ulcerative colitis ebook

How Fast Does the Colon Heal From Colitis Symptoms

founder of iHaveUC.com

founder of iHaveUC.com

Good Day to Everyone with Ulcerative Colitis,

I’m Adam-the often mangy dog who has tried to keep this site running smooth and full of useful information and experiences of true UC’ers like us.

One thing I promise you is this post is full of GREAT NEWS.

So let’s start off with some simple question and answers that everyone can take part in:

Question 1: How long does it take for your finger to heal when you cut it with a knife?

Answer:  well, don’t go cut yourself and find out, I’m guessing you have an idea already.  For me its about 5-7 days.

Question 2: How long does it take for your mouth to heal when you bite your lip, or eat hot pizza and burn the roof of your mouth?

Answer:  Again, we’ve all done it, if you can’t remember how long, that’s probably a good thing.  For me its usually about 1-2 days.

Question 3:  How long does it take for your colon to heal after it has been inflamed and bleeding for weeks or months?

Answer: I’d like to share with you some details from my dinner last night with world renowned Microbiologist Les from Stanford’s Microbiology Lab.  As you may remember, Les is the star in all of the Gut Bacteria Videos that I shot on-site several months ago.  He is an expert in understanding gut bacteria which makes him someone’s idol if you have ulcerative colitis(in my opinion at least, you the man Les!!)

Backround Story:

My ulcerative colitis went through a pretty nasty flare up towards the end of 2010 and the first week of 2011.  I was bleeding pretty bad, and doing 5-10 soggy, whale killing bowel movements per day.  You know what I mean UC’ers… I don’t need to go into to many more details for this crowd I hope.

Starting about the 7th of January, I reluctantly went back on a low dose (15mg/day to start) of prednisone and have tapered down to 10/day since.  What was so shocking to me though was the change in symptoms and bleeding and crap hardness (CH) that took place just 24 hours after starting the steroids.  In my mind it was amazing and almost impossible to believe.  One major thing to take note as well, I re-started the SCD dieting program alongside with the steroids, and that combination has once again proved very useful for me.

When Les came over for dinner last night, I had to ask him this one question:

“How fast can the colon heal after bleeding and being tore up and inflamed for so long?”

The ideas that Les explained are something that should raise some MAJOR HOPE in all of us who deal with Ulcerative Colitis symptoms.  The bottom-line is the colon can heal itself very quickly, sometimes the colon heals itself in 2-3 days.  Faster than the cuts you get on your outer skin.  The healing process inside our bodies, especially our digestive system is super fast.  It’s similar to the cuts you get in your mouth.  They heal really quickly right?  Yes they do.

So what is the reason for this fast healing inside our colon?  It all comes down to cell division and new cells being born.  The body finds a way to speed this process up in places like our colon and our mouth.  Instead of the normal 5-7 day process for a new cell on our skin making it to the outside layers to fix any cuts or scrapes, within the colon it takes place much faster Les explained.

So feeling better quickly and seeing your symptoms get better is possible.

And YES, the bleeding can go away fast.  I am happy to say that my symptoms are not affecting my lifestyle right now.  I am not bleeding, and I’m having formed poops once again.  It’s great news.

But there is still just one BIG QUESTION:

“WHAT needs to take place for COLON HEALING to START?”

This is a question that I am able to answer based off my own experiences.  For me, I have found my way now out of two major ulcerative colitis flares.  And both times the combination of a low dose of prednisone along with starting the SCD diet has worked wonders.  The prednisone steroids ARE NOT a long term treatment, just a temporary inflammation cool down, but the SC Diet is the long term solution that I intend to continue with.  I can’t thank it enough.  If you’ve NEVER ATTEMPTED a diet change to help the colon begin a healing process, you just might want to look into it further.  The “Ulcerative Colitis Diet” page has details on how to get started with this.

-Adam Scheuer

Tags: heal





46 Responses to “How Fast Does the Colon Heal From Colitis Symptoms”

  1. CoryFebruary 6, 2011 at 1:33 pm #

    hey there Adam,

    I’ve been reading up on your blog recently and I dig the positive perspective you put out there for this debilitating disease. A little background before I move forward. I’ve been dealing with UC for 10 years and have had only three flares. Every one has been seemingly unending and I’ve ended up in the hospital. Wild times but around 9 of those 10 years I’ve been well so I can’t complain. I’m currently dealing with a roller coaster of a flare that is going on 10 months now. Just knowing that the colon heals itself in 2-3 days is something that will definitely keep me focused on the positive moving forward. I don’t know when those 2-3 days will come but I know it will happen soon. I’ve been attempting the SCD diet for around 3 weeks now and this combined with probiotics and some homeopathy have keep things at bay…I have 2-3 hard craps per day mixed with blood and some clots still. The blood is lingering but the fact that I have had HC for a few months now is also a plus. I truly believe that gut ecology plays a major role in these symptoms and will continue to work toward a proper balance. I suggest that all UC’ers take a deep look into the role that those funny little microbes play in our lives. The positive impact this site has had on my mental clarity (we all know it becomes trying/depressing once blood, weight loss, etc. creep on for months without end) is a welcome thing. Again, I dig the site. Much peace and love to those searching for optimal health.

