Lost!

Hi, I am Pernita from India, I was diagnosed with ulcerative colitis about three years back. I am a mother of two young kids.  I was on wysalone tablets 60 mg for two years , whenever i was told to taper it off my condition became worse. i think my system started depending on it a lot. my doc wanted to put me on azoran but my hemoglobin fell to 4 and had to go for transfusion . It raised to 7 and finally with amway folic subsitutes I tried to raise it to 11 . finaly 5 months back it raised and i was put on azoran. but as told by the doctor that it will react in 3 months approximately… I waited . But nothing happened.  I developed fissures as was taking enemas too. every thing became painful. Was on 25 mg wysalone , 1500 mg rowasa three times a day (4500) , three azaron, codine sulfate three times a day, twice enema and my system gave up.  Had no energy left to face the day. Blood was spurting out on every trip to loo. the pain was unbearable. was even getting cluster head aches ev ery two three days. Then worst came my skin started getting boils. they were full of mucus and left deep holes all over my waist line. As i was trying to treat one the other came up next day. that was where i became totaly fed up. in us hindus we are told . God gives you that much pain which you can bear. i started crying looking at myself in mirror and trying to tell the al mighty above that he made mistake in ng to bear all.judging me. am not that strong enough. Went to my doc and told him that am going off arozan and tapering off most of the drugs as they are nt working. he told me to continue with rowasa . So finally I am off from most of drugs with all the pain and flare up still there and now am lost where to go from here. Can’t give up as my kids are my only hope to hang on to my life.

119 Responses to “Lost!”

  1. LindaNovember 8, 2010 at 7:47 pm #

    Hi Pernita, I’m so sorry to hear that you are doing so bad. it broke my heart to hear your story. how awful and afraid you must feel. I just wanted to say something to you that could bring some comfort. I can tell you that my 6 year old son has UC, and he is currently on prednisone, imuran, and remicade infusion. we have been doing the Specific Carbohydrate Diet with him for two months now, and he is starting to thrive! I’m sure his medications are helping, but, the plan is to get him off of those dangerous drugs once he shows even more improvement. i would recommend getting the book “Breaking the Viscous Cycle” by Elaine Gottshall as shown on this website. many people on here can give you support and just a release from all your sorrow. i hope you can begin the diet and start getting into remission, or whatever you decide. good luck dear. Linda.

    • SunworshipperNovember 9, 2010 at 6:24 am #

      I agree with Linda. The SCD (Specific Carbohydrate Diet) is a wonder cure for a lot of people. And, if it doesn’t cure you, for most people it lessens the symptoms (so far that’s what it’s done for me.) I believe I would be way worse with my symptoms if it weren’t for this diet. I recommend trying it as well. You will get a lot of support on this site, and there is also a yahoo group that you can ask many, many questions and they are very good at answering and helping you with any you might have.

      I am sorry you feel so alone. I have felt that way myself. Take comfort that there are others out there like you, and many like you who are willing to help you with questions, and just reading about their stories too. I find that to read others’ stories, it comforts me in knowing there are others out there like me.

    • sunil jainApril 15, 2013 at 2:10 am #

      hi,i am sunl jain aged 55 years and i stay in kochi,kerala, india. i have suffered from uc sinc 2008. i took steroids in the begining and for three to four courses. whith starting of high dose i would feel comfortable but as the steroids like wysolone was tapered the symptoms would start again.i was very scared and went to different doctors in many cities.however all the docs had same line of treatment which i was getting from the local kochi doc.i also tried ayurveda treatment from kerala ayurvedic docs. but nothing improved much.

      then i was advised by my friend and my well wisher to go to one unani practioner in jaipur and i took his medicine. i felt very comfortable within the first week and i had a feeling that my stools are becoming solidier. i took both english medicine and unani medicine togather for some time and than slowly tapered english medicine and continued unani medicine for at least one year and i was allright ithought was quite allright and i went off the medicines after that.

      howeve recently in dec 2012 the disease attacked me again and i had to go for the same steroid treatment along with unani treatment. now i am going through the treatment and trying to get out of the problem. i would like to share my some thoughts about this disease.

      1. cause: i assume that a simple case of ulcers which we also get some times in mouth, stomach etc converts to ulcerative colitis because of colonoscopy. in colonoscopy the boom is inserted from the rectum in to the colon and than air is pressurised to take the photographs of colon in different locations.

      the mucous membrane is very delicate and may be it gets damaged as the air is blown and the membrane is expanded to take proper pictures.thus i think an ordinary case of ulcers ( which can be cured by simple food intakes like buttermilk etc) becomes a case of uc which is uncurable by english medicines.

      cure as per my experience: first thing we shoud be not scared and be positive. the most imp thing to aggrevate the situation the tension or stress. one should have minimum stress and more easy life style.

      fooding is very important. pomegranate and its juice has been very good and it keeps hemoglobin levels high and gives us stability. recently i have also taken juice of watermelon and is very soothing to the stomach.properly cooked food and vegetables like pumpkin turai etc should be taken.fibrous foods salads etc shoud be avoided for quite a long time. more liquid foods less of citrous shoud be taken.shrikhand (yoghurt) may also be helpful to keep up energy levels.
      khichadi and daliya (porridge ) is best. can use more of roasted jeera powder in foods( good for binding stool and digestion)

      should go for parallel ayurvedic treatment and also homeopathic treatment as only other treatments may
      improve the system.

      intake of protins is also good as it helps to builds up the damaged tissues of the body.

      the following foods were not to be taken as advised by unani doc. palak (spinach) milk and milk products, papaya, kismis (raisins) almonds.

      finally to conclude i would advise that the improvement will be there slow but diet control is very must. the doctors may advise to take all items other than milk and milk products but one has to experience his own experimenting, after all it is only after we start losing hope of getting well

      this is written according to my experiance and may very from person to person and are only suggestions.

    • chetakNovember 10, 2013 at 11:13 pm #

      can u pls give conact no. of pernita

      • chetakNovember 10, 2013 at 11:15 pm #

        i am taking ayurvedic medicine …………………but doesn’t act much more u can call me on 08490875787

  2. Netaji BhandareDecember 6, 2010 at 3:28 am #

    hi Pernita, i am sorry to hear your condition. But dont treat yourself alone. I am one who gone through the nightmares of ulcerative colitis. You might hav eheard about Ruby Hall (Pune). I was been admitted there for few weeks to treat UC. also had undergone clinic trial at ruby hall and several colonoscopies but didnt got results. i had been told by doctors that there is no solution in alepathy for this deieses.
    At the end before @ six months back i started with ayurvedic solutions and started getting results. My bleeding and urgencies stopped totaly. I was on mesacol and predinisolene, i reduced its dose to zero. now i am taking only ayurvedic medicines.
    you can also go for the ayurvedic solution and Panchakarma treatments like Basti along with proper diet. you will definatly get the results. For any assistance you can call me on 9850810046

    • dhanuMay 22, 2011 at 6:36 am #

      Hi Netaji,

      I have been suffering from UC from past6-7 months. I have been hospitaized 3 times due to flare ups. I was on predmet, but as soon as it is reduced to zero, I have flare ups. Now I have been put on Azoran, Hoping at least this will help me. I wanted somme tips on controlling UC.
      I have been treated by the best doc in Bangalore.

      Thanks
      Dhanu

      • CamyMay 5, 2014 at 1:44 am #

        Dhanu, how are you doing now? Can you share your contact number. How has your doctor been.. looking for a good GI in bangalore who can help me with my UC – Tired of AIG in Hyderabad and looking for an alternative.

      • Sourabh SinglaJuly 28, 2014 at 10:30 am #

        Hi.. Me to suffering frm same frm last 8yrs and i m now jst 23 yrs old, i am a student, pursuing IAS studies. Whn i was in jst class 10th almost every doctor said me to take a easy and tension free study field for life as tensions can aggravate my problem and can put me in huge problem. But i took it as a challenge and made habits likewise to avoid the things which are not good for my health and started to find ultrnatives and adapted to the reality (being different from rest of commons) so that i must nt feel at any point of time in my carrier that i should have taken an easier path for life.. I tried everything from allopathic to homeopathic, met atlest 15 doctors and vedics, everyone was unable to give me respite, but i never give up , i continued to study about this on internet and accordingly tried to change my lifestyle.. Might be u will not believe that i m eating outside food since i stick to this disease as i always study outside my town, still i m much cmfortable with my problem… Nw i have at last halted at ayurveda(indian gem)… There is a doctor of ayurveda in delhi, he gave ayurvedic supliments in the form of capsule… I have been taking it from last 2 years..
        Nw i hv a lot of improvement.. Stool hardly 2-3 times, rarely blood seen (aftr several weeks)… Gained some weight… And much more… Doctor has website named ulcerativecolitiscure.com, u can go there and can consult doctor through emails, no need to meet personaly ( if u reside far away from delhi)…
        Moreovr beal juice is an awesome remedy to control the problem… U must drink it at the time of its fresh availability i.e. in summer season, it is also very cheap solution to the problem. It will definitly give a big big relief esp. In case of unbearable urgencies to bathroom…
        And and and be little conscious about what u are eating, need not be too much worrisome about your intakes once u recovered… Try to find ulternatives to the things u miss being patient of UC. e.g. fond of icecream don’t get embaraced try to have water icecream or yoghurt icecream(by creambell); fond of
        Milk don’t worry u have soya milk that to flavoured eg. By godrej “sofit” , moreovr can have buttermilk with mango flavor, masala chaach made of yoghurt, check on recipie at youtube… And so on.. So inspite of getting depressed and having a feel of being carring a burden of UC be keen to find ulternatives and make it your hobby and try to be enjoy what you do. As depression and tension aggravate the problem… U should be confident and ready to face challenges of life with the courage…
        And one last thing make it clear that ever person has some difference in their metabolism then anyone else so,accordingly they may hv different reactions to different eatables eg. Bhindi dosn’t suit my stomach but it may suit u, likewise i hv no problem with dal(lentils) bt some may have. So one need to observe carefully what one eat and what are the things that case the problem to onself, this step is must to be incorporated in run of life, this is the only tool to fight this disease..

