Ulcerative Colitis Tips


The FREE iHaveUC eBook "Ulcerative Colitis Tips" is made available to all members of the 15,000 person newsletter group INSTANTLY. It is several pages of tips gathered from other people living with Ulcerative Colitis, and has ideas which can be put into action immediately. You will need to enter your email, and confirm the email address afterwards.

Looking to the Future

Introduction:
I’m a 51 year old female who was diagnosed last year (finally) with microscopic colitis. It was about half my life being treated for IBS instead. I have a wonderful, patient husband (of 7 years), 2 grown children and 3 beautiful granddaughters. I work full-time and my husband and I try to be as active as my condition will allow although lots has changed since my diagnosis. I live in Indiana, have all my life.
My Colitis Symptoms:
pain (on and off)
diarrhea usually 2-5 times a day sometimes severe other times not too bad
don’t want to eat because I know what will happen (bathroom)

My Story:

I don’t know if my microscopic colitis is the same as ulcerative but don’t think it’s as severe. My doc has had me take Entocort to put it in remission (which helped while on it but that was all) Am currently taking Lialda. I just want to get my life back without being centered around a bathroom and feeling bad. I have started the SCD diet & that seems to help and I feel better on it. My problem is my doc believes Lialda is the answer even though it hasn’t completely stopped the diarrhea like it should. Instead of trying different things he wants to run more tests. I am never an easy medical patient for anything I have had in the past. So this doesn’t surprise me that I have trouble controlling this. Guess I am looking for hope that it gets better. My husband and I haven’t been married too long and I want to enjoy our years together happily and healthy since we met so late in life. I’m tired of the frustration, tears and uncertainty of what the current and future holds.
I was wondering if menopause has caused any other women issues with their symptoms?
Also what helps to soothe your butt area when it gets irritated from so much diarrhea?

microscopic colitis
I have a hard time talking to people about this and I know my husband has heard it all but it’s not an easy subject to talk about to people. Has anyone talked to their employer about this? No one at work knows. I’m sure they speculate on my many bathroom breaks. Can it affect my performance reviews? Don’t want to have to tell them.
Do support groups help? There is 1 in my area but I have not made it to the meetings yet.

Where I’d like to be in Un Ano:
Living life to the fullest. Motorcycle rides, spoiling granddaughters, just living again without concern or fear of accidents and bathrooms. If I have to be on medicine that’s fine as long as I feel its doing something to help me. Planning our retirement in a few years with all possibilities available.

My Colitis Medications:
Entocort – worked while on it but made me gain weight, which I don’t need help on at all.
Lialda – has helped with pain and somewhat eases symptoms sometimes but not as satisfied as I was lead to believe I would be

written by Sharon

submitted in the colitis venting area




menopause, microscopic colitis

6 Responses to Looking to the Future

  1. Adam
    Adam July 5, 2012 at 10:38 pm #

    Dear Sharon,

    Thank you so much for writing your story. I hope you get a laugh out of the comic I made up for you. Truth is, I had a pretty incredible summer living in Indiana about 10 years ago and working graveyard shifts at the Kroger Grocery store down in Bloomington… not sure if you were ever a customer there or not, but I’d be lying if I said I didn’t miss Indiana.

    Anyways, I think you should give a read to the biggest survey we’ve completed so far on the site. A few weeks ago, I published the UC work survey which 176 different UC’ers took part in to help people like you out with questions about working with UC. Anyways, here is the link to that survey: http://www.ihaveuc.com/176-patient-colitis-work-survey/

    Also, I wanted to chime in on support groups. That’s often a big question, and I think it might even be the topic of a future survey since so many people have questions/concerns about them(myself included). But here’s my two cents:

    I a major advocate of people with UC trying their hardest to meet in person others living with the disease. Yeah sure websites are great and all that, but they are absolutely nothing compared to meeitng other UC’ers in person. I myself am getting really pumped to meet some new UC’ers in the not too distant future, and I know it will be just as incredible as the UC’ers I’ve met so far. I’d highly encourage you to take that opportunity if it presents itself to you. As for expectations, I’d recommend not having too many in terms of meet ups. It’s hard to say what you can expect to hear, see etc… But, even if you meet just one other person who has some things or parts of UC in common with you, I’ll bet all the corn in Indiana that you’ll be super happy with your time and effort in making it to a group meeting. Who knows, you might even run into your old high school english teacher sitting right next to you…No lie, that happened to me. She was sitting right there and sure enough she had colitis too.

