(I’m a 25 yr old mother of a tornadolike 1 year old and Diagnosed with Indeterminate Colitis in January of 2010. (marker’s for chrons and UC present, they left diagnosis open so insurance would pay for any type of meds that work). Went off of Apriso to try SCD.)
My SCD progress has me very frustrated at the moment and I need some advice and/or encouragement! At first the diet had me EXTREMELY excited, so I think I’m crashing hard from that high. I started the diet Hardcore style September 1st which was the same day I completely eliminated meds. The two weeks leading up to that day I had entirely cut out caffeine (August 23rd ) and gradually started eating only SCD legal foods except trace amounts of “no-no’s” found in condiments, seasonings, marinades etc. Also, weaned my medicine down making myself ready to jump all in September 1st. So September 1s t came and I started journaling results and food intake from then on.
My results were remarkable. The first 2 ½ days I actually got worried because I didn’t even have a bowel movement period! Then when I did, it was really solid. My meds that I had been on since January had been able to make my BM’s solid but not this solid, my cramping was gone, gas gone, headache’s diminished, hot flashes gone (meds I think caused those?), and energy was high. My stools were even borderline too solid at some points! I don’t know how to explain it but there once upon a time was a day that I actually enjoyed pooping! It was a long time ago feeling to recall but I could tell the digestive process going on inside me while doing this diet was how it used to feel pre-IBD. The only lingering problem was the blasted joint pain.
I couldn’t believe after 3 1/2 years of dealing with this SHIT ( literally) this diet change was all I needed. Not saying that to minimize its difficulty because the way I was doing it was/is the hardest thing I’ve ever done in my life. I had a basic set of foods I started with and every other day introduced a new food and if I started to get any signs of backward momentum I removed it and put it on the “try again later list”. This was working great until September 25th when the ole’ familiar loose stool started coming back that night and it has became progressively worse. I am on the 7th day now of a full out flare, a reminder of how bad things used to be. My joints hurt all over, horrible cramping in front and aching in back, the smelly hot gas that I have to apologize to my husband for and thank him for keeping me around even though I stink, the barely making it to the toilet throughout the day, the having to get up multiple times through the night to buttpee”, the worried to go anywhere cause I need to be close to a toilet and the general depressed hopeless feeling that comes with the territory.
I removed any culprits I could think of such as the recently added medium cheddar cheese (which I thought would be fine because the mild cheddar meshed well), a commercial salad dressing (the Brianna’s brand Real French Vinagarette, which was stupid on my part, just hopeful wishfullness that there would be a quick fix if I ever didn’t have a way to make my own, I was for sure that was it cause I was skeptical trying it anyhow) and a new bottle of the same kind of vitamins I had been taking since day one ( thought maybe something was different about them?). However, here it is 7 days flaring and no improvement!!! Not to mention I have my inlaws and my own mother terrified that I varied from the doctors order and went off my meds breathing down my neck that I should go back on the medicine. I really really really really really don’t want to be on any kind of drug. How long should I let the flare last before taking my meds again? How long has other peoples lasted tha t are doing the SCD? I’m not really familiar with the “flare” process, I pretty much had straight diarrhea for 3 years straight, then finally got on some meds that made my bowels solid enough to cope with. Should I just keep eating scd legal foods or when should I entirely go back to the intro diet?
I’m also really…just mad. I mean if I am going to flare I wish I had at least eaten something really good that I think about all the time like Little Debbie snacks or icecream or oreos or OREO ICECREAM!! But no, I really did nothing wrong and still I get the crap end of the stick! I’m having a pityparty I know. Regardless, It seems even harder to stick to the diet when I’m not even getting results I want. Frustrating. So frustrating. I’m also worried that I flared before the 2 month mark Elaine spoke of. But I find it hard to believe the diet won’t help me because of the drastic results of the first 3 weeks. I dunno, anything insightful or inspiring would be great right now! Thanks for reading my vent.