    • AdamFebruary 6, 2011 at 2:36 pm #

      Hey Cory,
      Thanks buddy for the compliments on the site, and also for your positive vibe.
      10 years living with UC and staying positive like you are is a feat in itself!!! congrats to you on that.
      It seems like everyone has their own opinions on the disease and how it starts, ends etc…, but definitely I think the microbes and gut bacteria has some type of role in it. There’s quite a bit of interest on the research end at the moment into this, so with time we will probably have some more deinitive answers. Until then, keep staying positive and I’ll try to do the same.
      thanks again,
      Adam

  2. Tony (UK)February 6, 2011 at 2:08 pm #

    Every time I visit your site Adam, I learn a little more. I just wondered what is the average length of a flare and is a flare considered to be the blood losing stage only or is it, as it is in my case and as I suspect, a now a 7 month long catalogue of symptoms, starting with the shock of and now abated blood loss to the daily stomach cramps, continuous trips to the loo and extreme tiredness? Cheers.

    • AdamFebruary 6, 2011 at 2:50 pm #

      Hey Tony,
      Great to hear from you, its been too long.

      I think your question is one which might have 10 answers if you ask 10 people.
      For me, if I’m bleeding and/or having soft stools the majority of the time, that’s means flare to me.
      And unfortunately I have to say that I’ve had a flare previously for over 2 years. My most recent I would guesstimate as about 1 1/2 months and is now over.
      Stay in touch more often Tony, allways good hearing from you!

      • Tony (UK)February 6, 2011 at 5:41 pm #

        Hi Adam, I still visit to read the comments most days but what with Christmas and not feeling too good, I haven’t been too active just lately.

        2 years I did not realize a flare could last that long, you must have been totally worn out and here’s me complaining after only 7 months, I should count my blessings. Going for a Barium meal and FT X-Ray next Wednesday, don’t know what the FT means, prior to ‘possibly’ having part of my colon removed, should be fun :-) Will keep you updated, am in contact with Dede quite a lot now who has mentioned Vegas, wow that would be quite some experience. Best wishes.

  3. Reid Bryant KimballFebruary 6, 2011 at 3:24 pm #

    That’s awesome information. Another reason why Glutamine works so frickin’ awesome for diarrhea and strictures (in Crohn’s). For Colitis, Butyrate enemas are supposed to supply the colon with the fuel it needs to produce healthy cells.

    http://en.wikipedia.org/wiki/Butyric_acid#Butyric_acid_function.2Factivity

    “Butyrate enema therapy stimulates mucosal repair in experimental colitis in the rat.”
    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1383116/

  4. CyndeeFebruary 21, 2011 at 11:10 am #

    Adam, I did buy the Breaking the Vicious Cycle SCD book, and I’m still in the flare. On Predisone 20mg daily. Dr. still wants me on the BRAT diet, and Predisone ememmas. The book is not clear on what you should eat or drink while in a flare. My stomach doesn’t like anything I eat, and I’m sick of eating the BRAT diet for over a month now. No protien at all so I have so energy, sleeping all the time. And if as it says in the book, I’m eating all these carbs which maybe making the flare worse. help???

    • AdamFebruary 21, 2011 at 4:46 pm #

      Hi Cyndee,

      I follow this starter guide here when I’m in a flare. It talks about how to start the SCD program when you are in a flare. As for the BRAT diet, that doctor or whoever has asked you to do that obviously either does not know about the SCD program, or doesn’t believe in the SCD program, because toast and rice are totally breaking the SCD diet’s rules. I have not had toast in over 1 1/2 years since starting the SCD diet program, and I don’t plan on chaning that.
      Chicken soup (without noodles or rice) is what I eat along with broiled hamburger meat when I hit a flare. but again the details on this protocol are in the starter guide link above.
      Let me know how it goes for you. Have you seen any significant symptoms changes sinces tarting the steroids?
      If you are not seeing any relief from your current program, you definitely let your docs know.

