Kidney Problems and Lialda:
I have been battling this disease for awhile now and I just try to not think about the long term effects of what is happening to my body. I recently was hospitalized for 5 days for acute kidney failure. The doctors are unsure if is is due to long standing dehydration, another autoimmune disease, or my longterm use of Lialda. There is a small percentage of people that develop kidney probs with lialda and I may be one of them. The doctors are trying to get me on remicade ASAP and stop lialda to see if my kidneys start to function again. I’m only 27 and this is very scary for me.
Has anyone else experienced a similar reaction?
I have had every test run and still the doctors are unsure what to make of it. I am very concerned with starting on remicade because I always seem to get weird or rare side effects associated with medications. Also since I work in a hospital as an RN I am exposed to all sorts of infectious diseases and It seems like a bad idea being on an immunosuppresant and being in that environment. I worry that my manager and staff will treat me different because I will not be able to take many of the patients on our floor due to my risk of infection. Please let me know if any of you have had a similar experience or know someone who has. I had recently started the scd diet prior to hospitalization. I am going to continue it and hope it works. I was hoping to have more time prior to starting remicade but it is somewhat of an emergent situation. Wish me luck and I hope that the remicade works for me and does not cause a bad reaction.
Pentasa- did not work
Prednisone- good results, horrible side effects
Lialda- Kinda works
Rowasa enemas- take nightly and helping but not a long term medication
Remicade- soon to start and scared to be on
written by Andie
submitted in the Colitis Venting Area