        Best of luck..
        And believe in GOD, if he has given us the problem then he must have the solution, the only thing we need to do is to find the door behind which solution is hidden, inspite of sitting alone and curse ourself of having this burden in life…

    • abhayMarch 29, 2012 at 4:25 am #

      thanks for shearing information.
      my wife is suffering with UC. we are treatement under aditya birla .
      dr recommand for azoran and infocal tab but due to which she is not comfortable
      as owmiting sensetion is present daily.
      I hv shown at pipri to dr pravin salunke who has recomanded moscus 800mg 3daily tab

      what to do
      pl suggest some best solution

      • SumitJuly 7, 2012 at 8:03 am #

        Hi Abhay,

        I am suffering with UC. I would suggest donot go directly to hospitals. Specifically big hospitals like Aditya Birla. I am currently getting treatment from Dr. R V Godbole. There is also Dr. Parimal Lawate. These are best doctors in Pune.

        Regards,
        Sumit

  3. SMJune 8, 2011 at 5:57 am #

    It is surprising to see so many people suffering from this condition in India. I too add to the statistics. After many agonising months of suffering, I was diagnosed in April, 2011. Presently I am taking 3 tabs. of Mesacol of 1.2 g each per day. Tried to see if I am fine by not taking the medicines for 2 whole days and the bleeding returned. The medication gives me mouth ulcers. But I am happy to be responding to the medicine for now and am recovering from a dismal blood count. Wonder what is in store in the future.

  4. chaiJune 24, 2011 at 9:30 am #

    My daughter is 7 years old and has UC. We are relocating back to India from US. I am really worried about the medical care she can get in Bangalore. How good or bad is it?

  5. akashOctober 13, 2011 at 12:44 am #

    I am also suffering frm UC………it has been 6 long years……iws 13 whn is was first diagnosed with uc left sided……no help from the school……i even gave my board exams with 20 stools/day 3gm hb n 102 degree fever left leg thrombosis…n had to go fr immediate treatment between the exam days…doctors said i wud have died if i had come a day later…..medication…..name it i have taken it….with little or no results…….then with gods grace i met with a Gardner…..yes a gardner who gave me natural herbs……plants……n guess what no blood no mucus nothing…..all the side effects toxins where removed with his natural treatment……for those of us in india i strongly suggest ask gardners…..the old ones…they know everything

    • Kiran from bkkDecember 15, 2011 at 10:12 pm #

      Hi Akash
      My daughter has suffered immensely this since dec 2010… she has had severe flare up and been through the worse… is it possible for you to check with your gardener the exact herbs you took… im always interested in natural cures…

      the one thing that has recently helped my daughter (she is 25 ) is strong Haldi drinks… she takes it thrice a day before her meals… and it has done her wonders…her cramps, bleeding and her stool formation and frequency and diarrhea is 90% improved… i would advice all those UC patients to try this harmless cure along with what ever else you are taking…she is still tapering off her steroids and is on her last 5 mg a day… and the quick tapering off was only possible due to this miracle drink. In Bangkok we get very good fresh roots in the market… we take a good amount and cut and pound and throw it in a pot of water… slow cooking over 45 min…. make a strong broth… reduce and make about 3 to 4 cups… refrigerate and finish by end of day.

      • raviFebruary 3, 2012 at 1:39 pm #

        PLease let us know the herbal meds you took for all you symptoms to go away…

        thanks

      • harsh sachdevaAugust 30, 2012 at 6:29 am #

        hi kiran
        u are very right… i am also using haldi powder everyday with curd almost 1/4th of a spoon. this was told to me by my ge physician…. i am telling u since the time i have started this i have never had a relapse. yes minor incidents of slight blood in stool once in five six months do occur … but mostly i am comfortable .. but i am taking my complete medicine regularly…. i hope she also takes this and feels better… good luck to ur daughter and the lady who says she has lost… may god give her the strength to fight with this and she comes out of this disease soon…… harsh

    • Netaji BhandareJanuary 27, 2012 at 6:15 am #

      Dear Akash,

      Nice to hear that your all symptoms vanishes like anything. Yes I believe, for this diseases, only natural medication works fairly. You are lucky that you got Gardener who given you medication. but every sufferer like us are not enough lucky to get the gardener like yours. Can you disclose which medication you got from gardener. or else you can give your or gardener’s contact no. so that we will also get the benefit from ancient medication. You stood sufferer from UC hence you know the hell of pains in this diseases.
      god bless you.

      • rakeshFebruary 3, 2012 at 4:34 am #

        Hi netaji,
        Its nice that your symptoms have vanished. Could you please give me exact details of the medication that you have been using. My mother is also suffering from UC since 4 years now. She has been taking allopathic medication.. which involved mesacol, but the results were not satisfactory, now we are planning to give her homeopathy treatment, but we know nothing about it. It would be grateful, if you Could you please help me with some suggestions

    • harsh sachdevaSeptember 12, 2012 at 10:36 pm #

      hi akash, can you tell us the name of the herb or can u give us the phone no of that garnder.. or can you look for that gardener for us. my phone no is 07597189819 … i shall be grateful … thanks
      harsh

    • hiteshDecember 18, 2012 at 11:44 am #

      Hi akashji,
      I am uc sufferer n wanted to ask u of the herbal remedy which u took by the gardener who gave you. As it would help me n many other sufferers who have this horrible condition. Can u pls mail me if u can as I am living in uk England. Once I hear from u I can even ring u bhai. And we can talk n U can give me herbal names u took.
      I look forward in hearing from u bhai.
      Regards.
      Hitesh.
      P.s my email add is. hits.j@hotmail.co.uk

    • ShyamDecember 31, 2012 at 12:32 am #

      HI Akash, i am from UAE , since last year i am suffering from UC, can you please advise me from where i can get natural medicine. and what its called .. appreciate you help ,mail me- shyam7546@gmail.com

    • ManishJanuary 22, 2013 at 2:53 am #

      Hello Akash,

      Can you please share the information about the herbs given by gardner.

      Regards,
      Manish
      8767006773

    • madhuJanuary 24, 2013 at 12:30 am #

      Hi, Akash nice to here you are out of symptoms. Recently I was diagnosed with Ulcerative colitis 1 month back & Doctor recommended Asacol & mesacol tablets, but thr was no result.

      Could you help me in solving this problem, since 1 month I was suffering very terrible.
      You stay in which place & what was the plant(nature remedy) that was used by you.

      B’caz I don’t know any gardener & no one else.

      By reading your’s comment I got some hope, that you could help me.
      wating for ur response.

    • sunnyJanuary 27, 2013 at 5:27 pm #

      Akash
      can you please tell which herbs you took. i ahve been suffering from UC since 1 1/2 year currently under medicatation. even under meidcation, it ain`t any better.

      can you please tell me which herbs u took

      thanks in advance
      sunny

    • siddhant tiwariJuly 20, 2013 at 7:24 pm #

      HI Akash ..i m also a pateint of ulcerative colitis for one year..
      i m only 23 yrs old.. its a very hard to have this disease..
      can u tell me details of herbal treament which u received from your gardner. i shall be thankful for this kindness..

      9560481865

    • KETANOctober 29, 2013 at 7:04 am #

      I HAVE ULCERATIVE COLITIS SINCE 2001 AND 2009 I TOO GOT DVT … DEEP VEIN THROMBOSIS . I TOO WAS LUCKY AS CLOTSS DIDNT TRAVEL TO HEART DUE TO FULL BLOCK OF IVC.

      I STILL HAVE UC AND DVT . I AM HAVING WYSOLONE 20, PENTASA 500 X 3 FOR UC AND ACITROM 4 MG FOR DVT . CAN YOU HELP PLEASE AKASH
      KETAN 08484812345

    • MallikNovember 11, 2013 at 1:57 am #

      Hi Akash,

      Can you please tell me the medication you had and where can I get , thanks for the information

      my id is pmallik@gmail.com

      Regards/Mallikarjun

    • TJuly 10, 2014 at 7:58 am #

      can you give me the details of the gardner or or the leaves you took.

