Ulcerative Colitis Tips


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Finally, I Feel Like I Really Have Ulcerative Colitis

I had my first Ulcerative Colitis symptom when I was 14 years old.

I noticed that there was blood in on the toilet paper one evening, concerned, I informed my father who replied

“you’ll be fine, it will go away.”

After the symptoms got worse over the next few months I had to have a colonoscopy, and was diagnosed with UC. I began the Asacol, and Rowasa enema regimen and was symptom free in a matter of weeks. After a while I was able to successfully wean myself off of all medications by the age of 16, and lived a healthy UC free life. After high school I enlisted in the Navy, and at the age of 21 I experienced another flare up of UC symptoms. I was stationed oversea’s in Italy at the time, and had to be MEDEVACED to the Naval Hospital in Naples Italy. Fortunately I got to the hospital on a Friday, and was able to see a GI doctor who once again prescribed me Asacol and Rowasa enemas. I started the medicines that Friday, (I remember not having a bowel movement all weekend) and by the time I had my next bowel movement on Monday I was symptom free.

They followed up with another colonoscopy a few months later to ensure that I was UC free. Again, I was able to wean myself off of the medications again and enjoyed life UC free. Two years later I was stationed in Washington State and had a follow up appointment with a new GI doctor, who was opposed to the idea of not taking a maintenance dosage of Asacol. The doctor prescribed me twice the dosage that I was taking when I was experiencing UC symptoms, which I questioned heavily. I took the medicine one day, the very next day I was experiencing a flare up, I stopped taking the medicine and the symptoms cleared themselves. Between 2007 and 2010 I experienced two minor flare ups that were treated well with medicine and cleared up.

In 2011, I have been experiencing signs of UC, for the most part they have been moderate and controlled. Around July the urgency to go to the bathroom and the quantity of blood I was losing was too much for me to just write off as minor UC symptoms so I went to the doctors…. Here is where my UC roller coaster ride has begun… I was prescribed Rowasa enemas, Canasa suppositories, Asacol, a 6 day dose pack of Prednisone, and a few other drugs I have never been on before. Having the great turn around from past flare ups I was optimistic about my recovery. Initially I had signs of improvement that eventually got worse as I weaned myself off the Prednisone. I finally got my referral through to see a GI doctor a few weeks after seeing my primary care physician. The GI doctor prescribed me steroid enemas, and increased my dosage of Asacol. I started this new medication regimen a few days before going on a trip to Virginia to complete my annual training for the Navy. Initially there were signs of improvement, however, after the first week the symptoms once again took a turn for the worse. Thankfully my chain of command was understanding with my condition and I was able to sit out the last week of my training so I could be within a reasonable distance to a toilet.

With my symptoms progressively getting worse I went back to the GI the first day I was back in town (which was also my first day of my fall semester). The GI doctor prescribed me a larger dosage of prednisone with a 6 week taper period. This helped me out for the first week, and as my daily dosage is getting smaller the symptoms are once again progressively getting worse. Right now I am at the point where I have to wake up 2-2.5 hours before I have to leave for classes just to make sure I have enough time on the toilet. On Thursday I am scheduled for a short scope test to see how bad my UC currently is. I am hoping that I will be able to get over this flare up soon.

As for my diet, I am in the early stages of starting the SCD diet. My yogurt maker is scheduled to arrive tomorrow and I am going to use that as the kick off point for my SCD diet.

Thank you Adam for the website, and UC network you have created.

Lastly, I would like to thank my wonderful wife Emmy for being there for me as I have struggled with my worse UC symptoms ever, all while during our time as newly weds. I love you.

Submitted by “Colin” in the Colitis Venting Area

 

To Read More about starting the SCD Diet:  Click Here

Also, you can read more stories about: Starting the SCD Diet Here

 




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4 Responses to Finally, I Feel Like I Really Have Ulcerative Colitis

  1. Adam
    Adam September 7, 2011 at 11:25 pm #

    Hey Colin,

    Congrats on starting the diet. Did your yogurt maker arrive yet? I hope if you got it that you had some fun making your first batch of yogurt. Just remember to take it easy with the yogurt your first time making it. Start out with a VERY small amount to make sure your body is ready for it. You can always increase the intake slooooooooowly over time, but many peple say its a good idea just to start out with a tiny spoonful for the first several days and gradually increase the amount from there on out. Talk to you soon, and keep us posted on your progress with SCD.

    Adam

    • Colin September 10, 2011 at 3:57 pm #

      Hey Adam,

      Yes I got my yogurt maker and made my first batch of SCD yogurt the same day. I appreciate the advice about starting off slow with the yogurt, currently I am only having a spoon full or two a day. Thursday I also had a flexible sigmoidoscopy, the doctor told me that my UC was severely irritated and he increased my prednisone to 10 tablets a day for two weeks, and Asacol 4 tablets 3 times a day. Also, he informed me that if I don’t show improvement in a week that I will likely have to be hospitalized for treatment, and for the first time Remicade was mentioned as a possible treatment. I am hoping that the combination of the medicines and the diet will help me enter remission.

      -Colin

      • Adam
        Adam September 10, 2011 at 7:34 pm #

        Hey Colin,

        I wish you the VERY BEST of good luck. Your situation keeps sounding more and more similar to what I went through exactly 2 yrs ago.
        Hang in there. You’re going to get on a good roll soon. Have you seen any positive signs so far from the diet? Anything coming out harder… or any reduction in bleeding?
        I’ll keep my fingers and toes crossed that you stay out of the hospital. You wouldn’t be the first to have a good turnaround with the diet, so I hope that happens to you.
        all the best,adam

  2. Colin September 11, 2011 at 2:01 am #

    Adam,

    Actually, this morning I had a significantly less amount of blood. However, my it was of a diarrhea consistency, which is fine with me at the moment. I have been having hard bowel movements throughout the course of this flare up, just a lot of blood. I am extremely optimistic about the diet. Thanks again.

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