      • T.R. StrackOctober 17, 2012 at 3:57 pm #

        Just wondering if anyone on this website has looked into food allergies that can cause colitis and future flareups – There is a ton of info. out there on this subject. I have just recently been diagnosed with U.C. and already have food allergies, have had them for 15 yrs. I believe that this is what caused my U.C.. I think that there was one or more allergies that I have either aquired recently or that did not show up on the test(false neg. ) I plan on getting tested again to find out.

        • AdamOctober 17, 2012 at 9:35 pm #

          Hey TR,

          I definitely remember several people mentioning they’ve been tested with allergy tests. I myself have not had a formal test, however I definitely feel there are foods which have a high probability of setting my system off, grains and alcohol and much dairy to say a few.

          Good luck with getting to the bottom of it for you, and feel free to share your ideas within the site.

        • CAOctober 29, 2012 at 6:15 pm #

          Re: Food allergies. I’ve been UC for 7 years — first 2 were horrific (moderate/severe; lost weight from ~180 to a stick figure 140). SCD diet kept me alive and functioning, and once I started my remission cycle I tested for Gluten, Dairy, using a variety of tests. All negative. here’s what I’ve learned: food allergy tests are problematic (false negatives), b/c no test is perfect and the immune system fluctuates in its response. there is also “food intolerance”, ie can’t digest certain foods due to damage of the intestine’s villi. This is me. I have 2 genes for gluten intollerance, my GI thinks I’m a celiac (no upper scope to confirm), but my IGA IGG were negative.

          so the only thing that really works, according to my Doc, is a challenge diet. (huge pain, have to be very strict). For me, gluten, dairy can start a multi week flare, and avoiding them have been one path to health (of several). But it could be any food that sets you off. If you want to try a unique multi food allergy test, try Alcat test (google it). However, if you are in a flare, you have ‘leaky gut’ syndrome, so your test will light up like a Christmas tree.

          For me, I’m now mostly in a long remission cycle. Minor problems, and maybe 1 flare a year — but I’m medication free (except low dose naltrexone…yeah, I know only research is for Crohn’s but seems to buffer my system).

      • billy birdwellNovember 28, 2012 at 12:21 pm #

        great article man im 29 and was just diagnosed with uc it was scary for me in the beginning but after a week on pred and sulfasalazine ive been poopin legit and the pain has gone away. my problem was i put off going to the hospital for 6 months like a dumass. now if have any sign of a flare i go right away to the doc. this disease makes you have to eat better which is a good thing cuz i was drinkin and eating fast food so much it was ridiculus. i lost like 30 pounds from bieng in the hospital for 3 days …brutal but im getting my strength back finally. how long do you have to take sulfasalizine for? is it something you have to take for the rest of your life? i was just curious . thats cool that you live in capitola cuz i lived in aptos for a coupole years lol. some goos surfin up there hahaha

        • AdamNovember 28, 2012 at 5:00 pm #

          Hey Billy,
          Glad you made it to the site and welcome bud!

          As for sulfasalazine, that is a decision you and your GI can make. Some people take it for a long long time/indefinitely if it works well for them. Others just temporarily. All depends, your doc should have some ideas for you on that. Lucky you were living down in Aptos, I never lived in Capitola, but was down there for a weekend a while back and wrote that story from down there! Great place.
          take care, and best of luck to you in the future,

          -Adam

  5. ElaineFebruary 27, 2011 at 5:27 pm #

    Hi Adam,

    My husband has been in a flare for at least 3-4 weeks and hospitalized for 2 weeks straight. Prednisone 60mg/6 hours, Flagyl and Leviquin (antibiotics) and an IV shot of Remicade haven’t helped. When we first got here he didn’t eat anything…just an IV. Wouldn’t that be the same as chicken soup and meat? They want to take out his colon this week since the Remicade didn’t work. I don’t know if he can live at home w/o the pain medication to give him time to try the SCD plan. Help!
    Thank you,
    Elaine

    • AdamFebruary 27, 2011 at 7:05 pm #

      Hi Elaine,

      I am very very sorry that you and your husband are going through such a rough go with everything right now. I know how tough and helpless everyone can feel when its seeming like there’s no more options.

      Your question is a really tough one. I just can’t really give you any adivce on the billion dollar question you are asking.
      As for chicken soup being the same as the IV fluids question, I really don’t know the answer to that. You could google what is in an “IV” etc.. and probably get some ideas there. I would suspect whatever is in there, its easy to digest, however it may contain some complex carbohydrates etc… which are SCD illegal, but again I just don’t know.

