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Living with UC

Introduction:

My name is Lynsey. I am 25 years old and was just recently diagnosed with ulcerative colitis a few months ago and am still trying to get it under control.

Symptoms:

contantly needing the washroom, still have blood in my stool and am constantly tired. Food seems to go right through me.

My Story:

I was very sick and getting worse and worse all the time and I could not figure out what was wrong. I was very concerned about the large amounts of blood in my stool yet was very embarrassed to tell anyone for the first little bit. I was sick for 2 months before I got into see a specialist, I had a colonoscopy with no sedative and it was awful. It was 4 months ago I diagnosed with UC and have been on medication since. I was on prednisone for the first 2 months after being diagnosed and I will be on Salofalk (5-Aminosalicylic Acid) indefinitely.

I am still trying to accept that I have this disease and am still trying to deal with getting it under control. My boyfriend has been really great with making sure I am eating right and when i’m down and upset or depressed he always knows just what to do to make me feel better. Sometimes I will think I can get away with eating just a little bit of something bad but regret it so bad afterwards. I have recently started a food journal and am really trying hard to stop this vicious cycle. My family and friends have been great to talk to when I need them but they can only help so much because they are not living with this disease and don’t full understand how I feel. I am just happy that they have all been there for me when things get a little rough.

Something I have noticed is my joints are very sore all the time, I’m very tired and am just starting to get color back in face, I was white as a ghost for a while. The thing that scares me the most is the thought of surgery, I never want to get tp that point. I’m only 25 and its really unfair that I have to live with this forever.

Where I’d Like to be in 1 year:

In 1 year I would hope my UC has gone into remission and I no longer have to plan where i’m going or always needing to be close to a bathroom. It’s very inconvenient.

written by Lynsey

submitted in the colitis venting area