)
41
Been on this medication for a week now and I have noticed lesser blood on the stool, sometimes there is still blood though. I have also noticed itching of the skin mainly around my sides and underwear area (around the hips and lower stomach), red dots. I believe this is a side effect from the medication. My appetite is up and it also before my menstrual cycle, too. Which does not help. My face is puffy but not too bad yet. If this becomes worse with weight gain and puffiness, I will stop the medication. For this is why, i refuse to take prednisone.
Lialda
November 9, 2016
UCERIS (Budesonide,Entocort)
31
I have had a difficulty sleeping, gained weight/moon face, night sweats, increased appetite as well as skin sensitivity.
6MP and Entyvio infusions
November 1, 2016
UCERIS (Budesonide,Entocort)
53
Uceris Rectal Foam Fever, sore throat, sneezing
Azathorprine, Apriso
October 31, 2016
UCERIS (Budesonide,Entocort)
24
This steroid literally put me in a flare.
Bleeding more than ever.
Bathroom 5 times a days.
Cramping.
Nausea
Lialda- was doing 2 tabs a day but now off steroid back up to 4.

Iron supplements
October 23, 2016
UCERIS (Budesonide,Entocort)
22
Worked well for me except for the big mood swings as well - strange to describe - this set in after 3 months of usage and I chose to tapper off quick during month 4.
October 20, 2016
UCERIS (Budesonide,Entocort)
44
None
None
September 15, 2016
UCERIS (Budesonide,Entocort)
45
Lethargic
Headaches
Weight gain
Loss of focus
Lialda
Pantoprozole
Canada
Corticosteroids
September 11, 2016
UCERIS (Budesonide,Entocort)
31
Uceris gave me horrible mood swings. I would be cool and collected at one moment and then the next moment I have the rage of the Hulk. I was so glad to get off it!
Canasa
Remicade
Apriso
September 9, 2016
UCERIS (Budesonide,Entocort)
34
Swollen Ankles, Anxiousness, Trouble Sleeping, Stomach Cramping, Diarrhea
Balsalazide, Humira
September 2, 2016
UCERIS (Budesonide,Entocort)
55
Weight gain, facial hair growth, diarrhea
Lialda
August 27, 2016
UCERIS (Budesonide,Entocort)
61
muscle cramps headache back ache
balsalazide
August 22, 2016
UCERIS (Budesonide,Entocort)
56
Headaches and swollen legs.
Advair(for asthma) and
Nasacort(for sinus).
August 16, 2016
UCERIS (Budesonide,Entocort)
31
Nausea, headaches, dizziness, memory loss
Lialda, mercaptopurine
August 15, 2016