Male, age 50, diagnosed with Ulcerative Colitis age 26; professional educator-Middle School, Associate Principal, previously Physical Education/Health Teacher, coach (basketball, football, track). Dad of beautiful, smart, athletic 16 year old, husband of my best friend and l life partner Katie.
Some more about me:
Avid runner, cyclist, fitness nut. Have run numerous races from 5k to Marathon (completed 2) distance; cross-country skier competed in numerous races (completing over 10+ ski Marathons, 5 of the North American Birkebeiner, largest race in North America); competed in triathlons (completed 2Half-Ironman races)
Currently weening off steroids, symptom free right now…thank God!
DVT After Recent UC Flare
Up until the past 5-years I have done well and spent a majority of my life in remission. Have worked with the same Gastro until his retirement last Sept.
Fast forward…after 3-weeks of steroid therapy feeling normal…Monday, May 13, 2013, unexplainable soreness in left calf…overnight excruciating pain…Tuesday, 6:30am had my wife check out my calf, she was upset that I didn’t wake her and said she was taking me to Emergency; after some painful hours in Emergency Along with an ultrasound and CAT-scan I was diagnosed with a large blood clot-DVT in upper thigh and calf. Avoided emergency surgery to eliminate swelling after IV Heparin was started. Home now on Cumidin for next 3-6 months. Clot still exists but I’m told the body will absorb it over time (does not give me great comfort) so I’m going to be monitored while on the Cumidin because of the risks it brings. I’m told I have no restrictions but to listen to my body and don’t push too much too soon. Spoke with my Gastro Dr today and he agrees the DVT is related to my UC.
I saw one post that was similar to my situation but they did undergo surgery and their clot was removed and no Cumidin therapy was needed.
Have others with UC dealt with blood clots and Cumidin?
Has anyone heard of other medication options?
Thanks for any feedback!
Asacol daily therapy (2400mg/daily); prednisone 15mg tapering 5 mg weekly; I use a quality probiotic ‘Mega Flora’ 20-billion CFU, Lysine 500mg, folic acid
written by Kirk
submitted in the colitis venting area