  6. rashmi hudsonFebruary 19, 2012 at 3:10 pm #

    I too am an Indian suffering from UC for 7 years now. One year ago, I started a gluten free diet and my symptoms went away within 3 days. As a vegetarian Indian, it is very difficult as our diet is heavy in roti, parantha, puri, etc. Gluten is found in wheat, rye and barley so you have to avoid these. I find rice, dosa, chilla (a besan crepe) are all agreeable to my system. You can also make roti from other flours. I, like some of you, found that as soon as I came off the steroids, my symptoms would worsen. I don’t know about the Specific Carb diet, but I can tell you that gluten free makes a HUGE difference. I had come off of all my medications (Lialda and Entocort) but started back in 3 months. I think my allergy to SOY contributed as I started drinking soy milk for the protein. Once I fully recover, I plan to try gluten free/soy free diet.

    Please let me know if this helps you. I would appreciate it. Thank you.

  7. vivekMarch 11, 2012 at 12:06 am #

    hi am vivek having ulcerative colitis but doctor prescribed me take mesacol 1.2gm take only 2tab per day. not taking any tablet. enough or not plz send me any info to my mail vivekgowdamb@gmail.com

    • abhayMarch 29, 2012 at 4:37 am #

      where are you taking treatment ,bcz my doctor recommandend the same
      earlier dr recommanded azaron and infocol
      pl mail abhay.bhende@behrgroup.com

  8. Sahebrao TupeMarch 27, 2012 at 4:06 am #

    I am suffering from ulcerative colitis since 2006,previously wrongly diagnosed fisher,after colonoscopy ,i started mesacol 400mg three tab. twice daly.also I have taken KUTAJAVLEH/KUTAJ GHAN VATI an ayurvedic medicine with this.that almost control my colitis.Also reduced spicy foods and started PRANAYAM /YOGASANAS as per Swamy Ramdev Baba CD. It is realy benifitial.please try ….

  9. ShygirlMay 16, 2012 at 12:29 pm #

    Hello,

    I have Ulcerative colitis from June,2001.I had numerous flareups and hospitalisations due to infections and flare ups.I am from Nepal.
    I am currently on 6 tabs Asacol,Imuran(Azathioprine)-150mg per day and was previously on Prednisolone(taper from 40mg to 2.5mg on a weekly basis).I am also using Hydrocortisone enema on a daily basis.I am currently having a flare for about 4 months and it just dosen’t seem to come under control.I am depressed and have suicidal thoughts these days.I have a small baby and nothing seems to work for me.I am having bland and restricted diet with almost zero fibre but nothing seems to help.I have zero energy and my marriage is falling apart because of my illness as i cannot do anything for my family and being sick for soooooooo long.I wish no one on this planet has this disease.It is no less than a curse.

    I tried Gluten free diet last year for 4 months but it did not help!!

    • Haren KunduJune 9, 2012 at 11:32 pm #

      My wife is suffering with ulcerative colitis for last 30 yrs.Initially it was bloody stool and motion was 6/7 times a day. Night fever and sneezing was there. After 6 /7 yrs Mucus started coming. Tried Homeopathic ,Ayurvedic and Allopathic treatment. Doctors treated her for malaria,TB,etc. In 1984 she
      was treated as UC and doctor gave Salazopyrine . After that she started regularly Asacol, Pentasa and now Mesacol 1.2g. In between she has taken steroid,Enema. But this disease is unpredictable. At last
      (1999)we consulted Kerala Ayurvedic in Coimbatore ,India. They suggested different types of medicine and continuing for last 12 years. It has a cycle after 7 months what we faced recurrence is there .Now we are facing every 3 months. If the motion increases then she takes Antibiotic and increases Pentasa. Now she is taking Mesacol1.2g but not comfortable.No blood now only Mucus 1 or 2 times a day. Motion 3/4 times a day.She on Allopath and Ayurvedic treatment.God should not give this disease even to enemy
      Steroid once in two years. Weight loss is there.You can call 919874194155 for any suggestion.She is 60yrs old.No permanent cure I see in near future. Thanks Haren Kundu

      • KETANOctober 29, 2013 at 7:06 am #

        YOU ARE DEAD RIGHT…… NO CURE. ME 2 SAME SINCE 2001 …COMES GOES INCREASE DOSE REDUCE DOSE AND LIVE ON

    • harsh sachdevaAugust 30, 2012 at 6:39 am #

      hi shygirl
      i am also a patient of uclerative colitis for last 8 years. numerous flare ups in first four years. but since last four years i am quite comfortable. i am taking my medicine proper. then i am taking fishoil capsules seven seas. then i am taking curd twice daily with turmeric haldi powder 1/4 spoon everyday. basically i mix curd and turmeric and have it before meals. then i dont take much of citrus fruits like sweet lime. i mean even if u have sweet lime, not more than half to one medium size piece. rest of the things which u are doing u must continue. i when started with turmeric i had three four motions extra with yellow colour water etc. may be it was cleaning my colon. bus since then i have been almost comfortable. i hope the best for you. may god bless you and give u the strength to fight with this problem.

    • parulSeptember 12, 2012 at 7:24 am #

      hey i can understand ur condition as m too suffering frm uc,i wud like to suggest u to plz take ayurvedic medicine ..go to a nearby ramdev patanjali clinic the medicines they give with yoga helps a lot .i wont say that it cures u completely but ya the no. of relapses do grt decreased nd severity gets reduced toooo….

    • harshDecember 31, 2012 at 1:41 am #

      keep taking all medicines as prescribed by docs…………..but i have been taking curd with a 1/4 tea spoon of turmeric as told by my ge physician… and for last four i am almost comfortable
      i wish u the best ………hope u recover and be comfortale soon…..just dont loose hope………this illness disturbs initially for about 2 to 3 years and then ……….one is generally comfortable..i mean u come to know how to lve with it……but i am sure u will get better

    • harshJanuary 2, 2013 at 9:32 pm #

      i am much cmftble ………..i am taking just pentasa 2 tabs thrice daily and curd and turmeric and just avoiding chillies ……..that is all……………u all can contact me on my email…….harshrajrif@yahoo.com ………….i feel good when i am in contact with ppl like me having same problem………and i ll be honoured if i can be of any help…….harsh

    • MotherFebruary 23, 2013 at 8:24 pm #

      Hi shy girl , I am a mother of daughter who has uc. I am in the USA. Asacol can give your severe diarrhea , this was the case with my daughter try another 5sa. Also pentasa is new and seems to help more then asacol. For all other readers who may have gas the indian squash dhoodi with mint in juice form helps a lot. I wish you all best of luck as it is a very stressful disease for those in school and at work

  10. SMJune 20, 2012 at 11:18 pm #

    I wrote in June 2011, when I had been diagnosed with this disease. During this 1 year, I experimented a lot. Now,one year later, I have reduced my intake of mesacol to 2 tabs per day. AT times, I do not take it for a good few days. BUT, I have reduced my intake of meat based diet, taken away carbonated drinks and reduced wheat based diet. Whenever I eat any of the above, I get ill.

    My research led me to use of a fruit called Bael. Bael (woodapple)has helped me immensely. So does Aloe Vera. When I get a burning sensation in my stomach, due to acidity, I take a teaspoonful of Eno in a glassful of water.

    Mesacol resulted in weak eye sight, hairfall, memory loss in my case. When I reduce my intake of Mesacol, these conditions show a marked improvement.

    On a more personal front, I have stopped being a perfectionist. I am more relaxed and have sidelined toxic people from my life. Professionally, I have slowed down from the rat race. I take each day as it comes. I had a habit of being worried chronically – I should be in a position to do everything possible in office, at work so that no one gets burdened on account of me. Believe me, it does not help. No one praises you for those extra efforts. You only end op getting Ulcerative Colitis.

    Support groups on facebook are a big help.

    • vinodJuly 18, 2014 at 2:35 am #

      you are absolutoly right, no one praises you so i stopped working almost just come to office relax do routine work as it comes..not running behind boss for new projects…he he.. and managing my UC…..yoga pranayam helps a lot….also diet is really a major factor atleast for me i have seriously noticed this….for me very simple i just remember what to eat and out of that least if try to eat anything i keep my finger crossed for next 2 or 3 BM. oooops need to mention my list of food if some one is interested… simply i divide in three food (logic of eating small food every two hours did not suited me and my conclusion is you are keeping busy your gut every time so better 3 meals a day not too big (over eating no).
      breakfast:—- green tea, two piece of brown bread or better french bagguet with honey and potato or paneer (no cheeze stricktly), one banana.
      and then i take green tea between breakfast and lunch (remember no cookies nothing just blank green tea)

      lunch:- two or three very thin (like papad) chapati , any gourd family (tori, lauki, tindo, chappan kadoo, simple yellow kaddoo permal, zacucchi, ) vegitable or potato curry, green beans, carrot, cauliflower ok for me, brinjal also some time , (remember no tomato, no onion , no garlic even for tadka or chhonk whatever you call it)

      again green tea or any other fusion (not perfumed) any herbal tea is ok , i found one very good from South America called Yerba Mate helpful in healing , forget the benefit atleast no side effect. or better a soup i take casava or tapicoa soup …

      Dinner:- two or three chapati thin again ::::::: with any of above mentioned veg or for change you can make a recipe we call it in Rajasthan Curri or kadi with Bajra (millet) flower , remember DO NOT make it with BESAN(black channa atta)………………………………..

