Introduction:
Hello,
I am a 30 year old male from Rhode Island, who was diagnosed via colonoscopy on May 16, 2013. I am pretty sure that I have had a form of UC/IBS/IBD for my entire life as there have always been issues with the downstairs. Pretty much like Adam’s book, I was convinced it was just normal for me to go to the bathroom as frequent as I was and that it was just a fast metabolism, never had blood until my 30th birthday in April.
I am a very active once energetic individual. But this UC is taking its toll on me, lost 19 pounds in a month.
My doctor is Eric Newton at University GI here in RI and I have recently contacted Massachusetts General Hospital for IBD Center (http://www.massgeneral.org/csibd/) and awaiting a call back to head to Boston to see what they have to offer.
Some more about me:
Some fun facts about myself, I am a pretty active fun guy! A computer Engineer by day and personal trainer by night! I have completed a Tough Mudder (12 mile obstacle course) ran 2 5K obstacle courses, avid mountain biker/skier, enjoy camping with my girlfriend and luckily I love to cook! Seems it’s a pre requisite if you have UC!
Living in New England has its advantages/disadvantages, a lot of outdoor activities but the weather isn’t always the best!
Symptoms:
Currently I am on 40 mg of Prednisone (2.5 weeks), 4 Lialda /day and an omeprazole all taken first thing in the morning.
I have about 2-5 BM’s a day mornings and late nights are the worst usually no blood but recently been seeing some drops of blood during the early morning BM.
My main question is with pancolitis and the amount of prednisone/lialda shouldn’t I have some sort of formed BM? I feel a whole lot better now that I’m on the steroids but not seeing formed BM’s has me worried that my colon isn’t working or has forgot how to work!
Feeling Hopeless & Confused!
Since my colonoscopy in May, I was experiencing some bloody BM’s and pretty bad bloating/cramping, went to my Dr and he was pretty sure it was just internal hemorrhoids as I was to healthy and active to have anything else! Took a stomach bug antibiotic to rule any parasites living in my GUT and GI track. After my situation didn’t improve it was time to go see a GI doctor.
Dr. Newton was very straight forward, said its either IBS –D or a form of colitis. Scheduled my colonoscopy and received the bad news of UC pancolitis when I woke up!
Started on Lialda 4 pills a day and when nothing improved added in Uceris. The Uceris did nothing for my symptoms either ( took for 2 weeks) at this point is when I have lost about 19 pounds weighted only 161lbs at 5 foot 9. Dr prescribed 40mg of Prednisone a day. I have been on the prednisone with Lialda for 2.5 weeks now with some signs of improvement but still not a solid BM. My diet is getting better, just not really sure what I should be doing!
Do I go the SCD route, although I followed Adam’s book and I didn’t have a formed BM from the intro diet (broiled chicken, hamburgh, eggs) is that all I am suppose to eat for every meal? What are you suppose to snack on during the day?
I have been browising a site called http://www.againstallgrain.com/ and the recipes are amazing, just not sure if i should be eating them as i haven’t seen a formed/solid BM since May.
I would really appreciated if someone/anyone would say Justin can you just eat only this for 2 weeks and then eat this and add in some of this you will start to feel better!
Is it safe to take a probiotic ( Ultimate Flora 50 Billion) with a Mens health multi-vitamin and Omega 3-6-9 ontop of the pancolitis?
I’m looking for any advice you guys may have!
Medications:
started Lialda 4 pills a day right after colonoscopy
started 1 omeprazole before breakfast everyday right after colonoscopy
tried Uceris for 2 weeks with no improvements
currently taking 40mg of prednisone (2.5 weeks) and seeing some improvements
written by Justin J
submitted in the colitis venting area
30 year old male from RI, who was diagnosed via colonoscopy on May 16, 2013.
