I’ve had UC for about 5 years now. The first couple years were fairly uneventful until I tried going off medication and ended up flaring. I recovered from the first one but my gut was never the same again. I flared really bad two winters ago and found this site and the SCD diet.
Some more about me:
Last year I signed up to run the half marathon in Vegas for Colitis but was too sick. I am currently training to run a FULL marathon in the Twin Cities with my fiance this Fall.
It’s been over a year and a half since I found this site and the SCD diet. I was in the middle of a vicious flare having lost 20 pounds in a month or so. My son and I contracted a viral stomach bug that set my colitis off and it was spiraling our of control. I’d never really had a flare before. Anytime I felt “the pain” coming on I would take my medication as prescribed and all would be well. You see, I was and am terrible about taking my meds. I am getting better about it lately because I am sick of being sick.
I was on steroids for this flare and working in the medical field I’d get sideways glances and comments, “I hope you are able to get off of them.” Well of course, why wouldn’t I? I guess it was unknown to me that they are hard to wean off of as a UCer. I got off them drinking peanut butter/banana/coconut milk smoothies. I followed the SCD diet….almost.
It’s been very hard for me to not “cheat”. I’d do well for about a week and I’d be feeling better and then I’d eat pasta, pizza, cookies, everything I shouldn’t. I’d be ill for a few days until it passed through my system and I’d vow to never eat those things again and I’d scour the internet for a SCD recipe. I’d “be good” for a couple more days and then I would just feel deprived, like my body was missing something and eat some chips and salsa and more cookies. Again, I’d be ill. It was clear to me what the trigger was but I couldn’t wrap my head around it. I’d be feeling good, following the diet and then decide, “You know? Maybe, I’m doing better now, maybe my gut can handle it again.”
I don’t know what clicked or when it did. I know it was around the time I found the againstallgrain blog. She saved me. Her recipes are amazing and good and satisfying. I also have moved in with my fiance. When we were living apart I could avoid him during my “cheating” days and not be embarrassed as I ran off to the bathroom time and time again. I could wait to see him until the bloating subsided. Most of all I believe I just got sick of being sick. I got sick of “testing” my gut and having the same unsatisfactory outcomes.
So for the past 3 months I have BEEN GOOD (except one time, last week, I ate corn chips…my gut gave a friendly reminder…) I have gained 10 pounds and I came to the realization a couple days ago my hair has stopped falling out! It is working! I am getting to the point where I don’t even want to eat anything “bad” anymore. It’s just not worth it. I find I get cravings when I get too hungry and I don’t have anything on hand prepared. So I am still working on this lifestyle (diet) change and am getting better and stronger everyday.
Just wanted to share a happy story
currently taking Desicol (previously known as Asacol)
I am not considering not taking drugs at this point.
have tried Lialda
have taken Steroids during flare
written by Tiernee
submitted in the colitis venting area