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Does Colitis Remission Mean NO Symptoms?

I am 20, and was just recently diagnosed with ulcerative colitis about a month and a half ago although I’ve been having symptoms since November 2010.

I went to see my doctor after a week of bleeding, but all he had to say was that it was very common and to come back if it got worse. I went back three weeks later with more symptoms. He sent me to get blood tests done, but nothing showed up. Finally two months later, my doctor refers me to another doctor to have a colonoscopy done, but I had to wait another month and a half to have it done. After six months of waiting they finally told me that I had UC. I was told it was really bad. They prescribed me with prednisone and Asacol. I had never been able to swallow pills before though, so I took my weeks worth of prednisone and that was all I needed. There was no blood after only a few days of taking the prednisone! I haven’t had a flare up since. I don’t eat any gluten or dairy products. I also stay away from spicy foods and alcohol, and I do take a few supplements here and there. I rarely drink anything other than water. I’m not saying  I completely stay away from these foods. I have eaten some junk food, just not very often. I also have to be very careful of what I eat because I had a very bad overgrowth of yeast in my body. My yeast level was above 30 when it should be somewhere closer to 8 or 9. I had it back down to 15 about a month ago, but still have a little ways to go.

On another note, I would not advise anyone to take prednisone for long periods of time. Even just a week of taking prednisone affected my liver. I am still taking supplements to cleanse it out.

I’ve lost 10lbs since I started getting symptoms. I’m 5’3 and weigh 105lbs. I haven’t been able to gain any back, but haven’t lost anymore since I’ve been diagnosed. I’m still a little worried that I might lose more in the future. I never needed to lose it in the first place. That’s what worries me most.

Just out of curiosity, when you say that you’re in remission, does that mean of all symptoms? Or do some of them never go away?

I know most people say there is no cause, only possible factors, but I’m pretty sure if I would’ve changed my diet a couple months before I started getting symptoms, I could’ve never gotten them at all. Let me know your opinion!

Thanks,
Rachelle :)

Tags: prednisone





26 Responses to “Does Colitis Remission Mean NO Symptoms?”

  1. SerenityNowJune 17, 2011 at 4:57 pm #

    I have asked my GI doc and he said all symptoms go away when in remission. A flair can start out very mild, so mild, you don’t know it has started yet. He explained that food doesn’t cause the flair but it can aggravate it and, if you weren’t aware you were starting to flair, you will be. So far, I have no reason to doubt him.

  2. HeatherJune 17, 2011 at 8:05 pm #

    My GI has told me in no uncertain terms that diet has nothing to do with colitis. I really have to say I don’t believe that at all. There are probably differing opinions on this all around, as everyone is different and will react differently to a wide variety of things.

  3. Richard (UK)June 17, 2011 at 9:07 pm #

    Just out of curiosity, when you say that you’re in remission, does that mean of all symptoms? Or do some of them never go away?

    They base it on your bowl movements per day, lets say your real bad and go 15 times a day this is your flare for some people its less and for others its more. When you go into remission blood normaly stops but your bowl movements drop alot to lets say 3-5 per day. Yes 5 sounds high but for alot of ucers thats a very good day.

    Hope this helped.

    • RachelleJune 20, 2011 at 9:20 pm #

      They are usually 1-3 times a day, but sometimes not for two days. It’s almost as if it’s reversal some days lol.

  4. moxieJune 17, 2011 at 11:28 pm #

    It’s an interesting question about symptoms and remission. I was in a flare for about three months and then started getting better (no drugs, just SCD).

    I have never completley gotten rid of the blood though. Normal stools (once or twice in the morning). I feel fine but do get a bit of a stomach ache from time to time (mild and doesn’t last long). But still the blood. Sometimes for a few days I see no blood or mucus, but then a couple of days later it starts again. And that’s how it’s been – I wonder if I’m eating something that’s causing this or whether food has nothing to do with it.

    Has anyone else experienced this?