      As for living at home when he is in such bad shape and SCD having time to potentially take effect and help out. For me, I was talking with surgeons too back in August of 2009, and I was pretty much getting ready for that as Humira and Remicade and the others did not work. **Please note, I was on approximately 15-20mg/day of prednisone at this time and not in a horrible way with uc, but definitely bleeding and way more than normal bowel moves etc… I started the diet and nearly immiedialtey started to see improvement, and that was great. I was doing a small dose of vicodin at the time to deal with joint pain associated with UC as well.

      From my experience is watching others who try the diet who are severe with symptoms at the time they start it, several have done real well for good amounts of time, and several have not had any benefits or just marginal and nothing worth getting excited about and feeling out of the woods. I definitely think every situation is unique, and that’s probably true for your husband as well.
      All this being said, its a very tough decision, and by and large, the people who have had the colon surgery that I know are all very happy with their decisions, and my uncle who had his colon removed 35 years ago would say the same. He lived 30 years of symptom and medication free awesome living until he recently died of a massive heart attack.

      I would encourage you to put a question on the facebook page if you like at: http://www.facebook.com/ihaveuc asking your question, as it will be seen very quickly by hundreds of people.

      I really wish you and your family well, and hope that real soon you will write back with a happy ending to all of this, and I’m confident that can happen. No matter what decisions you choose.

      best regards,
      Adam

    • OrdinaryWorldWhereRUSeptember 27, 2011 at 5:47 pm #

      If I may ask, I take it the 1 Remicade infusion did nothing? My doctor said he thought my situation would take at least 3. I have my 4th next week. I am not in remission but I am a lot better.

  6. AnneSeptember 25, 2011 at 2:09 pm #

    Hi Adam,
    Great information. I was diagnosed 5 years ago. No flares since then until I went in last week for routine colonoscopy.
    I think the prep was a huge irritant. I’m now on prednisone, and feeling better, but still in the bathroom. For future reference, do you know of any less harsh prep than the ones docs do with the go lightly/miralax? Maybe fasting for extra days and doing some type of fish oil/etc then ememas?
    Thanks
    Anne

    • AdamSeptember 25, 2011 at 9:48 pm #

      Hi Anne,
      I have heard from quite a few people who go into their colonoscopy feeling pretty good(same sometimes with the sigmoidoscopy) and then afterwards find themselves in a flare. I wish it wasn’t true, but it seems that quite a few people have that experience. As for your question about alternative preps… I really don’t know of any. I do know a girl who refused to drink the recommended solution and just drank a bunch of water instead, and seemed to be alright, but of course that was against doctor orders…
      Best of luck to you Anne,
      adam

  7. MauricioFebruary 2, 2012 at 10:11 am #

    Hey Adam,

    I suffered Chemical Colitis on Sept 2011 after doing an enema with a solution of Hydrogen Peroxide. I was doing the enemas quite often but with a very diluted solution of the mixture, however on the day in question I just went overboard thinking more is better. Anyway, I suffered through a healing period of about 3 months and my colon was back to normal. However, in early January of this year i went in for a follow-up flex sigmoid and after the procedure I just didn’t feel quite right. My stools went from the normal golden brown – 3 times a day (I’m a vegetarian) to very loose stools (no blood, at least none that i could see) and my colon feeling the way it felt when i had my accident. It’s the start of February and I’m now just starting to feel better and my stools are returning back to normal. I went to my physician (not my GI) to get blood work done as I was feeling so crappy and everything came back normal.

    Also, this colitis has thrown my system completely off-balance, as I believe the flares cause the colon to move around pushing my GI Tract up towards my diaphram…as a result i have a hiatal hernia (Stomach pushed up against the diaphram). This in turn causes my blood pressure to rise as I beleive the stomach pushes up against the heart. Sometimes I get awful chest pains (been to the emergency room several times thinking it was a heart attack, but all the heart markers come back negative against a heart attack) and been having a difficult time controlling my hypertension. Anyway, I’m going to start a heavy duty dosage of Aloe Vera (not the crap liquid you buy from the stores), but verifiable pure concentrated aloe. When I first got out of the hospital in Septemeber of last year after the chemical colitis episoide i ate nothing but fresh Aloe Gel straight from the leaf with Pure Honey and Malanga. It’s amazing how fast that diet helped me out…I stopped the regimen after about three weeks as I got lazy and i was feeling so much better. So I started back on my normal food. Anyway, I’m going to go back on this for a good three months…I’ll be taking the concentrated pills (which includes the leaf of the aloe mixed toghether in a propiertary blend with Gel and outer lear, the outer leaf contains important phytonutrient aminos that you can’t get from eating outright as it will give you bad diarreah) along with the normal Gel and Honey…
    I’ll let you know how this works out

    • AdamFebruary 3, 2012 at 8:28 am #

      Hey Mauricio,
      That’s great! I’d be very interested to know how things go for you with the re-introduction of the aloe combination you mentioned.

