I am so glad to have found this site! Although our bodies are all going through a terrible time it is a real comfort to know I am not alone. I was told i had UC after the birth of my second child 6 yrs ago. I was on Pentasa for about a yr and weened myself off it, was trouble free for 5 yrs (except for a few horrible stomach gut wrenching cramps over the yrs that lasted 2 hours in length ea time and i could contribute to certain food i ate) Diet is key I avoided beef and anyhting with seeds in it .
Recently though after a terribly stressful time in life (job changes money issues ect) my body broke down. I thought i was dying, my legs and knee joints were so sore I could barely walk, loose stools , and major weight loss. I could not relate the symptoms to ulcerative colitis as my doctor had no idea and just prescribed me Ativan and I couldn’t find any relation to UC on internet sites. So Frustrating that doctors are not up to date on digestive problems. Finally had my scope and they prescribed me Prednisone ..i have to say it was a Godsend for me right now as the leg pain is GONE!! My bowels are just starting to come around ..I wanted to YELL in the street ” I had a hard poo !!!!” lol.. I guess my main concern is what to eat?? I need to gain weight back as i am down to 108 pounds. I should be 130. Everything i read is different. I went on Help for IBS.com and it seems easy to follow, offering recipes and guides to soluable fibers that are good for us and digestion. However a lot differs from the diet Adam recommends, like white breads ect . I have an apt with a dietitian this week hopefully she can help . I love what the Predisone has done for me now but i don’t want to stay on it forever. Biggest frustrations: staff in the scope wards should be knowledgeable on diet for UC patients and there should be a handout on what foods would be good to eat after scope (after cleaning out your system we are weak and hungry and they give you nothing to follow) I would have loved a big mac !! I am glad to read the stories on this site I just pray for happy results for us all.
(Thanks for your story L.M. We wish you good luck. Have you full on tried the SCD Diet yet?)