      well thats all nothing else ohhhhhhhhh you might be interested to know my case
      first diagnosed in Jan 2013 severe started with mesalamine 6 (800mg at a time) per day and entofoam trhough rectum good for intial three months but slowly came back again worse this year january, was on steroid for a month. then in March 2014 started above program and got relief….. but still on mesalamine 1 (400 mg) after every meal and one mesalamine suppository of 500 mg every morning or alternate day as i have ulcerative procritis so my blooding start from rectum and goes above slowly. …………………………………………………………………now no blood once in a 15 days or so i still see some blood but honestly everytime when i try to eat out of above list cost me heavily…

      you can mail be openly vinodvishnoi@gmail.com share your expereince may be we together come out of this horrible phase …..with god’s grace

      thanks
      vinod

  11. Nadim NaviwalaJune 27, 2012 at 12:28 am #

    Hi Everyone,
    This is a story of my sister (Nafisa Naviwala) who had Ulcerative Colitis few years before-
    6 years ago at the age of 21, my sister gave birth to a child… On that day she passed the stool which was very liquid… From that day the actual problem started but couldn’t realize… Every night she use to go for toilet once, but the frequency increased day by day… After some days the stool also contained drops of blood… We went to several doctors to diagnose but none of the doctors could imagine what the actual problem was. They thought it was piles. After several doctors, one of the doctors examined and asked to go through an endoscopy. We went to Rajkot (City).
    We did the endoscopy but due to careless behaviour only half of the Endoscopy was done. Medicines were prescribed by the Doctor which was mainly Mesacol and others. The problem was contained for several days but then it came to that point again. Doctor was contacted and asked to increase the dose to double. But problems continued.
    We didn’t trust the doctor anymore, so we shifted to one of the famous hospitals of Mumbai. Once again the overall process started but problems continued. The daily charges and medical charges were too expensive. After 8-10 days treatment under Doctor’s supervision, we decided to come back and continue from our hometown. After some days, we came back to the original medical clinic. Contacted the doctor but he asked to get admitted and to be in his supervision. This was not which could be afforded.
    Doses were increased but there weren’t any solutions… People gave us all sorts of advice- knocked the doors of homeopathic, Ayurvedic and several others… This continued for a year. But the problem still prevailed. Doctors use to show faith and trust on their medicines but there weren’t any results.
    Weight was reduced to 27kgs from 42kgs. Frequencies of motions were increased to 12-15 times in a day. Other severe problems started: black outs, memory loss, weight loss, body pain etc due to heavy doses of steroids and other medicines.
    Family Surgeon recommended a Gastro-Enterologist doctor in Rajkot. One more knock on the door. This time it was Wockhardt hospital. Overall process was again started. Endoscopy, Biopsy and other major blood reports were done. After examining the reports, on consultation doctor advised, the problem has been from a long run and colitis spread in the major parts of large intestine and it could also spread to small intestine which could further lead to Cancer.. He advised, we would take a chance with medicines for maximum of 3 months, if still prevailed would recommend surgery (removal of large intestine).
    Medications were started; suppository, azoran, mesacol, Entofoam and others were advised. But no recovery in the given deadline. Same problems existed. Doctor asked to opt for surgery and recommended one of the best doctors of Gujarat.
    Moved on to Ahmadabad this time, Hari-Bhakti Surgical Hospital now as Kaizen Hospital. Under the guidance of Dr. Hari Bhakti and Harshad Soni two well known masters of this field. Surgery was done in two stages and Large intestine was taken off. At first some minor problems prevailed after surgery, but then everything was taken care by these doctors.
    Ulcerative colitis had ruined her entire life. Marriage life ended in a divorce as soon as Ulcer was diagnosed. Now she lives a normal life with her 2 children. My advice is not to take Ulcer symptoms lightly, as it can damage your whole life. Homeopathic & Ayurvedic is hard to believe in these cases. People simply waste months and years in these treatments. If 6 years before we would have consulted a specialist or a good doctor we wouldn’t had to come so far. It could have easily been treated with medications.
    Please do consult in case you need any further advice on my email- nadeemnaviwala@yahoo.com

    • DimplezzJanuary 13, 2013 at 8:11 pm #

      Hi Nadim,

      My story is very familiar to your sister’s ordeal. I was diagnosed with UC 3 months after a forced arranged marriage. I’m sure I wasn’t aware of UC before that because stress exacerbated the UC & I started suffering its symptoms after marriage. I suffered from bleeding & weight loss. I was afraid of eating & went on a liquid diet for a year before the 1st major flare-up that caused 4 hospitalizations in 4 months. My so-called husband started making fun of condition & that made me feel even worse both emotionally & physically. He was in India awaiting his US visa since I’m in America. I ended the so-called fake marriage & felt 50% improvement in my condition. I had to get the same surgery as your sister & now I’m struggling to gain weight!!

      • harshJanuary 15, 2013 at 11:14 pm #

        hi dimplezz
        u wrote that u underwent surgery………….can u pl update us about how u doing after surgery…….so that we can benefit from ur experience of surgery
        thanx
        harsh

        • DimplezzJanuary 16, 2013 at 7:30 am #

          Hi Harsh,

          I had J-pouch surgery in 2011 & my diet has been restricted to soft foods like potatoes, mung dal & other easy to digest foods. I avoid fried food & don’t eat out.
          The doctors say that I’m cured & that I can eat all types of food but that’s not true. When I followed their advice I felt sick. I wasn’t planning on getting surgery but my colon got perforated during colonoscopy :( so had to get life-saving emergency surgery. If your
          UC is manageable with a specific diet like SCD then I would recommend the diet.

      • harshJanuary 17, 2013 at 7:23 am #

        thanx dimplezz. for the reply and information u shared with me
        i am sure god will be kind and u will be better……..dont give up…………dabbi ja (it is in punjabi)……..that means u must continue ur efforts (keep ur foot on accelerator and just keep pushing on)…all the best

        • DimplezzJanuary 29, 2013 at 5:46 am #

          Thanks for the encouraging words Harsh :) I’m trying to push myself so I can fight back & win over my situation.

      • BalajiJune 11, 2013 at 6:20 am #

        hi,
        i am suffering from UC since 3 years now, this ruined my best paid job in Singapore,
        i took up easy and day time job, people with UC should never work in night shifts. i am managing with Masacol .My night shift job gave me this after 13 years of work life, i am shattered and my career screwed up.guys the life goes on, ok now, but scared.

  12. annJuly 29, 2012 at 12:09 pm #

    Could akash give some of the details about his treatment from the gardner, or ask the gardner, if he would be available to advice others

  13. k.colneyOctober 5, 2012 at 11:13 am #

    hi nadim naviwala,m also UC patient living in mumbai,m fr manipur but as thrz no gud treatment thr m family askme to stay here i hv it since i was sixteen then d flareup was mild but since m also a part of mumbai fast life n hardworking person. i went to cruise without m mum consent n gt a real bad flareup 2006 vry serious iwas in icu.iwas given remicad n another flareup in 2009,cant evn raise m head but remicad work again but now 2012 it doesnot but God miracle plan happen within two days after a real depression m motion bcum solid wt three movement n iwas given 350 ml blood, albumin now i jus cm out of d hospital, due to blood lost n low albumin less nutrition absorbtion i hv to tk supplement so many other foods like curd,pomogranate juice rice, quinoa,suji,chicken.well iwas about to go for surgery but as God gave me another chance i think d best is to mk drastic lifestyle changes, eat healthier n i started yoga instructor course,m family dosnot want me to work but i cannot live wtout working esp. in a place like mumbai,n i plan to love myself more n hv a positive n wanto kp in toch wt pple fr mumbai n around who suffer like me coz ds flareup realy mkme low n emotionaly drained me. if possible u may contact me 9892053860.i can understand urconcern m sister bn always wt me as m mum was also a kidney transplant patient 2002 n passed away i 2010.n m dad support me financialy except for m first big attack iwas in US so d cruise company paid i also lost confidence in man,i hv a guy who assured me dat he vl tkcr of me but smtm i feel he jus sayn to mk me feel better. well i understand what ur sister must hv gone through but she isnot alone n we cn still eat healthy n live happily

    • AshishOctober 6, 2012 at 2:49 am #

      Hi, This is Ashish, 26 years old. I have UC since 2007, had a major flare up in sep-oct 2011, had terrible bleeding and pain, was 37 kgs, but treated well at Asian Institute of Gastroenterology, Hyderabad. I am really grateful for all the support I got. Especially my family, friends, and doctors.

      I had to discontinue studies. Anyways, that is fine, since health is more important. As of now, I am fine although on Steroids. Again, its okay :). I am grateful that I am able to work.

      One thing which concerns me is marriage. Any inputs and insights! For me, it’s okay to be single :). Still…

      • DimplezzJanuary 13, 2013 at 7:58 pm #

        Hey Ashish,
        I also have UC & was diagnosed at age 27. It’s not easy to find somebody who understands the otion & physical pain this disease causes so I have been divorced ever since I got sick. So, try to find a understanding life partner who will not judge you because of UC.

