Ulcerative Colitis Tips


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Everybody Poops

Intro:

Hi all! My name is Ashley, currently living in Boston, MA originally from upstate New York.
I was diagnosed with UC at the age of 19 I am now 24 yrs old.

My Colitis Experience:

Stumbled upon this site a couple of days ago and was truly inspired by everyone’s stories and support towards one another. Thought I would join the community and share my tale about my tail…

Diagnosed with UC at 19, I am now 24yrs old and OH how I’ve changed. At first, my biggest challenge was telling someone what was going on! I’m pretty sure I had UC for about a year before sharing my problems with anyone and being diagnosed. I was very embarrassed to talk with anyone even family about the symptoms I was experiencing and thought maybe this would just go away on its own. As we all know, it does not! I was in my second year of college when I finally got help and was diagnosed with UC, but still I was very young and naive and unfortunately didn’t take any of this seriously. During that time I never monitored what I ate, drank alcohol (heavily) every week, and didn’t follow up with my doctor during flare-ups. Actually my life then was basically one big flare-up due to my lack of concern, I began eating less and less to try and stifle the symptoms (wrong solution!) really it just added more symptoms on to the list, such as shortness of breath , fast and irregular heart rate etc… I learned the hard way and ended up being hospitalized and needing a blood transfusion. That was one of the scariest days of my life and definitely a turning point for me.

After that night I went on the roller coaster ride called “which meds to take” I did the whole prednisone nightmare, moon face and all. That is truly a test of your character and it is very easy to forget who you are during that time, as I myself did. Insecurity, depression, mood swings, not wanting to leave the house, SO important to remember everything can be temporary! I had a great support system and my entire outlook changed, the worst thing you can do is keep everything to yourself express how you’re feeling and take reassurance wherever you can find it!

Currently, my tail side has never been better!

I have been off prednisone for a year,

now taking lialda and azathioprine.

 

My will power has been ehhh for a strict diet, plus I am continuously on the “Ramen noodle budget” but everyone’s stories about the SCD really gets me motivated to try it out. I try and stay stress free and positive no matter what, yoga really helps! Biggest message I can send is to never be afraid to talk about what’s going on, it’s better to get the help you need right away, it may seem embarrassing but hey…Everybody poops!

Also, want to give thanks to Adam for making this site, if I had such an outlet like this when I was first diagnosed it could have truly made a difference! Very inspiring that you are med free as well definitely something I aim for! So again THANK YOU!

Cheers to all

written by Ashley

submitted in the Colitis Venting Area




5 Responses to Everybody Poops

  1. Jodi January 12, 2012 at 5:14 pm #

    Hi Ashley. I too, just found this site a few days ago (AND I live in upstate NY) :-) Glad to hear you are prednisone free. I personally think that steroids are poison. I hated them. I know that you are on a budget, but you should take a look at the book “Prescription for Nutritional Healing.” It gives recommendations for supplements for those of us that have this horrible disease. It has helped me a great deal. I bought this book used for a few dollars on amazon and I’m very glad I did.

    Thanks to Adam for this site.

    :-) Jodi

  2. Bev January 12, 2012 at 5:35 pm #

    Hi Ashley…welcome!!

    It’s always too bad when another UCer has to join, but that’s the way it is! There seem to be more and more people joining…

    Did you ever take accutane? I’m curious how many of us UCers have taken that drug in the past, prior to their getting UC. I took it four different times, and it wasn’t long after that, that I was diagnosed with UC.

    Are you currently in a remission period now? I hope so. I am trying to get there without harsh drugs…

    Bev:)

  3. Michelle January 12, 2012 at 6:06 pm #

    Ashley! You go girl! Your story is familiar to me, when I was reading and you said blood transfusion it took me back to 2010 when I was last hospitalized. Running to the bathroom every 30 minutes and feeling so weak sucks but we all fight and somehow we all share our life’s together…even if it’s in the bathroom

  4. Ashley January 13, 2012 at 4:42 pm #

    Thanks for all the reply’s its so nice having support in any form!!

    BEV: I am in a remission state right now, have been since about August. I have the occasional dreadful “D” days, but nothing too serious and no bloody stools. I just try to eat right and usually come out of them! Hope you make it through yours, I am aiming to one day be med free as well (at least less meds!) STAY POSITIVE :)

    JODI: I will deff check out that book, I’m not really taking any supplements at the time being, take a multi here and there, but I’ve heard good things.. so I should step up my game! Do you mind me asking what part of upstate you are from, I’m from Binghamton. Just think it might be nice to “know” a fellow UC’er around for thangs like the taking strides walk and other events!

    Cheers to all!

  5. Jodi January 13, 2012 at 6:17 pm #

    Hi Ashley. Right now, I’m beginning a pretty intense supplement/vitamin regimen. I’ve been doing as much research as I possibly can and trying to put it all together. I would suggest tumeric and the probiotic, VSL3 or anyone that fits in your budget. The tumeric is from India and helps with inflammation and the probiotic (which you should take first thing in the morning) puts the good bacteria into your body.

    I am considering some of the other alternative remedy’s that I’ve read about on this site. I just hate taking medicine and truthfully, I don’t know how much good it is doing. Doctor currently has me on Lialda.

    I live near Albany, so I’m not as far ‘upstate’ as your original hometown of Binghamton, although I have been there. I will keep my eyes open for upcoming events.

    Good to meet you :-)

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