8 years with UC
4 or 5 colonsocopies to date
4 times been told to have surgery…I declined with a passion to get well myself.
Not taken steriods for 2 years, happy with my choice as my lower back bone density was a bit below average
Some more about me:
I just a nice guy aged 31 from the UK light framed 5ft 10″, very skillful with my hands (a former carpenter) but I have a natural talent of learning anything new in a short amount of time. I would have lots of hobbies if my UC wasn’t an issue, such as getting wasted in the sunshine on holiday, clubbing, motorbikes, golf, snowboarding and smiling with good friends. My actual hobbies with UC include watching Tv Shows, computer games.
For a very long time with very little breaks I have been sprinting to the loo from about 5 to 7 times a day, patches of 10 to 15 times a day which is what I call a bad flare for me. This year has been my best yet s ofar with trips from 3-5 times a day I think it’s to soon to predict i’m getting better as the hot weather sometimes changes my UC for the better.
Heart Attack- Cured Ulcerative Colitis
Hi all Richard here I actually wanted bring up a subject about a guy I was talking to in the waiting room for my last colonsocopy which was over 3 months ago.
So I was sitting their in my dressing gown and sat down across from the other nice older chap who looked rather well considering he was about to have a colonsocopy. It’s not the most fun thing to have when your feeling bad so I asked him if he had UC and he said he used to. I asked him how did he cure his UC to which he told me with a smile ‘oh I had a heart attack’, ‘which cured my UC’. Wow I said. He said he was just here to have it checked to confirm he was cured. Nurse came in and took him in so conversion was cut short.
This was all I wanted to share, I guess I wanted to learn what happened to the guy who cured himself? Who survived a heart attack and as a result cured his Ulcerative Colitis. If you have any logical reasons to the why please share your ideas.
Right so this year I started buying lots of new stuff to try to see if any of it works, most of the suggestions come from reading peoples stories and I thank you for the good suggestions. I would like to try that Fecal Microbiota Transplant Therapy, but since I am from the UK I think this kind of thing would take another 5 years to get to the UK, so does anyone have a good suggestion as to how I can get this FMT in the UK? does it cost loads? how does it work? IF you made it this far down I thank you for reading cheers Rich.
Medications and Supplements I’ve Tried:
octasa 800mg x6 per day.
x1 VSL #3 per day (would like to try more but woo cost to much money)
x1 Ultimare Flora Critical Care 50 billion blah blah
x1 Hawaiian Astaxanthin 12mg
x1 Marley’s Mellow Mood relaxation drink (would drink more but costs to much, good stuff)
x1 teaspoon of L-Glutamine powder (maybe would take more if I actually exercise lol)
written by Richard
submitted in the colitis venting area