      I think I know firsthand what you are talking about, when you mention the “thinking you’re having a heart attack” type of idea. I had a scare like that over a year ago when I too thought that was happening to me, but all the tests came back that things were fine. I believe it was now just a rapid change in blood pressure and my body compensating for it all. The paramedics tried to tell me it was an anxiety attack, but I’m not so sure that’s the case. But either way, I haven’t had any of that for a long time now and feeling really good and healthy too.

      Take care and best of luck to you,
      Adam

  8. MarcyMarch 13, 2012 at 10:43 am #

    Hello,

    I have had symptoms of UC for months, only got diagnosed last week. They’ve prescribed me Anscol, the mesalazine drug (however its spelt )) but i am still not producing hard stools, which is my problem. What do you suggest?

    Your site is a brill help by the way.

    • CAOctober 29, 2012 at 6:29 pm #

      many of the 5-ASA did not work for me, Asocol included. Lialda did work, however.. I think they all release a little differently, so hit your colon in different spots, or maybe people just react differently. Also check out Canasa, which is a suppository. I read that 1/2 of UC have proctitis, and then as you move up the colon the % of people with problems in that area decreases the farther up you go. so the thinking for me is, if I can get the proctitis under control, the rest seems to follow.

      I rarely found that the 5ASA’s put me into remission — but did help me stay there. Reading this forum, looks like most of us have done the prednisone pulse over a 3-4 week period. That worked for me, but prednisone drives me crazy.

      Definitely for me diet is a big, big deal. Supplements too, but none really put me into remission (s-boulardi works for some, but only improved me maybe 70%).

  9. umaOctober 18, 2012 at 6:07 am #

    i think alcohol is the number one cause of UC. So i think the desease is in some way related to the liver. And the gut bacteria

    too has a big role to play. Hopefully we will have answers soon with all the research thats going on. The prep for

    colonoscopy surely worsens the symptoms. I have always noticed this. May be the gut bacteria is wiped out or so, i dont

    know. A simpler test like an MRI should be available soon i hope.

    • Adam ScheuerOctober 25, 2012 at 6:02 am #

      Hey Uma,

      I don’t know if we can say for sure that alcohol is the number one cause or not, but I most definitely feel it is not helpful to our guts.

      Best of luck to you moving forward,

      -Adam

  10. T.R. StrackOctober 25, 2012 at 6:34 am #

    why do you think that a colonoscopy worsens symptoms? As far as the bacteria thing – I think that plays a big part too and also acid blockers contribute to the problem – you need acid to digest food so it doesn’t putrify in your intestines.

    • AdamNovember 11, 2012 at 11:33 am #

      Hey TR,

      The whole colonoscopy process in general is not something that our bodies are used to, but that’s not the main reason I think it has a decent chance of bringing back or increasing symptoms. In my opinion, the colonoscopy prep (drinking the huge jug of you know what) and the attempt to clear out the “whatever” that’s inside I believe can cause issues.

      As well, the stress on our system down there is for sure increased during the prep. So those are my main thoughts on the “why” side of things as to why scopes can aggravate our insides.

      Luckily, its not a forever change, and we can all get back to a state of normality within a bit of time too.

      -Adam

  11. BonnieNovember 27, 2012 at 7:06 am #

    I enjoyed your site…..very informative. After two colonoscopies (I couldn’t drink all the water for the first!) I was diagnosed with very mild colitis. Dr. put me on Asacol HD……3 times a day. I went back for checkup in a month and he said I had to KEEP TAKING it! Iasked how long……he said, maybe for years! I am having no bleeding now, none of the other symptoms of colitis……….whats going on with this??