    • AnnieBDecember 25, 2011 at 4:37 am #

      I am interested in Moxie’s comment about having normal bowel movement but still some bleeding. My daughter has UC and experiences periodic bleeding but no diarrhea, no pain. She manages the disease with use of Aloe, Probiotics, Boswellia, and a diet of no dairy, no spices/herbs, decreased gluten. Have others experienced the bleeding without other symptoms?

      • SylviaOctober 20, 2012 at 4:34 pm #

        Hi AnnieB,

        I replied to a post from Moxie and wanted you to see this too…hope it helps…

        Hi moxie, I had blood for a several months without other symptoms. I would on occasion have several bowel movements but not all of the time. Since I didn’t have many other symptoms I didn’t seek treatment and thought I was managing it until I collapsed on vacation with my husband and I was admitted to the hospital for severe anemia. My UC is mild and I’ve never been to concerned with treatment until this happened, it took me about a year to begin to feel ok. It’s been two years now and I only have symptoms every so often but my doc says it’s not in remission so we are still working on it. Don’t go without treatment and talking to your doc, you don’t want a worse experience. I was only in the hospital overnight and got treatment after we got home but the day we left the hospital it felt like I’d been hit by a bus and I couldn’t engage in any activity without getting winded and feeling like I was having a heart attack, I also became very depressed and all of this lasted for months before i started to feel ok.

    • SylviaOctober 20, 2012 at 4:33 pm #

      Hi moxie, I had blood for a several months without other symptoms. I would on occasion have several bowel movements but not all of the time. Since I didn’t have many other symptoms I didn’t seek treatment and thought I was managing it until I collapsed on vacation with my husband and I was admitted to the hospital for severe anemia. My UC is mild and I’ve never been to concerned with treatment until this happened, it took me about a year to begin to feel ok. It’s been two years now and I only have symptoms every so often but my doc says it’s not in remission so we are still working on it. Don’t go without treatment and talking to your doc, you don’t want a worse experience. I was only in the hospital overnight and got treatment after we got home but the day we left the hospital it felt like I’d been hit by a bus and I couldn’t engage in any activity without getting winded and feeling like I was having a heart attack, I also became very depressed and all of this lasted for months before i started to feel ok.

  5. SerenityNowJune 18, 2011 at 5:18 am #

    Moxie,
    How much blood? Is it throughout the stools? If it is, I would talk to the doctor. I know hemorrhoids can bleed but when you have UC, life is different and things should be checked out. If it is hemorrhoids, then the doc can give you something for that or recommend an OTC med.

    • moxieJune 18, 2011 at 10:22 am #

      The amount of blood varies. The stools are streaked with some blood and seems to occur more when I’m tending towards being constipated (the softer the stool, the less the blood). I also do feel a little tender right around the tailbone area (although this could be unrelated to the UC).

      Thanks for your reply.

  6. JeffreyJune 18, 2011 at 6:01 am #

    Once in remission my symptoms are almost completely gone. I was diagnosed (2/3 of the colon) 5years ago and have one or two flare up a year (lucky). My symptoms/flare ups are always linked to my stress level. I understand that may not be the case for everyone but by tracking your stress level and symptoms in a journal you may notice something (food journal may be a good idea too). The greatest thing you can do is find out what is your triggers and deal that. Remission is just that, the secession of symptoms.

    • NoraSeptember 6, 2012 at 12:42 pm #

      I was in remission for 20+ years after nearly dying of UC (it was that bad). Came back a year ago like a lion — just horrible. After a regimen with Asacol, I’m fine again (the symptoms went away in a week or two). I still see some blood, but only infrequently. I use The Maker’s Diet (er…when I’m behaving myself). My doctor wants me on Asacol (a large dose) indefinitely. I don’t think I’m going to do that.

