My name is Amanda Bryan I am 46 and was diagnosed when I was 21 just after having my first child. Moderate Colitis was reconfirmed in July this year and this current flare is showing no sign of regression.
Some more background:
I have an animal care college and two children one of whom is a musician and actor and the other Figure skates. My only hobby is her i am afraid…. My son is too old he tells me so I am his greatest fan! my daughter is my entire social life.
I have sore swollen tummy ( like a football) and blood some days none somedays some somedays its like mass murder has been committed in the bathroom! these are the days I despair. Its been 6 months now and nothing i do is having an effect.
Back then 24 years ago, I was put on Asacol mesalazine and Predfoam enemas which took me into remission and for the last 23 years every time i had a little vision of blood I popped myself back onto the meds and hey presto, so as soon as the blood disappeared I stopped taking the meds, no medical supervision!
I left all wheat and gluten out of my diet and brought it back under control. Each time, which I have to say was not many over the years it became a little worse and I always got a what I called an Itch on both my left and right side just under my rib cage which slowly and sometimes turned to a sting! lots of water meds and prunes I was always ok. Until last June, my bowels became explosive and then I began to bleed increasing to a few times daily and a tad weight loss and sore… the itch was sore. I tried probiotics and some kind of oil that is meant to repair mucous membrane, seemed to make me worse. So I stopped saw a specialist in July had a sigmoid and was placed back on asacol full dose, prednisalone enema once a day, which she took me off in September but I put myself back on in November and I am still taking. Due for a sigmoid on 19 Dec. Nothing is working, can anyone help me, I don’t think I am ever going to be well again for my daughter.
I would like to know why I can’t get to grips with the bleeding and what if anything is thought to help this stop. When you say EVOO really, or is it a special kind for taking and what is this L-? Sorry this is the UK, we appear to be very restricted in our education of this disease?
Medications & Supplements Amanda’s Using:
written by Amanda
submitted in the colitis venting area