Some of you may know me pretty well by now. After all, the site is over 3 years old now….can you believe that.
But, I wanted to give some updates as to how and what I’m up to lately. (For anybody who is visiting iHaveUC for the first time right now…well, the site is all about Ulcerative Colitis (except for this post in some ways). I started the site over 3 years ago because I was diagnosed with UC and dealing with some strange medication side effects from Humira. As of today, there’s been over 966,000 visitors to the site. Lots of people have UC, so don’t feel alone. Long story short, the site now has over 1500 stories from different UC’ers worldwide, and there’s a super cool growing group of people who use the site from over 50 countries every day. You can join the newsletter, add your story, or read up for as long as you like.)
The end of 2012 concluded with me resigning from my job in San Francisco(great idea), Michaela graduating from CAL and us heading back to Eastern Europe for a few months. And 2013 has turned out pretty interesting so far too.
Michaela and I are just over 5 weeks deep into an across the country trip, and we are for sure tripping pretty hard.(no mushrooms, LSD, or alcohol for that matter if you can believe it(at least for me anyways).
So with the help of our 3 year old digital camera that still works pretty good…here’s how all is going:
That’s all for now.
If anyone’s wondering how I’m doing UC-wise -I’m medication free and feeling good(1-3 craps per day) hoping this continues for all of the road trip and expecting it to. But, if things go south, I’ve got some new ideas that I’m thinking about busting out to test…
I’m super pumped for some new stuff that’s going to be coming to the website in the very near future. As many of you know (or at least 5,000 of you who are on the newsletter) yesterday we started the Pregnancy and Ulcerative Colitis survey. And I’m super happy to say that over 80 women have been super kind enough to share your experiences on the topic. In just a few more days the survey will be closed and when I get some good internet again, I’ll get all the answers compiled and posted back to everyone on the newsletter.
Also, for those of you who are wondering…I receive new stories from readers of the website daily, often multiple stories each day. And when I get to some wifi internet spots, like where I’ve been the past few days here in Austin, Tex Land, I get the stories imported and published to the backend of the site. I like to spread the stories out, and by that I mean having one (sometimes two) new stories posted each day. So…if you send in your story (and big fat pat on the back to those who include a picture!!!) and are wondering why it is not appearing instantly…no need to send me an email. I do get all the stories, and they almost always get published (unless they are obviously business/marketing/spamish related). It just can take a few days or sometimes weeks depending on how many are already in the queue. But, I’m able to schedule out stories, so there will be new ones posted for the forseeable future, even when I’m out on the road.
AND, in terms of commenting on the website. The comments that people leave for others’ stories is really important. And for those of you who regularly leave comments (and there’s hundreds of you!) that is super cool. The reality is that less than 1 in 100 visitors of the site leave comments, but that’s OK since there’s over 2000 people per day visiting and reading stories. One thing you all should know if you’re interested in leaving comments, well maybe a few things:
- if you are leaving your first comment, it will be held in “moderation” until I approve it. AND, that may take anywhere from a few minutes to a few days. Just depends on if I get internet reception where I’m at.
- if you leave a comment with a website link in it, it will also be held for moderation. this is to prevent spam comments from hitting the site and wasting your time. So you know, the automatic spam filters work pretty darn well, and weed out over 1,000 SPAM comments daily on their own. But, they are not perfect. and from time to time, they weed out a valid comment, and yes, that sucks a big fatty. But, overall, I’m super pleased with their work and you should all be too. Seriously, we don’t want to be reading about Viagra does this, or Viagra does that all day long do we.
- So please be patient if your comment does not appear instantly, and if you leave out website pages in your replies, it will have a much better chance of getting through and getting posted
- Lastly, on this topic of comments, I’ve been delighted to see the back and fourth of people over the years on the site. If you folks use other websites, you’ll probably know that comments is a pretty big part of every site, and a place where things can either stay on topic and be a positive, or get off topic and get way out of hand. I think that of the nearly 15,000 plus comments on the site, only a SMALL handful, (like three or four) i’ve ever been asked to remove. THAT’s FRIGGIN INCREDIBLE UC’ers! And I thank each and everyone of you for that. My life would be a royal pain in the ass if I was being asked to remove comments all day long…
I’m pretty sure this ramble has gone on long enough, and Michaela just asked if I have even looked into the potential campgrounds we could stay at tonight…(and the answer is a big fat no as you might have guessed) so time to get crackin.
I wish you all the very best, especially the newly diagnosed UC’ers who are just getting past your first flare up, or getting used to what life is all about with Ulcerative Colitis.
I wish the very very best to anybody who has decided to take the plunge and have colon removal surgery. That is a very big step as you know, but one which so many UC’ers from all over the world have done and been super happy with. (Again, read the surgery survey if you think I’m bull crapping you.) Or take a peeky at our boy Curtis who is unfriggin believably dopeishness out in Sunny San Diego.
Bev, guess what senorita…I wish you the best you Canadian you (I do hate your hockey team…but that is a totally different story). You are just what this website needs more of.(and there actually are many folks here like you) Just nobody else who has left 1,143 comments…That’s more than me!!! And for anybody who wants to read Bev’s stories…here they are: Bev’s Stories!
Graham, I wish you the best buddy out there in the UK! Your story on “Real Extra Virgin Olive Oil” has made such an impact on so many, that is friggaliciousawesomepoopiness Galore senor! “Good on you” (as Peter NZ) might say. Here’s that story: http://www.ihaveuc.com/olive-oil-is-helping-my-ulcerative-colitis/
Not sure where, but I hope to see some more of you soon on the road(best part of the trip by far),
PS: if you want to get the Pregnancy and Ulcerative Colitis Survey Results, which will be coming next to the newsletter Group, sign up right now. Newsletter Sign Up
PSS: if you haven’t checked out the medication reviews pages yet, you for sure should if you’re interested in what other Colitis patients have to say about medications. You can even leave your own reviews as well. There are links for Prednisone, Remicade, 6-MP, Lialda, Asacol, and more. Here’s the link to those: http://www.ihaveuc.com/category/reviews/
PSSS: if you don’t like your GI doctor, or are looking for a new one…there are now over 240 GI doctors listed and reviewed by fellow UC’ers on the site. Here’s the doctor reviews page. And if you want to add your own doctor to this list, if he/she is not already listed…go ahead and do that here – add your doctor.