Ulcerative Colitis Tips


The FREE iHaveUC eBook "Ulcerative Colitis Tips" is made available to all members of the 15,000 person newsletter group INSTANTLY. It is several pages of tips gathered from other people living with Ulcerative Colitis, and has ideas which can be put into action immediately. You will need to enter your email, and confirm the email address afterwards.

Happy Valentine’s Day! You Have Ulcerative Colitis!

Intro:

Hi everyone! I’m 26 years old and was diagnosed with UC on February 16th of this year. I am a student of Shotokan Karate, and am currently a brown belt working toward my black (hopefully this year!).

Story:

First of all, let me say that I am SO encouraged by everyone’s individual stories. My condition, I don’t think, is as severe as a lot of others here, but this whole being diagnosed with UC is still new, frustrating and slightly scary. With that said, I am sorry to all you who are suffering more severely. I hope that everyone out there finds the right treatment and goes into remission ASAP.

So, here’s my story…

Just after New Year’s I started having Ulcerative Colitis symptoms (though, I didn’t know what UC was at the time). After about a month of it, I finally decided to see a doctor. She decided it was IBS and gave me some antibiotics. Two weeks later, after getting worse, I went BACK to the doctor where they ran several tests and told me that they were going to send me to a GI immediately for a colonoscopy… I had the very same response many others have had… ARE YOU KIDDING ME!?

You all know how the prep for a colonoscopy goes (clear liquid diet, colon cleanse stuff, sleepless night on toilet, etc.)… but mine was a bit different. They gave me that MoviPrep garbage and unfortunately I was unable to keep it down. I called the on-call doctor who told me to go get a $2 bottle of some laxative called Magnesium Citrate after about 3 hours of TRYING to keep the MoviPrep down.

So, the colonoscopy went as most do, I’m sure and the GI told me that she’d narrowed it down to Crohn’s or Ulcerative Colitis and gave me some brochures to read until the results came back (a week later).

Two days after that, both my GI and my GP wanted to do bloodwork, so I killed two birds with one stone, and had my GP fax my results to my GI. After getting stuck with a needle for the 7th time that week (I HAVE A HORRIBLE FEAR OF NEEDLES), my GP told me that my blood count had dropped 6 points since Monday and that she was going to schedule me for a blood transfusion the next day (on VALENTINE’S DAY WEEKEND!). My immediate response was shock and fear. So, I walked out to my car, called my boyfriend and had a complete nervous breakdown. I am so thankful that he is such a strong man who took everything that I dished out (yelling, sobbing, cursing, etc.). He calmly responded by saying, “Darling, I’m going with you. I’ll be holding your hand the whole time. Everything’s gonna be ok.” And it was. It actually wasn’t as bad as I thought it was going to be (though, I STILL HATE NEEDLES).

I got my test results a week later informing me that I have UC. My doctor put me on some medications (listed below) and I’m currently waiting to go into remission. The doctor tells me that I can’t work out in my karate classes too hard for a while (FRUSTRATION), but I can ease back into it. I have seen some improvement. I feel stronger. I’m only having one bowel movement a day (as opposed to 8)… though, I am still seeing some blood (which is frustrating), but I suppose that because there is improvement I am getting better… are there any words of encouragement out there about still seeing blood? HA! I feel very strange asking that question.

Medications:

Prednisone 20mgs x 4 a day… currently tapering. Evil, but miraculous drug.
Balsalazide (the off-brand of Colazal) – HORSE PILLS x 3 a day.


DavesNinja’s story is now entered into the 2011 Ulcerative Colitis Writing Contest!!! You Can Join too, click here for details




5 Responses to Happy Valentine’s Day! You Have Ulcerative Colitis!

  1. Steph March 10, 2011 at 10:45 pm #

    Congrats on making it through your first flare. The first one is the worst because you have NO IDEA what is going on. It gets better! When I recover from a flare, I notice a cycle that happens every time. First the diarrhea gets better. My BMs become more solid and less…foul smelling. Sometimes I go a whole day without pooing. Then the blood goes away. Then the mucus is the last thing to go. Then I get gassy for a few days. Maybe your body is following a similar cycle. I hope you continue to see improvement!

    • DavesNinja March 11, 2011 at 4:03 am #

      Steph, Thanks for the response and the encouragement! :) It’s so nice to know you’re not alone in a battle like this! :)

  2. Jen March 12, 2011 at 2:52 pm #

    Yeah, it is terrible to be racked with pain and not having a name for what you have. I remember feeling relieved when they finally said I had UC. I wrote about all my experiences pre-diagnosis on this site. Do not feel at all modest about posting about symptoms! Everybody here has been through what you have. I hope that you can get off the prednisone soon and stay in remission with just the Colazol. I’ll tell you what I wish someone had said to me when I began the treatments. Medical doctors sometimes only give you information on drugs they say will help you and if one doesn’t help they move on to the next one, and the next one. There are other things I started that have given me more relief. You found this site, that’s one. The support you get from others who understand your pain cannot be minimized. Diet is another. My docs all told me diet had nothing to do with it. I started the SCD, as many others on this site have done, and I’ve noticed an extremely positive change. I just started acupuncture and I hope that helps as well. Open your mind to alternative therapies in the beginning. It took me a long time living with pain before I reached out to alternative therapies. I hope you find relief, its a long road ahead. This thing doesn’t go away, but you can still live a rich full life. It sounds like you have an extremely supportive boyfriend and thats wonderful! Your faith will guide you. I think it was my faith that led me into this new way of eating and opened my mind to alternatives. I am more hopeful than ever. Good luck to you.
    Jen

  3. Amber March 14, 2011 at 6:22 am #

    Thanks, Jen! Your post was definitely helpful! Definitely going to be checking out the SCD. I’ve been doing lots of research on “alternative therapies.” Being on crazy meds forever is not something I’m fond of. I hope that you continue to see positive changes with SCD!!! :) Keep us all updated!

  4. Jack March 29, 2011 at 11:36 am #

    Ninja, I’m not sure why your doctor told you to take it easy on the exercise. Maybe it has to do with your blood count. But I can tell you that I’m a weightlifter, and when my disease was fully active, I would go to the gym for intense workouts as long as I felt well enough to stand. Sure, I was weak and in pain, but the workouts made me feel better emotionally and physically. I also took long walks–many times having an attack more than an mile away from my bathroom and having to hold it all the way home. It’s amazing what the body can do if you test its limits. That said, you have to do what’s right for you.
    Though Imuran has kept my disease under control for 9 years, I occasionally see a little blood. I don’t worry about it much because that’s not hard to live with. I just keep my regular checkups and am completely honest with my doctor about what I’m feeling and what I’m doing (including physical activity).
    I hope you attain all your goals and then some!

Leave a Reply