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I am Jamming Bottles of Liquid Up My XXX Every Night

GulliIntroduction:

I’m 47, married 26 years, 2 daughters 14 and 16. Sometimes (well alot)stressful job repairing copiers and printers( also repairing people LOL). Diagnosed with UC about a year ago.

Some more about me:

I’m from Michigan, lived her most all my life. Hobbies would I guess be the yard and flowers. (when there is time). I have a dry/ smartass/ cynical sense of humor . Try to make fun or laugh at myself, and my health issues.

Symptoms:

About 4 flair ups since last year. From 5 to 15 times a day. So swollen/ flamed up, like being constipated, cause nothing will come out. LOTS OF GAS, CRAMPING ,BLOOD and IMMEDIATE bathroom visits.

GETS REAL OLD REAL FAST.

I had scope last year and Doc said and showed me how red and inflamed it is.

Jamming Bottles of Liquid

Trying Bev’s regimen. Only been 3-4 days. not seeing improvement,

AM I BEING IMPATIENT !?!?!?

Ultimate flora ( 30 billion) morning before food, wait an hour, then l -glutamine mixed with protein powder ( WATER) for a drink.

Then daily vitamin, fish oil pill, Ascol, Boswellia, cinnamon pill( for high sugar), later in day after lunch, Vitamin and supplements- A&E , D, garlic, and more Ascol.

At night Fish oil and my cholesterol and blood pressure meds,then Messalamine Enemas .Try cutting out Alcohol and caffeine , no pop, Lots of water , some ice tea. Try to eat more Protein and less fiber, but trying to eat healthy.

Thinking of going to a Holistic Doc. Not sure My Doc is finding what works, seems just going through the motions of prescription meds.

ANY IDEAS!?!?!

Give all your best, Don’t want to take Prednisone again. It does seem to work after about a week or 2, but then all those side effects, just don’t think its worth it. Want something more natural, I could go on and on about prednisone. I get like every side effect- skyrocketing sugar levels , mood swings, pimples, sores in my nose( not sure if UC or med) loss of intimacy. ( not to mention I am jamming bottles of liquid up my ass every night),UGGGG!

Start to wean off of prednisone , then symptoms come back.

Tried Uceris, for 2 weeks , no difference, I don’t even know if the Asacol makes a difference…bad enough the disappointment of nothing working is depressing. Add stress of job, life,kids etc.

Also, think a lot might of started in 2007. Lost Both parents, job after 23 years, had to deal with parents house with mortgage.
ok used 300+ words , now I sound like I’m just complaining!

Medications:

Been on Ascol for a year 8 pills a day, Prednisone on and off up to 30 mg a day .Tried Uceris( 2 weeks no difference).Mesalamine enemas .
I NEVER WANT TO TAKE PREDISONE AGAIN….This stuff is just bad. I get almost every side effect. Especially SUGAR LEVELS….As high as OVER 500..HAD TO START DAILY SHOTS OF INSULIN!!
So trying ULTIMATE FLORA (30 billion), Boswellia, L-glutamine, and Asacol

written by Gulli

submitted in the colitis venting area




7 Responses to I am Jamming Bottles of Liquid Up My XXX Every Night

  1. Don
    Don June 27, 2013 at 7:41 am #

    Oh my god Gulli! It hurts just reading your story! I have been where you are in the ‘early’ years. It’s been 7 years for me now! My first reaction is that you are really stressing your system by taking so many things in. I mean Ultimate flora, l -glutamine, daily vitamin, fish oil pill, Ascol, Boswellia, cinnamon pill, more vitamin supplements, garlic, more Ascol, fish oil, cholesterol and blood pressure meds. Holy shit man and I mean that literally! I tried the holistic doctor route and it cost me a lot and didn’t help, if anything it hurt me. My suggestion is to stop everything except your necessary meds. I would stop Asacol too. It never helped one bit. Then do the SCD intro diet for 3-5 days. Hopefully you’ll see some improvement. You can start adding some SCD legal foods one at a time while watching how they affect your system. We are all individuals and what I may tolerate may cause problems for someone else so go slow. I realize that the SCD diet is very restrictive at first. I am still on it but can have more advanced foods these days. The idea is to get the bacterial overgrowth under control by starving out that bad bacteria. This can take some time. You will need to be very patient. We all wish there was a magic pill to make this go away but there just isn’t. Doctors aren’t much help because they treat the symptoms and not the cause. I agree with you about prednisone. It has helped me but I really have a hard time weaning off of it and when I do I just get sick again. Get the book Breaking The Vicious Cycle by Elaine Gottschall. That was the only thing that stopped the symptoms for me. I have had ups and downs but am really glad I found that book. Good luck and I hope you feel better soon.
    Don