    I really wish you the best Sharon, with your UC and with retirement, your husband and everything else that’s important to you. And if I’m ever out in Indiana, i’m giving you a shout, maybe we can hit up a support group together or make our own!

    -Adam

    PS, you can go to the top right hand side of the website and type in the “search” box menopause to see what comes up from the other 1200 pages on the website where that word was mentioned so far.

    • Naomi July 27, 2012 at 3:23 am #

      REPLY TO LOOKING TO THE FUTURE. I AM A NEWBY TO THIS SITE. DIAGNOSED IN 1988. TOOK ME ABOUT A YEAR PRIOR TO THAT TO PLUCK UP THE COURAGE TO TELL ANYONE ABOUT THE BLEEDING. ANYWAY, AFTER MANY YEARS OF VARIOUS TREATMENTS I FINALLY HAD TOTAL REMOVAL OF COLON, RECTUM IN 1999. WHAT A SHOCKER BUT WHAT A GREAT DECISION. HAD A BAG FOR THREE MONTHS AND REVERSAL THEREAFTER. FUNNY THOUGH IT DOESNT END THERE. MUCH BETTER QUALITY OF LIFE BUT FOR ME I DEVELOPED IN RECENT YEARS FISTULAS WITH ABCESSES WHICH IS NOT NORMALLY COMMON WITH UC PATIENTS NORMALLY MORE COMMON AMONGST CROHNS PATIENTS. HAD AT LEAST TEN OPS ON THE FISTULAS WITH THE LAST OP DAMAGING MY SPHINCTER MUSCLE SO NOW I HAVE INCONTINENCE. YOU WANT TO SOLVE NAPPY RASH, APPLY BARRIER CREAM EVERY DAY, IT WORKS A CHARM. BUY ANY BABY CREAM. AS FOR EVERYONE WONDERING ABOUT FREQUENT TOILET TRIPS, KEEP THEM GUESSING. I USED TO SNEAK AWAY TO FIND THE MOST REMOTE TOILET POSSIBLE, NOW WHO CARES, LET THEM THINK WHAT THEY WANT. CANT AFFECT YOUR WORK AT ALL. I MOST PROBABLY WILL HAVE TO REVERT TO THE BAG BUT FOR NOW I AM CONTINUING AS IS. ONLY WANT TO GO THERE IF I ABSOLUTELY HAVE TO. PADS PULL UPS, WHATEVER IT TAKES, I AM DOING IT.

  2. Jody July 6, 2012 at 11:33 am #

    Hello Sharon -Your story mimic’s mine so closely that I was drawn in to your story and just had to share, I hope this helps

    • Sharon July 15, 2012 at 10:53 am #

      Hi Jody:
      Thanks, hate to say it but it’s nice to know there are so many out there suffering with this too. I truly wish none of us were but it’s good to have people to vent to and possibly help with ideas and thoughts. Keep me posted on how you are doing and I’ll do the same. I’m from Indiana how about you??

  3. Maggie July 6, 2012 at 8:33 pm #

    Hi, Sharon. I am a post-menopausal woman, 61 years old and still on HRT probably for the rest of my life. Personally, I don’t believe in a correlation to menopause and UC because men get it, too, at any age and they don’t go through menopause, or at least not like us. But having hot flashes seems like just another problem on top of all the others we have along with UC. I love the cartoon Adam added to your story–where would we be without humor. Good luck to you. P.S. Tomorrow I’m going on a motorcycle ride with my boyfriend for the first time in years because I also have arthritis but we gotta live a little, right!

  4. TiiniTete
    Tiinity July 8, 2012 at 10:09 am #

    Hi Sharon,

    I do believe that menopause will/can affect the colitis. I’m only 30 so have to personal experience but during my periods it always makes symptoms worse. So I do believe in hormonal imbalance is a factor. And for me I am going to look into this a bit more with reading up on adrenal fatigue and similar issues. For me it feels important since I didn’t have any kids yet and I know the hormonal levels will be a bit different during this time and thus I am expecting some problems to occur during the time of pregnancy/breastfeeding/stopping to breastfeed.

    Something soothing: I hava an aloe vera gel which was very soothing.

    All the best to you!

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