        Take care :)

        • harshJanuary 15, 2013 at 11:18 pm #

          we r all on the same boat. we can treat each other like friends and share our problem on this site….. dont trust ppl unnecessarily……..and dont expect much…………..it is difficult and can cause further damage to our health…….
          harsh

        • BalajiJune 11, 2013 at 6:23 am #

          you are right, i am diagnosed at the age of 32, by this time i was 7 yrs into marriage and my wife is so good and understanding, helps me in all ways.otherwise it is not easy.

      • BhaviJanuary 15, 2013 at 12:15 pm #

        hi
        ashish even i am have uc from last 5 yrs can u please let me know which druges u r taking ryt now is it mesacoal, wysolone. omnacortril or ezoran ? and also let me know that taking drugs like wysolone or omnacortril for long time is good for body or it will harm after some time

  14. RahulJanuary 15, 2013 at 11:53 am #

    hi people,
    Though i dont suffer from U.C but more or less have been suffering from the same ordeal. I am 27 and i stay in mumbai. I have had 4 colonoscopies with no proper results, hence no matter who i consulted the final answer was IBS. I lost 50 kgs of my weight in one year alone i was afraid to eat just like dimplezz.
    Started SCD in Oct 2011, after almost a year and an half i am med free. I follow the diet religiously. My BM is regular which is 1 daily, it used to be 8+ sometimes before the diet with lots of blood. This diet changed my misserable life back to more or less normal.
    I was literally in home for almost 4 years with nobody to talk to about this stuff bcoz they dont understand and make fun of you. Anybody in mumbai who needs to talk to someone about the diet can contact me.

    Take care,
    Rahul

    • RameshFebruary 24, 2013 at 7:46 pm #

      Hi Rahul,
      I am in Mumbai, Can u plz give me ur contact no or email id. I have been suffering from UC since a year and wanted some help frm u.

      plzzzzzzzzzzzzzzz

  15. RahulJanuary 22, 2013 at 9:30 am #

    Hi harsh,
    Where do you reside in india and how is your health at the moment ? Do you follow any specific diet ?

  16. harshJanuary 25, 2013 at 12:05 am #

    hi rahul
    i m genrly cmfrtble
    but of n on lil probs r part n parcl of this
    m happy that m back twds normalcy
    i dont take any specific diet
    i tke everything incl nonveg,,,just avoid red meat and mutton
    avoid stress and getting angry and emotoinal abt things
    i do take curd with 1/4th tea spoon of turmeric dalily
    this ws adviced to me by my ge physician
    u may also try…….it wont disturb much
    but for one odd day it may
    wish u and all ppl suffering with this prob a healthy and comfortable life
    dont loose hope
    there r so many of us on same boat
    take it that u will get better soon
    last bt not the least
    keep takin the medicines as advised by the ge physician
    regards
    harsh

  17. AshishJanuary 28, 2013 at 1:11 am #

    @ Dimple, Thanks for the inputs :)

    @ Bhavi, I am in remission, I am using Mesacol, Prednisone ( 12.5 mg, 8 days to go), and occasionally I try VSL#3 (Probiotic, this is good.)

    Also I am using ayurvedic medicine, which has been effective.

    *1 tsp of Bael Fruit Powder (dry) + 1 tsp of Mulethi Powder + 1 glass of Water. You can check this on youtube (Ayurvedic Medicine for Ulcerative Colitis).

    I hope you are doing well. I wish all of you a very good health. Thank you.

  18. Pawan KumarMarch 13, 2013 at 7:35 am #

    hi all,

    same story ..i take mesacol 12.mg thrice a day .and mesacol enema .bt its of no use for me till now.
    with steriods i am okay but as it reduces .it repeats .In my case its 3 mnths.

    Many thing i hv tried .

    After reading the complete blog .One thing is sure it can only be controlled .As its auto immune disease and different ppl have different immune system .some remedies work for once but it may not work for other.

    Alopathy and homeopathy has not given me any solution .

    If any one knows anything in Ayurvedas so kindly share .
    Any doctor or remedy

    Curd with turmeric i have not tried .Now i”l try that too.

    I m from delhi .
    mob.9988134089

  19. harshMay 10, 2013 at 7:25 am #

    hi all
    As i have already told you guys that i am taking all medicines as prescribed by the GE physician and alongwith it i have been taking curd and turmeric…. i just wanted to update u guys that i have started having bael juice which is genrly available anywhere in india in summer season. since the day i have been having this bael juice i am feeling much better…the stool is more formed and frequency has further reduced.
    this has no side effects as per me
    i would recommend this also
    just try it for a month and i am hopeful that all of you will get some relief from this.
    all the best
    looking forward to your comments after around 1 to 2 months
    pl do tell me if u get sm benefit from bael juice
    harsh

  20. pawan kumarMay 13, 2013 at 7:56 am #

    Hi All,

    With a God Grace things for me has changed drastically although I still do some stupidity .

    Just few days month back I started taking Ayurvedic medicine .It Cost RS 2000 for a month .I am taking it mesacol and Azoran .

    But slowly I am reducing it and flare up are not repeating .Now I am a normal human being doing and living life happily .

    All those who are fed up Allopathic kindly switch to ayurvedic .Consult a good doctor .Although Ayurveda has got solution and its very specific so every doctor gonna suggest the same .

    For any query just ley me know .mob.09988134089.

    And above all the best cntrl is Eat monitored food means you have to mind what you are eating .

    Naa jyaada naa kum only optium.

    Bael Juice is wonder thing for this disease .It does miracle that you cannot believe .So whatever harsh is suugessting is ryt .Bhagwan bhole Shankar ka Prasad samjhkar mast khaye .

    aur ek baat .Accept that you have this problem .And you can every battle with this problem .Just you got to monitor youself and go to Ayurveda .

  21. NileshMay 21, 2013 at 3:52 am #

    i am new to this disease.
    Started last month.
    2 weeks rest with med – probiotic, sustained release, nd daflon in 2nd week,
    blood was in traces
    whenever i had digene, my stool were perfect

    went to office nd had to return- my son was born

    ate a chilly dish nd then next day had moderate blood

    finally after a week , had sigmoidscopy revealing ulcers
    biopsy awaited in 5 days

    i dont kno which colitis wil i have?

    Yes, diet moderation affects it

    i m havin 4-6 stools a day
    with blood variations being -nil,traces,mucous with pus
    smtimes even hard stools

    a period of high stress triggred me into this hell

    i already have an uncurable scalp disease

    i dont want to have UC

  22. prince choudharyJuly 5, 2013 at 10:55 am #

    best of luck to all

  23. AnuSeptember 13, 2013 at 11:29 am #

    im a 49yr old woman…suffering from colitis .doctors couldn’t find what type of colitis I have even though had to do 3 colonoscopies with in one year….im living alone because im a separated woman ….im from Hyderabad and getting treatment from famous Yashoda Hospital..been hospitalized.last year I was on pednisone for a week but stopped it due to 3 episodes of nasal bleeding to increased blood pressure .steroid was the culprit. now Budez cr and pentasa granules since 4months…no blood …but loose motions at least once in a week….my main problem is I feel like I dnt have any life any more and im scared to death…..still couldn’t forget the pain and bloody stools I had for last one year…..I feel like any tim e same things can happen again and I dnt have the strength to face that …I have high bp and I need to monitor my BP..most of the days as long as I take steroids.im depressed…

    • NileshSeptember 14, 2013 at 7:56 pm #

      @Anu
      Just feel the grip. The disease is here to stay.
      I have been 5 months into this beast. Thankfully to God, I have managed to reduce my symptoms and fight with it. I had lost hope initially, but my family gave me my strength back and I am working with almost the same zeal as before. Sometimes I do get the cramps, traces of blood but overall its manageable. Above I have started to eat all the stuff I had stopped – Paranthas, tomatoes, Maggie, tea, sweets, etc all in limited amounts
      i have reduced my medications as well. I know this disease does not heal. you gotta have inner strength to fight with it. May god be with you..

  24. zinnat ara nasrinDecember 5, 2013 at 11:05 am #

    hospitalized few days back,it was a nightmare,terrible injections,tear is always in my eyes,afraid of taking any food worried abt my future…my family my job…lost my confidence totally…..only hope is my almighty….i.m from bangladesh…

  25. zinnat ara nasrinDecember 5, 2013 at 11:30 am #

    i was a lovely fair lady….huh….fullof energy… jeal ..used to manage home n office with ultimate perfection..but my life is literally stopped in 34..what an irony..uc has shattered my life ..now im a bundle of some bones…weak,tired…cannot walk properly….my husband almost mad,my cuty kid frustrated and my parents what shoul d i say…abt them…every moment they r supporting me …but i know how mch tear they shedding on the sly ….i’m planning to go to india for better treatment ….if any of my friends help me with any info .i will be grateful….coz i don,t abt indian hospitals …..everyone in bangldesh says that i need to go to india.

    • DimplezzDecember 6, 2013 at 8:10 am #

      Hi Zinnat,
      I would advice you to take 1/2 spoon of turmeric 3 times/day mixed in yogurt or water. *1 tsp of Bael Fruit Powder (dry) + 1 tsp of Mulethi Powder + 1 glass of Water. You can check this on youtube (Ayurvedic Medicine for Ulcerative Colitis).
      Also try probiotics like VSL#3. Stop eating wheat & anything with gluten.