      • TedFebruary 23, 2013 at 4:58 am #

        I have been taking Asacol since the day I was diagnosed with UC. Am taking Imuran 1 tablet a day.
        Due to my mild flare up, am now taking twelve tablet of Asacol. It helps. Also with a careful intake of food.
        I have to avoid food like nuts,beef,chocolates, coffee,sodas and alcohol . It is almost a month now, close to remission stage.
        Am still under close observation on my condition ….before enjoying a glass of red wine again. Finger cross .

  7. PeteJune 21, 2011 at 5:06 am #

    I have been very fortunate to have a mild form of UC. I have had for 40 years. As to remission, when I was younger (20’s, 30’s) my remission would last 2-3 years, and then a mild period of activity usually lasting 6-8 weeks. Asacol and rowasa would always bring me into remission, I never tried or was prescribed cortico-steroids. When I was in remission, no symptoms but I also maintained my diet — no pepper or corn, and avoided nuts.
    I exercise a lot (running & biking), I think that helps.
    I do not avoid alcohol – I an enjoy a good beer and white wine ….

  8. ShannonJune 22, 2011 at 7:53 pm #

    I am still a newbie that was diagnosed in 2009. My doctor has told me that I am in remission based on my bloodwork and lack of blood and a lower frequency of stools. This is after my orginal flare that seemed to never fully go away for more than a few weeks since my diagnosis. However, I have arthritis, severe anemia, dry eyes, and migraines, all of which my doctor have told me is a part of my UC. So for me, it does seem that it never fully goes away! Also, for what may cause or trigger UC, studies have shown that non-smokers have a higher occurance of UC than smokers. I had quit smoking 10 months(and had a baby 6 weeks) before the onset of my disease. I think UC shows up when it wants.

    • RachelleJune 22, 2011 at 10:59 pm #

      I have never smoked. I get sore knees pretty often, but I wasn’t sure if that was from before. I’ve had bad knees for a while. Now that I think of it though, they do bother me more then before.
      Other than that I get a bit of cramping. Guess I’ll have to check out the SCD diet, asacol isn’t an option right now.

  9. OrdinaryWorldWhereRUJune 24, 2011 at 5:43 pm #

    When I am on an effective med long enough, here is what I remission looks like or is expected to look like for me. Once the prednisone got my very bad flair under control, I had completely normal BMs, no blood, no mucous, no urgency, looked exactly like they should per the Bristol Stool Scale ideal – like I used to be before the disease but I was on a low residue diet and taking Asacol too. I would go once, maybe twice a day. My GI doc defined that outcome as remission. He was very clear that I should be going max 2 times a day. I also had no pain. I have come off the prednisone. The Asacol is still a daily med. But, things are not normal. The BMs don’t look like they should and I have a fair amount of pain everyday. There is no way this is remission for me. The upside, I only go 2-3 times a day. When I was first diagnosed he put me on Entocort, Asacol, and Rowasa. I went into remission then and had the same outcome, all things went back to normal as far as number and consistency of BMs. I just didn’t stay in remission due to a very unique extenuating circumstance. I guess, to my mind, remission should look like life without the disease. I guess since I had decades of not having the disease, I am comparing it to those decades. I hope this is somewhat useful for consideration.

  10. HeatherJune 28, 2011 at 6:53 pm #

    My GI says diet has nothing to do with it but I don’t believe that at all. He tells me it is genetic but NO ONE in my family has colitis or any colon troubles AT ALL. So, maybe it is genetic and something dietary triggers it? I don’t know. I’ve read a lot about it, even found a study that was done saying that genetically modified foods can trigger it in someone that may not have otherwise ever come down with it. If the SCD diet can control it, diet must certainly have something to do with it. Other people have controlled it through macrobiotics and mainly a fruit/juice diet. I’m in the process of reading all about SCD and I’m considering it. I’ve been a vegetarian for YEARS so the thought of eating meat is a little disturbing for me (I’ve never really liked it), but at this point I’m willing to try anything to get relief, lol!