    • AdamNovember 27, 2012 at 7:50 am #

      Hi Bonnie,

      Glad you’re enjoying the site!
      I know it probably seems strange as to why you’d need to be taking what is often referred to as “maintenance drugs” for years/lifetime, however that is a very common recommendation from nearly all of the “western medicine” doctors with regards to how UC patients should move forward. Even while in remission. You might want to seek out some alternative opinions from maybe some docs on the natural/holistic side of things if you’re not “down” with putting pills down forever. There’s many people who do what your doctor is recommending, and also many who go alternative routes. It’s one of the decisions that all UC’ers end up having to make. I wish you the best, and I’m pumped that you’re not dealing with any bleeding anymore. That’s great!
      -Adam

    • CANovember 29, 2012 at 1:12 am #

      Bonnie,

      That’s exactly what my MD said!! — take 9 pills a day for life. Only I wasn’t getting any better and was down in weight, hair thinning, just falling apart really. Could barely work, couldn’t eat, etc. Literally said “you probably won’t get better, and what you eat has absolutely no relevance to your health”. Meaning “studies show that on average eating wheat/dairy, etc. etc. doesn’t matter” What I know now is that for an individual foods DO matter. Big time.

      So I fired him, and the next guy. :-)

      GI Doc #3 had a plan. But more than anything he suggested addressing foods and diet. That part was up to me. He did not tell me what to do or what to eat, but encouraged me to ‘find what works’.

      I also found — through chron’s friends — an MD that specialized in “integrated medicine” — an MD focused on supporting my body with nutrients, supplements, etc. (Vitamin B shots, for example), so my body could heal. He’s also an MD and could prescribe other medications as needed. By itself, this didn’t fix anything…but it was CRITICAL to my path. Without it my body would not have the strength to heal. My supplement bill was hundreds of dollars, btw. My diet initially was SCD — and I learned my triggers (could not tolerate a multi vitamin, for example).

      And change was slow….but constant.

      MD was a guy I could bring ideas and research, but he knew what supplements might hurt vs help (e.g. he stated don’t take anything that increases nitric oxide)…

      He also suggested Hyperbaric therapy — very little research on UC, plenty of research on other autoimmune. Wow, really worked. that was 7 years ago — haven’t thought of HB until just now; I can elaborate if needed. Expensive; so if you are mild, probably not worth the $?

      my point is that there are very likely answers out there for you…but they are individual answers. What works for me may not work for you. Although there are themes and trends…SCD diet for example, getting off wheat, off high fructose corn syrup, etc. Those are themes I’ve heard from many UC folks. Keep trying to find what feeds your body and what it rejects!

      In time, hopefully you will get to where you want to be! Took me many years, but then I was far far worse than you….

  12. Liz NewtonJanuary 1, 2013 at 11:59 pm #

    Hi, I was diagnosed with UC back in September and prescribed Asacol medication which was the only thing the doctors advised me on – no diet sheet, no tips, they poo-pooed the idea of this debilitating illness being related to stress! My marriage just broke up and guess what – I’m in the midst of my second flare-up and it’s bloody awful. I just found this website today and hallelujah! Thank you :) Great tips and great to know there are others in this boat. I will conquer it, I’ve started on the SCD diet and fingers crossed, it works. I endeavour to visit a naturopath soon too. Keep up the tips guys.
    Big up to you Adam and fellow UC’ers
    Liz
    New Zealand

  13. KarinMay 4, 2013 at 7:46 pm #

    Hi Adam~ I have just gotten over my second colitis flare, it was horrific. I haven’t had a flare for over 20 years and I forgot just how painful, frightening and weak it makes you feel. I noticed that right before both flares, I had been juicing and using a protein/diet drink. I think that changed the acid level in my tummy and caused the flares.

    I had prednisone and dipentum the first time around, that was back in the early 90’s. This time I took antibiotics and Asocal. I just took the Asacol for a week, and my tummy is way better. The only thing that sounded good to eat for two weeks was a Jr Whopper meal with cheese and no mayo and fries… I ate that every day until I felt better. It was hell eating and drinking initially and I needed anti nausea meds and pain killers. My heart goes out to all sufferers of this horrid thing. Thank you for your website. <3

    • AdamMay 5, 2013 at 5:12 am #

      Hey Karin,
      That’s great news that you have gotten out of a flare!! Seriously, awesome news and thanks for sharing how!

      I wish you another 20 plus years of remission and a happy Cinco de Drinko day too!

      Thx for being part of the site,
      Adam

  14. SarahMay 5, 2013 at 5:59 am #

    Just read this for the first time. Thanks you give me hope after I spent last night in the ER. Good news ? sent home with low dose prednisone and forging on with SCD, I am 7 days in with reduced frequency so far! Keep your fingers crossed for me and the 22 week old baby in the oven. This Les sounds like someone I would be in awe of too!

    • Jen From UK
      JenMay 13, 2013 at 2:59 pm #

      All the best and congrats on the baby!