      I’m sure you have Ayurvedic doctors in your country. Try them first b4 going to India.
      Hope you feel better soon!

      • zinnat ara nasrinDecember 8, 2013 at 6:24 am #

        hi dimplezz,
        u r as sweet as ur name…n so kind to answer me.i will try the aurvedic n probiotic…i need to search in my country.i take barley and suji r the good ?i’m very confused abt food all day long i search in websites at times they contradictory.i take 9 mesacol+2 cortan+calcium,folison,iron….my pressure is low….70-90….weak..but after all this treatment when i see blood stained stool i get crazy…will it continue for ages dimple?or does it happen to all?

        • zinnat ara nasrinDecember 8, 2013 at 6:46 am #

          Dimplezz ,
          dear friend i had swelling 4 days back also due medicine cortan side effect…now i dont have bloody loose motion. 4 -5 times now….stool normal but at times blood stained.i’m still under doc’s bed rest .he is saying i’m doing good is it true ?i rely on almighty then the uc sufferers then on doc’s.they r so mysterious !!!

          • DimplezzDecember 13, 2013 at 2:04 pm #

            Hey Zinnat,
            Hope you are feeling better!
            Thanks for the sweet compliment friend

          • DimplezzDecember 16, 2013 at 12:35 pm #

            Hi Zennat, seems like my last reply to you was cut off.
            Anyway, do follow your’s advice but also keep trying the supplements like turmeric & probiotics. I would also suggest you start juicing
            veggies & fruits like green squash, ginger, apples. They will give good amounts of iron. The blood in stools will come on & off because of inflammation so be on a soft food diet like light soups, rice & fresh filtered juice.
            Take care & let me know if this helps!

          • DimplezzDecember 16, 2013 at 12:37 pm #

            Hi Zennat, seems like my last reply to you was cut off.
            Anyway, do follow your’s advice but also keep trying the supplements like turmeric & probiotics. The blood in stools will come on & off because of inflammation so be on a soft food diet like light soups, rice & fresh filtered juice.
            Take care & let me know if this helps!

  26. AmitDecember 12, 2013 at 10:04 pm #

    I found a treatment plan documented on the nih (National Institute of Health) website based on a scientific study of 43 UC patients. The data is good but where can I purchase these items in the U.S.? Has anyone had success with this combination of ayurvedic medicines or opinions on on this recommendation?

    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3202252/

    After confirming the diagnosis 43 patients were given the following treatment –
    Udumbara kvatha (ingredient is Udumbar tvak-Ficus glomerata) – 40 ml/two times a day
    Lodhra tvak churna (Symplocos racemosa) – 1 g + Musta moola churna (cyperus rotundus) – 1 g + Nagakesara (Mesua ferrea) churna – 1 g + Mukta panchamrut rasa-125 mg / three times in a day with water (the ingredients of Mukta panchamrut rasa are Mukta bhasma – 8 parts + Praval bhasma – 4 parts + Banga bhasma – 2 parts + Shankha bhasma – 1 part + Shukti bhasma – 1 part, processed in Ikshurasa, Godugdha, Vidai svarasa, Kumari svarasa, Shatavari Svarasa, Tulasi svarasa and Hansapadi svarasa).
    Kutaja Ghana vati (ingredient is Kutaja tvak-Holarrhena antidysenterica) – 1g / three times a day.
    Udumbara kvatha basti (ingredient is Udumbar tvak-Ficus glomerata) daily for one week and then twice a week for the next three weeks.

    This treatment was given for a study period of one month.
    Diet

    Patients were kept on pitta –shamaka, laghu, grahi and pathya food articles.

    I am unsure about what this means from a dietary standpoint but certainly this is far from the SAD (standard American diet)..

    If the patient was taking any modern medicine, doses of these were gradually reduced as the patient responded to Ayurvedic treatments.
    Criteria for assessment

    The improvement in the patients was assessed on the basis of relief in the symptoms and signs of the disease together with laboratory investigations. All the symptoms and signs were given grade scores and assessed before as well as after treatment. Changes in hemoglobin, ESR, and body weight were also recorded before and after treatment. Reductions in the doses of steroid and sulfasalazine drugs were also recorded.

    Criteria would require CBC or other blood tests to determine success rates.

  27. zinnat ara nasrinJanuary 10, 2014 at 4:19 am #

    hi dimple
    thnx ….i’m on soft food..i’m better now by the grace of allah.but i do suffer from some mental problem….i’m scared if the flare up comes again?if i maintain my food and medicine will i be able to stay fine.

  28. zinnat araJanuary 16, 2014 at 10:45 pm #

    hi dimple what sort of veggies r safe for uc..as far as i know cabbage,turnip,cauliflower r not good for ucer.what abt carrot.tomato, r the good i mean safe

    • DimplezzJanuary 17, 2014 at 12:10 pm #

      Hi Zeenat,

      I’m glad you’re feeling better now. Any veggies without seeds is good. Make sure it’s low on fiber. I prefer juicing the veggies & fruits & then filtering it.
      Yes, following your diet plan & holistic supplements, meds will help you stay f9

  29. zinnat araJanuary 25, 2014 at 7:22 am #

    thnx dimple u r so kind…..ur answer makes me stronger.but one thing comes in my mind that if diet and meds can help the ucers to stay fine then why do they face flare up again n again…why flare ups re appear.my last experience was so painful……..so painful….

    • DimplezzFebruary 7, 2014 at 12:51 pm #

      Hi Zinnat,
      How are you friend? I don’t know why the flare-up happens. It’s just the way our body responds to inflammation. Try meditation to keep yourself positive because all disease starts in the mind so try to keep it calm & happy!

  30. shikhaFebruary 6, 2014 at 12:07 am #

    hi i am shikha 28 years old suffering from left sided ulcerrative colitis for last 2 years.it is really difficult to manage disease initially i lost 7 kgs weight but manage to recover with help of gluten free diet and homeopathic medicene once but now i am again flaring less bad den previous time but it really tough to deal this time after remission can anyone suggest anything else to get into remission i cnt follow scd diet as it is difficult to manage .i hv not been on steroids for last one year

    • DimplezzFebruary 7, 2014 at 12:56 pm #

      Hi Shikha,

      Hope you’re feeling better. Try taking turmeric 1/2 spoon with 1/2 glass of water 3-4 times/day. It will help stop the flare-up because turmeric is a natural steroid without any side-effects.

      • shikhaFebruary 8, 2014 at 5:56 am #

        thnx a lot dimpelzz for ur reply .i stay in delhi and fighting wid dis disease everyday like u all.i will surely follow wat u hv advised.i would like to ask u wat type of ulcerative colitis u are suffering from and do you follow any special diet . as of now i am flaring hope to get in remission .really wish we all come out dis ordeal in our life soon.:)

        • NileshFebruary 10, 2014 at 5:39 am #

          Hi Shikha,
          This disease treats everyone differently. I am doing well (By God’s Grace) after being down for 5 months, bled continously for first 3 months. I lost 15 Kg (89 to 74)
          I managed my colitis by 2.1g x 3 of Balacol(Balsalazide) and VSL3. NO other meds. Then during the course, my symptoms started reducing. By 5th month, there was no bleeding and It is 10 months now. Apart from the eventual feeling of something healing in left side of stomach, I do not have any symptoms. I am back to normal diet. I reduced the dosage of Balacol, without the consultation of GI, from 9 Capsules a day to 6, then to 4, then to 3. Now just take 2 or 1 capsule a day. I mean, I am afraid of the disease. Once I was away and forgot Balacol at home. I took Mesacol(4th Month), my symptoms returned with traces of blood, mucous and pinching pain, and it took good 20 days to subside. Since then, I havent slipped my meds. I dont what good a single capsule of Balacol will do. But I just take it. I have regained 7-8 Kgs and much fitter now. I didnt follow any specific diet. Just experimented.
          May be my story will help you.

  31. zinnatFebruary 10, 2014 at 10:31 pm #

    everyone talks abt VSL#3 but my doc says it is not scientifically proved that probiotics do any good to uc.anyway may i know it’s price.i’ve searched it in my country bangladesh but not getting.

  32. Pawan Kumar PrajapatiFebruary 11, 2014 at 7:45 am #

    Hi All ,

    I also suffered with UC for almost 7 Years .