  2. bev June 27, 2013 at 3:48 pm #

    Yes, like Don says…you are taking a lot of different things…I know we all want immediate results. It can truly be different for all of us.

    You also aren’t on the same probiotic as I am…it’s ULTIMATE FLORA CRITICAL CARE…50 billion…it has different bacteria strains in it than the 30 billion one does, I believe.

    You are still on the asacol? I hate to say it, but until I completely stopped taking it, my cramps, urgency and looseness did not go away. Maybe that was just me…I don’t want anyone to get hurt by discontinuing their meds, but in ALOT of people, asacol becomes the same culprit with the very same symptoms, as the UC itself! No joke. That happened to me, especially when I was on the highest dose, 12 pills per day.

    I’m just sayin’…

  3. Angela June 27, 2013 at 4:35 pm #

    I feel your pain. I see that you are trying to cut a few things out. With UC there is no “trying” you just have to do it. Although docs may say diet is not a factor….it is! If I have any alcohol or caffeine I will pay for it and it’s just not worth it. Also some tips I have learned with water. Use room temp water when taking your meds, not cold water. Cold water also can result in diarrhea. And drink small amounts throughout the day. Unfortunately we can’t do much about the stress in our lives. I too was saved by prednisone twice and although the wicked side effects I was just happy to get better. I’m currently taking 9 colazal a day, VSL#3 probiotic and started Mesalamine enemas about a month ago….thinking every night how did this happen to me??? All you can do is laugh about it and keep that sense of humor! Good luck, you are not alone!

  4. Sujit June 28, 2013 at 5:49 am #

    A big change is coming in the way you eat. Read below and get rid of all your medicines. All the best for your cure (not only treatment).
    http://www.breakingtheviciouscycle.info/p/beginners-guide/

  5. Gulli
    jAMI (GULLI) June 29, 2013 at 8:48 am #

    Thanks All !!!
    Yes weaned off of prednisone, and down to 2 of ascol eventually none , to see what happens.
    Still taking ultimate flora, boswellia, L Glutamine and normal meds . Watching diet with the SCD.
    I thank you all for the support and thoughts!
    Also forgot to add that had 2 knee surgery’s in 2006 and 2009, both were because of swelling in the knees..couldn’t bend , lots of pain…no arthritis,2 different docs couldn’t figure out. Also another doc said I had asthma in 2011, lots of congestion and coughing. Then a colonoscopy found out UC… Finally my regular practioner said AAAHHH HAA. You have a Immune deficiency disease!!!!! FINALLY A ANSWER!!
    One more thing to add Started getting spots/ sists on my legs and sides….Ended up being PLEVA…Doc not sure if UC can/ does cause this. Not enough research $$$ according to the Doc to know what causes it.
    THANKS AGAIN!
    Jami

  6. Gulli
    Jami July 3, 2013 at 4:01 am #

    How about homemade yogurt? I have always eaten store bought yogurts , but read that they are full of some other bad stuff. And also way more Probiotic cultures?!?!

  7. Sujit July 3, 2013 at 7:48 am #

    Homemade SCD yogurt. Read below. You may use a heat pad or yogurt maker. 24 hours fermentation is a must. I strongly suggest you read the book BTVC.
    http://www.breakingtheviciouscycle.info/knowledge_base/listing/Y/

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