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I Refuse to Take Prednisone

Intro:

Hi, Cynthia Here :)
this will be my second post on the site, been living with UC for the past 7 years. Getting mentally ready for second colonoscopy

What Does Cynthia Like to Do….

Go to the movies

Symptoms:

  • blood in stool
  • sometimes mucus
  • discomfort on joints mostly knees

Prednisone (I refuse to take it)

Well I diagnosed with UC (proctitis) on 2007 only symptom blood in stool, that’s it.
Never gain/lost weight, only use the bath once or twice, 3 times if I’m under lots of stress.
Sometimes I think maybe it’s not Ulcerative Colitis, but then a few more symptoms appear and I think yup is UC lol

Been going through an annoying flare up since may 2013, only blood in stool, sometimes mucus. Every now and then I get a small cramp near my belly button goes away in seconds.

As far bloating goes I dont have it often, it depends on what I eat.

At work I’m standing and/or lifting heavy things so joint discomfort (mostly knees) is becoming a problem.

(August 2013) Doc prescribed cortifoam and no more red meats to treat flare up but this time the foam didn’t help at all.

I tried probiotics, looking for a way to stop the flare up.
First one was trubiotics, it did help with the bloating/gas.

Then I tried phillips colon health, didn’t see much difference.
Lastly “Align” my best bet, but I only saw more blood (I did finish the whole box though, wasn’t going to let my 30 bucks go to waste, lol)

Had a docs appt on Jan 7th, told him whats going on.  Now I’m scheduled for another colonoscopy on Feb. 3rd, 2014.
I’ve been wanting to get one for a while now (didn’t have insurance, so cost was a big issue ), but finally I’m going to get it, not looking foward to the prep, none of us are I’m sure omg!! It’s big-o a gallon, yuck.

I’m pretty sure my meds will change.
I might get predisone but I refuse to take it because I’m sure the side effects will be really bad on me. :(

My question is:

HOW has prednisone affected your life????

——

Medications / Supplements

Sulfazalazine 500mg 3 tablets 3 times a day
Folic Acid 1mg

First “bad” mostly annoying flare up in 2011
used (2) Cortifoam- hydrocortisone acetate 10%

used (4) cortifoam again on 8-2013
didn’t help this time

written by Cynthia PM

submitted in the colitis venting area