    But my Suggestions for everyone is go with Ayurvedic .
    There are very good medicine in ayurveda . Initially go along with normal treatment . Control your diet 4 sure as incurable disease only control is there to live happy life .
    Slowly everything will go .
    Consult some good ayurveda DR.
    For query contact me on 8588828039.
    I am from Delhi India .
    Email : Mailpawan4@gmail.com

  33. shikhaFebruary 11, 2014 at 8:44 am #

    Thank you neelesh for your reply actually i am taking maesacol 1.2 gm 2 times a day as my G.I suggested me so. He dont want me to take steroids and bunch of more medecenes as he is family friend, therefore i don’t take steroids because of deadly side effects and take homeopathic medicenes as well . i am not on completely gluten free diet but yes to a certain limit, homeopathic treatment has helped me to come out of flare once but my symptoms return like anything after 2 months .yes i know dis disease is wicked :) in a manner and differnt for anyone. i hope u continue to do well and be symptom free . I really appreciate ur advice.I really Hope to get symptom free soon. wish luck to everyone fighting with UC . everyone must remember that . GOD MADE NO LOCK WITHOUT KEY WE JUST HAVE TO FIND ONE :)

  34. FahadMarch 7, 2014 at 7:16 am #

    Hi everyone , I recently diagnosed with uc after 6 years of taking medication of piles, even surgeon planned my surgery for piles. So first I learned don’t rely on one doctor alway take second opinion from specialist and don’t avoid investigation.
    Seccond learning is avoid too much tension anything just believe in “Life goes on” it never stop because u r in tension.
    Now I’m on wyslone 20 mg bd,mesocol 800mg tds,ciplox tz bd ,folvite od. VSL3 bd.
    With this I’m relieved now , however I’m quite confused about my diet plan . Now I’m on rice
    and moong Dal,pomegranate .
    After few day I’m planning to consult senior unani doctor of Hamdard hospital in Delhi .

    I will share all the information and recovery process to you all . Inshallah and I have believe I ll be recovered soon and share some inserting updates about this.
    I’m planning to start a website totally dedicated to UC for patients to get right advice ,proper treatment plan ,diet plan and don’ts in UC.
    Need your wishes.
    Bye . Live positively .
    Fahad

  35. shikhaMarch 14, 2014 at 8:44 pm #

    hi fahad i wish for ur speedy recovery.one more thing is that no specific diet plan works for dis disease so u have to discover ur problem food urself but of course milk and its products are a big no for dose with uc.i would sugest that try not to be wasylone dependent.good luck to you.

    • FahadMarch 14, 2014 at 10:36 pm #

      Thanks Shika for you reply and support. You are absolutely right in diet . Something suit me may not suit other . Yesterday I had threptin biscuit , I had a severe pain in stomach after meftal spas and voveran inj. I got relieved.

  36. shikhaMarch 14, 2014 at 11:53 pm #

    hi fahad my suggestion to you is plz dont take any form of pain killers as dey worse the condition of colon and may contribute in formation of more ulcers. i also suffer from migraine sum tymes but avoid painkillers as suggested by my homeopath.. try marie biscuits or glucose biscuits dey suits me. avoid high fatty food during flare.rice is no harm as far i noticed. take care

  37. Sampathkumar RMarch 24, 2014 at 9:18 pm #

    HI Pernita,
    I am from india, Tamilnadu. Me too suffering from UC from 2009,Dec.
    I would like to share something.
    First we should understand ourself.
    We should be mentally fit.
    We should not give up our confidence.
    we should not get tempt on, the things which is not suitable to our body. No fibre foods. Eat fruits lot.
    We should not think about our disease (UC).
    We Should consider UC also part of body, like legs, hands, eyes etc…
    Do meditation, yoga and concentrate on something which can make us forget about UC.
    Play with your kids, sleep well, dont skip your food and have it on time.
    Pls come out of things, which can create stress to us.
    Give marks to your confidence level, day by day.
    Dont do work, which is creating much physical strain.
    Make your self comfortable, you have to lead little sophisticate life.
    All the best for your future. Nothing to worry. Bless is there for your happy life.
    Futher any info, pls feel free to contact (mahaanrev@gmail.com)

    • RituApril 8, 2014 at 1:51 pm #

      Hi everyone…me too is a sufferer of this terrible disease..I am 39years old a year and a half back had my hysterectomy done and within three months I was detected with left sided UC. Due to this had to resign from job, was completely left drained out had lost my selfconfidence….took one whole year to go into remission..just thought life is coming back to terms and then again had a relapse….currently on asacol 400 three tablets thrice a day. And prednisone which I willbe tampering off soon….diet is bland food rice based….strictly avoiding gluten….please guide me what else can we add to our diet….

  38. shikhaApril 8, 2014 at 11:47 pm #

    hi ritu i m too suffering from left suded colitis from past 3years. Its good if u r on gluten free diet and u can manage it. No specifuc diet wirk for dis disease it is different for everyone.my suggestiin fir u is u can start homeopathic treatment along wid ur allopathic treatment ut will di no harm and will naturally correct ur immune system which is a main culprit fir dus disease.one more thing is try to deviate mind frm dus disease and move on wid normal life as this is stress related problem too.plz rejoin ur job if possible as dis disease want to control u but dnt let it win over u. One more thing is u can aviid dairy an milk which also contribute to flare. Gd luck an be blessed. Biee

  39. rahulMay 7, 2014 at 1:35 am #

    i was a patient of uc. I suffered for almost 6 years. I took all the medicine that u are taking now like wysolone , mesacol od , colorex etc. but these only alleviate my problem but did not cure it. As allopathy works on symptoms , it does not work on the root cause of this disease. as per my research it is a disease of excessive heat in the colon. So i took bael(aegle marmelos) sharbat and liv. 52 ds tablet. liv. 52 works on the root cause that is heat or toxins in the body. In beginning liv. 52 ds tablet causes some discomfort like cramps and diarrhea but it should be continued as it can cure your uc. As it has cured mine. u must start doing jogging, walk or any other activity bcoz these exercises help liver in getting rid of toxins and heat in your body.
    dosage of liv. 52 ds tablet
    2-2 tablets morning and evening after food. or can be taken with water when u experince cramps. it will take time but will undoubtedly cure uc. please follow this suggestion.

    person who have taken steroids may develop cramps. bael sharbat must be consumed to repair your colon.

    please comment if anybody gets relief from this.

  40. SMMay 8, 2014 at 4:58 am #

    Hi All,

    I am writing in after a long time. In the past few months I have been through a few minor and 2 major flares. However, for the last 3 weeks I have been in a very bad shape indeed. My stomach has been bloating and I am completely stressed out. It does not help that my husband has been behaving like a consummate asshole as always. I can related to other people who say their spouses do not treat them well when they fall ill. The main reason for my condition has been a stressful married life for the last 24+ years. It may be of no surprise to you all that how much stress aggravates this condition. Single handedly I have run my life and reached where I am today, with support of my parents and children. Have taken care of everyone in the family when they are unwell. But when I am unwell there is no one except my kids to look after me. Stupid ranting from a grown up woman. But problem with this disease is that outwardly you look fine to the world, but the fatigue due to poor absorption of nutrition is not a measurable symptom. I do Leadership and Transformational Coachings as a corporate head. But believe me, life is extremely tough during a flare. The psychological impact of this family of diseases is immense.

    Good luck to all of you. Apologies for the long vent.

    SM

  41. shikhaMay 16, 2014 at 4:02 am #

    Hi all , really sorry to hear ur story SM i pray for u an everyone suffering from dis disease as this disease is alsi a major set back of my life i was 25and full of life till i was diagnosed wid dis disease i had many flare ups having left sided uc.i am 28 now an my parents want me to get married asap but i m scared coz of my uc. Any inputs in dis will be appreciated . I think it is hard to find smone who undesrtand my problem which superficially seems ok. I am confident and independent girl but scared to add smone stranger to my life . What should i do??.as of no.w. i am flaring , on mesacol and homeopathic medecenes

  42. PradeepMay 31, 2014 at 4:16 am #

    Hello

    I have UC from past 1 and 1/2 years. I have relapsed no of times in this time period. This time i relapsed after having wine & falooda the very next day. I am taking 3 mesacol 1.2 OD tablets & 1 suppository in the morning(also on homeopathy medicines on & off). So this time i had reached 4-5 BM’s every day & i knew my doctor would put me on steriod enema to control it. Some had suggested Bael fruit here & i did some research & took bael leaves powder & it reduced my BM’s from 4-5 to 2-3. I am also taking home made bael fruit juice & this helped in taking down my BM’s to 1-2. This is the first time i am able to control my motions without steriods enema. I am very happy that i have found this bael fruit & powder solution for my problem. This can lead to bloating & is not recommended for pregnant women. I am taking it alternate days. I am also taking pomegranate juice on alternate days. Last relapse lasted for 3-4 months & i lost lot of wight because of it. This time within 15 days i have controlled it.
    Regarding people facing marriage issue, i would suggest u let the person know that you have this problem & you are in control of it . If the person accepts then good or else move on.
    If you are eating outside food then you should avoid food where contamination is more like chutny, cold food, road side, dairy products like falooda which i had. Eat from the good place if you feel like eating. Also take alternate medicines because there is no cure in allopathy. It can just manage it.
    Dont worry about UC,know your body, be calm & enjoy your life.
    Take care!!!!

  43. Ashish PatelJune 10, 2014 at 12:41 am #

    Hi All, I am doing better. Grace. Grateful to God.

    I am Prednisolone 25 mg (of course with taper).

    As usual I am continuing with this Ayurvedic Remedy.

    One glass of water with two spoons of Bael Fruit Powder and one spoon of Mulethi Powder. Mix it well, keep it aside for 5 minutes and then sieve it with a strainer. Have it every morning empty stomach.

    Please contact me on 09712190687. I would like to share information and some warming chat.

    Best wishes and prayers.
    Sarve Bhavantu Sukhinah.

