Lonely 12 Year Old UC Sufferer

Meet “Helpless Mum”

Mother of 12 year old with Ulcerative Colitis. Has had since approximately 2 years old. Usually he is in good health with very occasional relapses and is very active.

Lonely 12 Year Old with Colitis

My 12 year old has just had a relapse and is tailing off his prednisolone,at times he has quite a bit of abdominal pain.Usually it is wind but takes time to pass.  Can anyone help with this any ideas, remedies. The doctors suggested a paed does of laxatives but very reluctant to give as he is not constipated and don’t want to irritate anything.  Have tried eliminating things from diet but symptoms remain same no matter what.  I feel so helpless watching him at times and I cant help other than hot water bottles and to rub his back or tummy.I feel I am hitting my head of a brick wall with my GP ,IBD nurse and consultant .Not only is it making him feel very down and the why me has started I feel very upset too as I feel I can’t do anything to help him.He knows of no other suffers his age and feels everyone is only interested in Crohn’s.  HELP me

He is a very picky eater but can have a good appetite when he feels like it.Other times a bird would eat more than him.He has grown up so far never knowing his life to be anything different and UC has always been apart of it.But when he asks why me and not my brothers what do I say ?He is a lot smaller than they were at his age and his little brother will soon over take him in height too .Will he catch up?

Again I feel so helpless what do I say.I research daily until my head hurts to try and find some answers.But most of the time I could just sit and cry I feel I have failed as a mother ,I am meant to protect my children but I brought him into this world he has my genes so it is my fault he is suffering this horrible horrible disease and I can’t do anything to make it go away .:(

written by Helpless Mum

submitted in the Parents Venting Area