  15. Jen From UK
    JenMay 13, 2013 at 3:05 pm #

    12 month and 3 days into my first flare… HEAL colon right about now would be great! TrIed SCD without success, probiotics (best I could find), l-glutamine seems to give me major increase in pain and urgency about an hour after drinking it, evoo not helping but continuing as its doing wonders for my skin, mesalazines, azathioprine, pred for 7 months and budesonide coming on 3 months. Remission is so elusive. Seeing GI on 28th and we want to discuss surgery but stories like these give me hope that maybe I don’t have to lose my colon…

  16. humbleAugust 15, 2013 at 12:34 pm #

    In colitis,normally how much part of large intestine is inflamed?

    • AdamAugust 15, 2013 at 3:59 pm #

      Hi Humble,

      it really all depends. Some people can have their entire colon inflammed (which is usually found out through a colonoscopy) but sometimes it is only certain sections of the colon.

      The most common part of the colon to be inflamed is the sigmoid region, which us common folk call the last quarter of the colon.

      Best of luck to you,

      -Adam

  17. LeslieNovember 4, 2013 at 1:04 pm #

    I’ve been free from Colitis symptoms for 5 years now!

    it started out very bad, the flare lasted over a year, and I was at the point where I thought I was dying. I was in pain all the time, lost tons of weight, and even wore a diaper when I went out.

    finally I was diagnosed with severe pan colitis and given pentassa. but my body did not respond well .

    a few months later I found the SCD diet, which started to work ! I used it in conjuction with medication and enjoyed less frequent and less watery poops with less pain.

    then I was prayed for by some people at a church. I got steadily better. Eventually I started weaning off the diet and the meds. I gave birth to a son and had a colonoscopy shortly after. the GI told y colon looked healthy, and that he didn’t need to see me anymore!

    I still have a bit of sensitivity to bread and junkfood if I eat too much of it ill get a bout of softer poops, but that it! Its totally gone, without medicaton or diet, and has stayed that way for nearly 6 years now. I couldn’t be happier.

    I’m not saying this will happen to you, but it could. it worked for me. If you’re not too sceptical about it, find people who will pray for you in the name of Jesus, its worth a try I think, and it certainly can’t hurt. :)

    • AdamNovember 10, 2013 at 8:57 pm #

      Congrats to you Leslie, I’m glad to hear about your success. I’d definitely stay away from the bread and junk food, that stuff is a known killer to most with UC.

  18. Richard NevilleNovember 10, 2013 at 7:10 am #

    I am diagnosed UC, About 3 years, total hell, up to 12 times a day in loo, lost 2 stone. Have had mesren, doctors encouraged steroids, with no concern over existing thyroid, fatigue and adrenal problems, so i did not. Mesren helped to a point, but not a cure, but gave me constant cough, alleviated a little with asthma inhalers, but persisted. Changed Mesren for Pentassa, same but now much much worse fatigue. I read about Vitamin D3, mega dose, yes 40,000 IU daily, never looked back, from day 2. Brilliant. I have just reduced, after 11 months, no flares, blood or pus, to 20,000 IU, Still 100%. It appears it in itself is an anti- inflammatory, plus it boosted my Vitamin D from 29nm/ml to at last count (min should be 80) 175, the upper limit is about 350nm/ml. I also use a Vitamin D lamp, from Sperti, (about £300 plus VAT) it stimulates Vitamin D receptors and i am convinced rectified, yes rectified, my excess bile. I claimed VAT exemption when billed by delivery company, accepted on medical grounds, see HMRC web site for details. I also use digestive enzymes, Pancreatin, 4X500mg, single capsule from NOW,( i believe that poor digestion should be supported, not pandered to ) mostly non enteric coated, so they assist digestion in stomach and absorption, especially minerals, i had ultra sensitive teeth, cured. Dentist said he would drill out mercury fillings and root canal work, what rubbish. I was simply massively deficient in vit d. My sister has crones disease, she is very impressed with Vit D, she takes 20,000 IU daily. I take no medication for UC now, 11th month. Nice thing with Vit D, totally complementary, so simply add to medication, then hopefully when feeling better, back off drugs if you choose, before Mesalazine kills you, i’m convinced it would me. I also use Fybogel, initially 6x daily, now 2-3 daily, i find it very good, yes somewhat windy until used to it. Vit D3, must be D3, made from irradiated lanolin, that how sheep get vit d. D2 does not work as it is not a natural anti-inflamatory. I read research where D3 actually kill colitis cell in vitro dishes, it works in me and with my sister’s crones. 10’000 IU Vit D, recommended on web site was “Healthy Origins” 360 tabs £25 delivered, Ebay, or on line other. Being complementary, what have you got to loose? Good luck, i’ve got my life back, no thanks to doctors! If you look up on line Vitamin D, search cholecalciferol, the correct terminology, otherwise you get all the usual rubbish. The American government started research in April 2013 into it, i am not waiting, it’s helped me already.
    Richard