    Ashish

  44. shikhaJune 11, 2014 at 8:54 am #

    Hi everyone,
    I hope everyone is doing fantastic. I thank people here to give me right suggestions as and when required now i m more confident about my disease and no more depressed on why dis happened to me.I have also decided to face marriage issue more confidently now. I would like to ask Mr. ashish patel that from where do u purchase bael powder as i dont know any shop here in delhi .currently i m having bael juice as suggested by many people here which is indeed a great help to control my symptoms. Currently i m not on steroids and dont wish to start them anytime in future. Take care everyone …..Live a positive life

  45. RituJune 19, 2014 at 4:13 am #

    Hi, anyone from Delhi?? Pls help me as of where to get bel Sharbat and bel powder and can we make bel juice at home??

  46. Alok SinghJune 20, 2014 at 12:07 am #

    I have been diagonised with UC just 7days back. I am at steroids now. I lost 5 kg weight. Feel very week and low. Please help.

  47. shikhaJune 22, 2014 at 8:39 am #

    Hi ritu hope u r feeling better now. I dont know about bael powder but u can make bael sharbat at home very well. i am also from delhi and make it in my home itself. u can purchase bael fruit in dis season from sabji mandis anywhere it is very easily available. u just take out pulp from fruit mash it smoothely and then add water in it ,make it little bit thick not totaly watery and then seive it in atta channi(seiver). add some sugar if required drink it empty stomach in morning. u will notice formation of stool becoming better and constipation will releive too. dont loose hope . i want to ask u from where in delhi u r taking treatment if u want to tell. Stay positive and active take care.

  48. shikhaJune 22, 2014 at 8:45 am #

    Hi alok,
    I am also suffere of ulcerative colitis for last 4 years . Dont loose hope and try to accept this disease. Try to avoid things with gluten in it that is : maida and wheat . . Avoid milk and milk products,fried foods as dey contribute to flare majorly. Add rice and its products to ur diet dey will do no harm and stool formation will improve. Tke bael sharbat to ur diet in summers it is natural anti-inflammatory .One suggestion is start homeopathic treatment along with ur allopathic medecenes initially as it will help u to get rid of steroids which has deadly side effects in the long run. Stay healthy and stay positive take care

  49. RituJune 24, 2014 at 5:01 am #

    Thanks Shikha…am soon shifting my base to Delhi that’s the reason I inquired. When in Delhi once had shown to a Gastro in Medanta…his name is Dr. Navneet Ahluwalia, a good doctor but has left Medanta now. regarding homeopathy if u know someone good then pls suggest the name. I too want to get rid of these medicines they r taking a toll on my health bcoz of their severe side effects. I have basically left wheat gluten from last one year..rice is working fine with me till now. but I recommend coconut water once a day preferably early morning empty stomach, it too keeps ur stomach cool….will definately try bael sharbat once in India. I try to keep my self calm but at times this disease keeps showing its horror side….hope the medical science finds a permanent cure for us all (sufferers) soon….

  50. shikhaJune 25, 2014 at 9:13 am #

    Hi ritu ,
    Its good if u are on gluten free diet as it works best with homeopathy. If u wish to continue with homeopathy i would suggest you Dr. amar homeo healers in delhi . U can check out details on their official website . I am reffering to dr.amar he is amazing doctor though i am also continuing wid my allopathic medecenes but by god’s grace i am not on steroids. I am taking mesacol 1.2 gm twice a day along with my allopathic medicenes and eating almost everything excluding green leafy vegetables, milk and deep fried things. yes i am avoiding maida to some extent but can eat roti once a day. This is all possible due to his homeopathy coz dere was a tym when my hemoglobin was falling continously. Homeopathy if started along homeopathy can help u control ur disease if not cure. It can correct immune system naturally which is main culprit of dis disease. As far as i m concerned i would suggest u not to have coconut water as long as u think it suit u completely as it is amyth that it is a coolant coz i know it can form acidity if taken empty somach. I wish someday i can leave allopathic completely. Yaar dont loose hope coz everyone has their set of problems trust me optimism will help u a lot as it has helped mine. i was very pessimistic once which only worsen my condition. I have been to major hospitals of delhi,2 colonoscopies including AIIMS but every doctor answers same that it is lyf long problem. u do consider homeopathy when u visit delhi i will help u if u need. Take care .STAY HEALTHY…. CHEER UP …GOD MADE NO LOCK WIDOUT ITS KEY…OM SAI RAM

  51. RituJuly 1, 2014 at 8:33 pm #

    Hi Shikha, thanks for all those kind words and suggestions. Am in Delhi now and can find plenty of bael fruits all over. Kindly suggest how much quantity should we take and how many timesin a day???? Is one fruit enought for one day??? Do reply…..waiting……

  52. shikhaJuly 2, 2014 at 8:12 am #

    Hi ritu,
    you have to take ripe fruit and u can make approx 4-5 galsses of juice out of it u may store it in fridge for 1-2 days maximum. I take one glass empty stomach in morning and one glass in evening after returning from office. U first try it and then decide how much quantity suits you it acts like a colon cleanser more or less like isabgol help to get rid from constipation. As this disease acts differntly for everyone u decide once u start benefitting from it that how much quantity suits u.One important thing is dont make juice too thin in consistence slight thick will be effective. gd luck……biee

  53. RituJuly 2, 2014 at 11:05 pm #

    Thanks Shikha, hope others in the forum will also benefit from your suggestions. Your positive words r really making me think positively and I agree with what u say that God made no lock with out a key. Stay blessed always…

  54. monishJuly 13, 2014 at 9:41 am #

    My wife is suffering from uc for past 3.5 yrs . Whenever wysolone is stopped, there is flare , then wysolone 40 mg is statrted n slowly tappered, now doc has said for surgery or remicade, pls suggest good Ayurvedic doctor or hospital.
    rgds
    monish

    • rohitJuly 16, 2014 at 9:02 am #

      hii monish, even i am suffering frm UC. i was cured after six months as per endoscopy results there were no wounds on my large intestine, i stay in pune and even i was suggested for surgery but later on there was no need. So if u stay in pune or can cm 2 pune, visit doctor vinay thorat next 2 oakwood hotel bhandarkar road.

  55. monishJuly 17, 2014 at 2:17 am #

    thanks rohit for prompt reply.

    thanks for the information . what is dr thorat’s line of treatmeant . as my wife is taking meascol, wysolone, azoran . kindly advise , anybody who has been treated / is under remission for long time . pls advise

    a special thanks to this site

    rgds
    monish

  56. rohitJuly 17, 2014 at 2:47 am #

    hii, monish
    Now i dont know the line of treatment he will provide u with as every case is different, but i can assure u that under his treatment ur wife will feel much better and will cm back 2 normal life. Even i am on sazo 1000 and azaron but there are no symptoms such as bleeding, increased stool frequency, pain,etc. i had UC in 2010 but after 6 months i was cured he stopped my medicines permanently but before 5 months i started 2 bleed, but i visited him once again within 4,5 days again every thing came bck 2 normal, its just thsese medicines he wants me 2 cont for precautions thats it.

    • ankitJuly 25, 2014 at 2:49 pm #

      Hi all.. i am ankit from new delhi… I have ulceritave colitis and being diagonsed last year… My story is like this… I hve always been an IBS victim and nvr had loose motions but constipation… I ws in amsterdam since 2 yrs and there i got my flare ups… Sadly doctors there are so stupid, they considered it as allergy… I ws continously on loose motions with blood for 2.5 months without any medicine … Approaching hospitals was also tough there… But then i got bck india and got diagonosed… It ws really scary… Initially ws on pred and mesacol… My symptoms vanished and i ws totally normal… Tking normal diet with less spices which helped me a lot…. Then my posting was done in jaipur nd here it came again with the rajastani high spice food :(…. Its been now 5 months, things r not well… My doc nvr wnted to gimme me steroid , but unfortunately he has to now… He is very good and counsel me very well… Anyway now again i m tking prednisone since a week… But its nt wrking as such… Also started homeopaethic … Lets see if it works…

      One thing, knowing each other would really help in this case… So i really request to stay in touch

  57. monishJuly 26, 2014 at 5:29 am #

    hi all

    anybody here have been to P D patel ayurved hospital, nadiad , gujarat .
    they have done 2 studies on uc 1. effects/ 2. management of uc thru ayurved.
    kindly advise

    rgds
    Monish

  58. AnandJuly 27, 2014 at 10:40 am #

    Hello every one, My mother has been diagnosed with UC some 14 years ago, firstly it was in small part of large intestine but now it has grown to the complete large intestine, and she has been in pain all through out, she has been undergoing treatment in Apolllo Chennai, and CMC vellore, but with no encouraging signs,
    The symptoms subside over a period of time but comes over again and each time with even greater impact, she has had blood infused several times.
    She has tried Elopathy ayurved and homeopath each seem to work for a certain period of time but none has given a permanent result.
    initially doctors had prescribed wysolone for some time to exaggerate the effects of other medicines including mesacol but for the past 10 years she hasn’t used it.

    Even today she is on her way to Apollo chennai I cannot se her suffer any more, if someone has any suggestions please suggest,

    thanks in advance,
    Anand Kumar,
    Ranchi

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