Ulcerative Colitis Tips


One of the 15,000 ulcerative colitis folks using the site adds:
"Like many UCers I have spent many hours trawling the internet googling the condition and came across your website a few years ago. I read your ebook and really liked your honesty and humour. As everyone says your positivity is so encouraging and now this is my go to website when I'm thinking about UC. Thankfully my symptoms are pretty much under control at the moment but just wanted to say thanks." Kate

Goodbye Remicade – Hello Newborn Baby!

Kimberly with kids

I was diagnosed in 2001 with this disease and have had ups and downs over the years. I started out as a mild case but in 2009 turned into more of a severe case. I have had about 6 colonoscopies and have been on several meds.

Some more about Kimberly:

So…I have two beautiful daughter-my favorite thing about myself. My biggest and best accomplishment. A 2.5 year old and a 3 month old. After the 2.5 year old I had such a bad flare I wondered if I could ever have a second baby. Here I am with a newborn and life is wonderful!

I am married to a wonderful husband. He is in the marines so we move a lot. Our current location: Hawaii!!
I also have a doberman and minpin. A great family and I am one lucky gal. I even get to stay at home with my girls. They keep me very busy.

I like jogging but I haven’t gone in forever! Still trying to adjust to this whole second baby thing.

Symptoms…Or Not…

I am pretty well under control at the moment! Occasionally I may have a day where I feel “flareish”. Maybe 2 to 3 extra bowel movements that day. But no blood or major pain or diarhea in quite some time and normally only 1-2 bowel movements a day!

Goodbye Remicade. Hello newborn baby!!

Guys, I have posted my story in the past. At the time I was really flaring and wondering about baby 2. I just wanted to update that I did indeed have my second baby and yes I did finally get better!

I also wanted to say, I was able to get off remicade, which was another goal for me. I wasn’t sure if that was ever going to happen!!

My bad flare finally ended in Sept 2012, when I went on remicade. I was in close to remission on remicade. But I hated being on it, I hate the weaker immune system thing and the risks involved. In October 2013 I found out I was pregnant! Still on remicade at that point. I took it until I was 26 weeks and then stopped with the ok of my doctor. So at that point, I was only on my other medication which is lialda, 4 per day, canasa as needed, and I take my daily super probiotic ultra flora (thanks Bev). I was scared that I would flare without that remicade. But I didn’t. And she was born July 1. Still 3 months later I am still ok. Not perfect but ok. And I hope to not have to do pred or a biologic again. Ugh.

At the end of my pregnancy, my wonderful best ever GI doctor left. So I was seeing another at the same office. He wanted me to go back on remicade one week after birth. But the remicade nurse said no. You have to heal first, wait 6-8 weeks. So I did. Then I went back to GI but saw a nurse instead of the doctor. She was very pro breastfeeding with less meds and she was very the less medication the better, unlike the other guy. I was so happy. She supported my decision to stay on only lialda and canasa. And here I am.

I do worry I will flare again. It is apparently very common to flare after birth and stress ect. So I’m almost waiting for a flare to start. How do I not do this? It makes me stress even more. But for now, all is well, so glad I have my girls. :)

Medications / Supplements Kimberly’s used:

Asacol-several years, replaced with Lialda. Works ok
Canasa-for when I start having a little symptoms, take it as needed, it helps.
Probiotic 50 billion-think it helps
have taken L-glutamine powder, stopped during pregnancy and breastfeeding only because effects are unknown.
Imuran-bad side effects-hair loss-yuck.
Prednisone-worked for a few flares but last flare did nothing. Awful side effects
Remicade-worked well, would start getting symptoms back between infusions. towards the end was not working as well.

written by Kimberly

submitted in the colitis venting area
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baby

2 Responses to Goodbye Remicade – Hello Newborn Baby!

  1. Darlene October 17, 2014 at 1:21 pm #

    Hi, Kimberly.

    Just a thought about the stress of recent childbirth, an newborn and a very young child. Having some help could help you stress less. Think about having someone help you one or two days (or nights) a week. You could sleep, run errands, visit friends, sight- see or do anything to bring relaxation and rest. Or you could find someone to help you do your laundry or prepare meals for the week . Maybe you and a girlfriend could cook together for both families. Think creatively.

    Taking 2000 mg of chlorella in the morning and again at night helps me tremendously. It’s available in 1000 mg pills and are fairly cheap in vitamin shops.

    Blessings to you.

    Darlene

  2. Barb October 21, 2014 at 10:50 am #

    Hi Kim,

    Staying stress free is hard to do especial with 2 young children. I have been battling UC for 16 years now. I am currently doing remicade will be a year in Nov. I am not crazy about the low immune system either hoping to get off some day. I have been doing meditation and just started yoga to keep stress levels down. I think if I can stick to this and a clean diet I should be able to get off the remicade.

    If you find some time you should try meditation and yoga =) Good luck with your youngins…….peace and serenity =)

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