Ulcerative Colitis Tips


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Flared Up Female

Intro:

24 year old female from Philadelphia, PA who was diagnosed with ulcerative colitis at the age of 16. Long period of remission, and then back to the flare up.

Colitis Symptoms:

Blood, blood, blood.

The urgency has gone down a lot since I was put on prednisone.

My Colitis Story:

First diagnosed in high school and suffered through a flare up for over a year, before I was finally in remission. Remission lasted for a few years, and I felt great! So great that I decided 11 pills a day wasn’t for me anymore. Surprisingly I stayed symptom free without the meds and I ate what I want.
This year, one dreadful night, some type of stomach bug and throwing up- and boom!- the blood was back.

I hadn’t seen blood come out that end

in a long time- crap,

I almost forgot I had UC!

But there it was. So a few weeks later, I needed to get back to the doc. A new GI doctor- One Flex sigmoid later- and I was back on all the medication and the diet. The diet has been the hardest part this time around. I was used to eating pretty much whatever I wanted. Now- I’m struggling.

My family is now back to the point of constant concern- back when I was first diagnosed, that constant concern was great- it was exactly what I needed. Now that I’m older (and I hope wiser), all the “how are you feelings” and the “are you eating rights” tend to drive me crazy- I don’t know why they do, I know that they are just “concerned.”
The boyfriend has been great actually. He didn’t know me when I was first diagnosed- and has only known “remission Kristen”. So he’s going through the first flare up. He’s trying to learn, and give me the space I need to get through it. He even makes jokes- and reminds me about taking my “butt pills.” Haha!

Here I am- trying to get back to that place where I had almost forgotten about this ugly disease. I know I can get there- it just takes time and patience.

Where I’d like to be in 1 Year:

Thinking about everything in my life- a year from now I’d love to have a job that I LOVE, a pretty engagement ring :-), a few $$$ away from owning my own home- and of course, blood free poops!!!

Doesn’t sound like the wildest dream, does it??

Medications:

When I first was diagnosed I was put on Asacol- it never worked.

I went into remission on Colozal and 6-MP. Worked great!

Currrently on Colozal, 6-MP and Prednisone (hopefully for not much longer).

written by Kristen

submitted in the Colitis Venting Area




6mp

4 Responses to Flared Up Female

  1. Maggie May 19, 2012 at 2:47 pm #

    Thanks for the chuckle, Kristen, about the “butt pills,” that was a good one. Sounds like your boyfriend has a good sense of humor. My boyfriend does, too. He makes jokes about it, too, sometimes, like how I need a butt plug. Boy, isn’t that the truth. I’m in a mild flare. I thought I was over it as of last Monday and this morning I had blood on the tp! I was bummed, I was off my meds. I only use Budenisone, Canasa, and Immodium when I have diarrhea, that helps. No alchohol, no caffiene no gluten. Hope you get over your flare soon.

  2. Amos May 19, 2012 at 3:54 pm #

    Thanks for sharing your story Kristen. Good luck.

  3. uma May 19, 2012 at 6:19 pm #

    Rightly said, time and patience to get out of flares.

  4. Phyllis Bovaird May 20, 2012 at 8:44 pm #

    Kristen, I am so sorry to hear you have come out of remission. Have the doctors mentioned Lialda t you? I was bleeding badly in 2008 and three months on Lialda and the enemas at night pulled me out of it. Thank God I have been in remission since 2008. I watch my diet and try to keep my stress level under control. Good luck in getting better! I know it is very hard to deal with. God Bless you.

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