  19. AbrahamFebruary 1, 2014 at 2:07 am #

    Abraham
    28 years old – Male
    around 3 years ago ( 2010 ) I had bleeding and mucus in my stool
    gastroenterologist diagnosis was “sever Proctitis” after Colonoscopy and prescribed “Pentasa” suppository (1g). ( I had no risky sex exp never ever)

    I took almost 40 suppository start form every day – then every other day- every 2 weeks and so on … (for around 3 month )

    From the time I gave up till now is around 2 year and I never ever faced any symptoms of Proctitis ( no bleeding – no mucus- no discharge , no diarrhea ) I should also add that during this time I controlled my stress and especially controlled my diet ( sugar- chocolate- milk- yoghourt and … )
    Just one case I am really worry and I don’t know is it related to my previous disease or not and that’s it : ( I would really appreciate if you could share your experience about this )
    during this 3,4 month ago sometimes when I get up in the morning I feel that I have phlegm in my mouth and the color always is white and green ( but I don’t have any other UC symptoms )

    please help (My first experience of colonoscopy was not good. should I repeat it again ? )

    • AdamFebruary 1, 2014 at 4:56 am #

      Abraham,

      If you are at all concerned (which clearly you are) I’d recommend you contact your doctor, let them know, and seek some sort of testing to help out with the strange symptoms you’ve mentioned. I myself have never experienced that phlegm you mentioned.

      Best,

      Adam

  20. GigiFebruary 20, 2014 at 11:41 pm #

    I am so thrilled to have found you! I have had digestive issues I’ve the years but treated with immodium to success. But over the past several years I have had episodes (2-4 per year) of terrifically violent explosive diarrhea accompanied by sometimes fainting. I’ve tried a few modifications in diet, i.e. lactose but food didn’t seem to make a difference. Two weeks ago I had a canker sore invasion of mammoth proportions followed three days later by a daiahhrea

  21. JudyAugust 8, 2014 at 2:41 pm #

    My name is Judy, I have had UC since I was 16. I am 45 now. I had a flare a year ago, but the colozol caused me a lot of pain in my abdomen. Two months ago, I started having pains in my esophagus. It felt like it was spasm too. At first they though it was my heart then GERD. Well, I Lost my insurance and my gastro i had for 15 years. Medi cal has been making us wait to see a dr. for two months. And the pain is so bad ive been to the ER 4 times with shortness of breath and a weird smog like feeling in my esophagus. Has anyone experienced this. So, the ER’s to get rid of me prescribed Malox! Whihc has brought on the worst and lasting diarrhea and now blood in it. Prilosec hurt me bad and then they gave me xanex trying to mask the symptoms. Today saw a new gastro who knew nothing of my history and put me on sulfasalazine because it is what i was on when i was first diagnosed. I am suppose to start the sulfa tomorrow. They are guessing maybe esophageal spasm disease, which i don’t now what that is, I just want ti to stop, it has completely stopped my life. Ive been on the couch for two months with shortness of breath and now the onset of I think the colitis from the medications they tried on me. I take a xanex at night just to feel like my muscles are loose and relaxed so i can fall asleep.

  22. PJAugust 12, 2014 at 3:08 pm #

    Hey Adam or anybody that might be able to answer this question:

    I am going to start the SCD diet this week for my UC flare. I noticed that no carbs are allowed, but I am not really too sure if I’ll be able to handle that.

    My diet has been pretty bad, and am pretty certain that it’s what has caused my first flare up. However, over the past 2 weeks, I have cut back and have been eating a clean diet – and my symptoms are improving. I do eat white rice everyday, and have heard from a number of people that it is ok to eat for UC.
    Have you cut out white rice, or do you (or anybody else) still enjoy rice? I was also curious about corn tortillas. I think I can cut the rest of the carbs, but am hopeful that I can continue to enjoy these 2 things, as they don’t seem to bother my flare up or UC ever.

    Thanks

    • AdamAugust 12, 2014 at 10:44 pm #

      Hey PJ,

      Both corn tortillas and white rice are things that are not “allowed” on the SCD diet and are considered illegal, but as we all know, there are also things that seem to work well for some people but not everyone. So, if you try starting SCD and you still continue to eat white rice and corn tortillas and you see your symptoms go away and feel good…, well that might be something that just happens to work for you.

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