INTRO:
My name is Jamie, I’m from Dublin, Ireland and I was diagnosed with Ulcerative Colitis in September 2011 and since then been trying to find something to kick the crap outta my symptoms.
SYMPTOMS:
last time I was just starting to get worse, but since then things have taken a turn for the worse.I was put on a course of oral steroids, 40mg tapering which literally had no effect, my doctor got worried.
I thought the next step would be azathioprine and steroids, but that’s when my doctor told me “we only give that to people who are well, it wont make you well, it’ll keep you well.” which wasn’t so re-assuring.We agreed to do nothing for the moment, but then a week later my symptoms had progressed aggressively.
doing nothing and hoping for the best was no longer an option.After a lot of hard thought, I decided that Remicade was our next course of action.
I was tested for TB the same day and within a week I was sitting in the infusion room.
This has literally just all happened so incredibly fast I don’t even know what to make of it.
Remicade was something I didn’t want to try, ever! and never wanted to hear the word being used for at least 5 years. now I’m worried that the treatment might not work, it’s early days yet, I only got the infusion 3 days ago, but I’m starting to feel slightly well again but that could be the steroids. (back on 40mg, tapering by 5mg every week)
This is what I need from my fellow colitis type people who are on Remicade.
How long before you noticed it started to work/ did it work at all for you?
Any side effects I should be worried about?
How it affects your life (eg. what can’t you do because of infusions? does infusion dates mess up your plans ect..)
Where I want to Be in a Year:
well.
that’s all I want to be.
Colitis Medications:
Prednisone 40mg tapering by 5 every week.
Mezavant XL (Lialda) 4800mg daily
Remicade 5mg per kg of body weight.
written by: jamieislame
submitted in the Colitis Venting Area
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GREAT SOURCE of REMICADE INFORMATION:
iHAVEUC 35 Patient Remicade Survey – READ MORE (completed Oct. 3, 2011 by website users like YOU!)
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I’m From Dublin, Ireland
Back in November 2010, I noticed some changes to my bowel habits.
Before this, my bowel motions were pretty much once a day, normal motions, but on November 5th I started to get looser motions, which became more frequent, at the start I thought this was absolutely nothing to worry about, and within 2 weeks it sort of returned to normal.
