My daughter Amy has UC
I hope some one reading about this dilemma will be kind enough to write and give my daughter their thoughts on this problem
My daughter was diagnosed with Ulcerative Colitis last year and was prescribed Pentassa. She was well and active working full time and eating a normal diet when she developed symptoms and had a severe flare up and was admitted to hospital. She was given intravenous prednisolone and azathrioprine for ten days and told if there was no improvement the next option was surgery.
We researched and read many books about UC and then found this wonderful informative and supportive site and the SCD diet. Amy is still taking her decreasing dosage of prednisolone and is now on 10mgs daily along with 50mgs azathrioprine and Pentassa daily. She finishes the prednisolone in two weeks, She was told 2 weeks ago that she should increase the azathrioprine to 200mgs daily which she should take long term. She is only 5′ tall and weighs under 8 stone!. She was told if she does not increase the azathrioprine she will probably have another severe flare up again. Also she was told azathrioprine was safe to take long term and also if you were pregnant!! She is now so anxious she is considering taking the Pentassa and reducing the azathrioprine to 50mgs for 3 months and then trying to decrease it slowly.
She is staying on the SCD diet. Her last endoscopy whilst she was in hospital showed she had stage 1 UC. She is working full time and has resumed her previous social life. She does feel tired at times but has no other physical symptoms apart from a a little bloating in her abdomen. The SCD diet is no problem apart from our inability to make bread – the ones I have baked are dreadful even the birds will not eat them !!
If anyone could take the time to give us their thoughts on this problem we would both be very grateful and appreciate it very much!