    • DianaMay 4, 2012 at 2:59 pm #

      Heather, they have done research that shows diet does not cause UC; however, certain foods can affect you. As my GI puts it…if it comes out looking the same as it went in, don’t eat it. I stay away from corn in any shape or form, nuts, raw vegetables – anything that is roughage and doesn’t digest well. With regard to UC being genetic – in my opinion there is some truth in that. My cousin and I both have UC, were the same age when we were diagnosed with it, and our mothers are identical twins.

  11. BethanyJuly 17, 2011 at 11:39 pm #

    I am almost 22, was only diagnosed late last year, and most of my symptoms have finally eased up after much medication. But I still get pain, and diahorea one day, then constipated for the next. It doesnt make sense and has nothing to do with my eating habits. It hurts and makes me feel sick, but I’m thinking that since I have no blood or mucus now, that this is remission? I seriously hope not! I hope it gets better than this!

    • RachelleJuly 21, 2011 at 9:57 am #

      It’s the same way for me. I believe it gets better though! I want to try the SCD diet, but i haven’t bought the book yet.

  12. SarahMay 5, 2012 at 4:35 pm #

    I think remission is differant for every one same as living with UC. I was dignosed with IB at 16 it didnt really bother me except loosing blood, then later on when 26 I had all the toileting blood mucrus lathargic symptoms and after a colonospy(after 3 or 4 of them I still cant spell it lol) I was hospitalised with very bad anemia and needing a blood tranfution later dignosed with UC!the medication they gave me was horrid and side affects well i decided id rather take the chance with the UC so I read up about foods what helps what makes you flare! I set my own diet using probiotic yogurts no unpeeld veg/fruit and so on (didnt even know bout scd diet and never tried it)! put my self in remission for 5 yrs all I had was some sharp pains in stomach here and there not event frequantly!

    however after a very stressful yr in jan I decieded to give up smoking, this march UC has hit me worst than ever! seem very different from before! I have herd much worst cases than me though so thats why I think every one has their own problems when confonted with UC and remission!

    diet, stress, smoking ,exersice and probiotics all play there own contributes to flare up and remmision.

    hope this helps

    Sarah

    • DidiJune 24, 2013 at 3:46 pm #

      Sarah,

      I have heard that if someone decides to stop smoking, they should do it gradually because your body has to adjust to the change of environment your body will experience while quitting is something you should be proud if yourself for doing, always check with your doctor and seek advice from your doctor and your concerns. I hope you’re doing better.

      For all UC sufferers, please look into taking a good probiotic supplement, and 100% Organic Raw Coconut Water. This should be the only ingredient on the ingredient list !

      I have been drinking Harmless Harvest 100% Raw coconut water that is organic and it has helped me. Kinda pricey but if it is a good source in getting me better, as it is a digestive aid with enzymes and electrolytes etc,…. It’s definitely worth it rather than a hospital bill!

  13. Betty HoltonSeptember 9, 2013 at 10:06 pm #

    I have had u. c. for about 25 years -have had all the compliants that go along with the problem I suppose you would say I am in remisson now. I have no bloody loose stools but instead constipation. I go from 2 to 3 days without movements after taking medimucil–bulk foods –laxitives– still no results. I take 800 mg. of asacol twice a day–thinking I may be taking too much asacol or stop taking it all together. wonder if others have this problem——–Betty

  14. LizOctober 20, 2013 at 2:00 am #

    I was diagnosed when I was about 5 or 6 and then when I was 14 I had a colonoscopy done and I was told that I no longer had colitis – I guess remission or whatever- but now I’m 17 and I’ve had no flare ups, I don’t have to take my colitis meds, and really I haven’t worried about it at all in the past three years. I used to get really bad debilitating flare ups, and I used to have to take days off school and just lie in bed curled up cause it hurt so much, but now I’m totally fine, no symptoms whatsoever!

  15. DoriFebruary 17, 2014 at 4:53 pm #

    I began to have UC symptoms when I was 17 years old. I had colonoscopys done and placed on sulfa drugs twice. I did notice that I would have a flare up 1-2 months after a stressful event. My last flare up was 6 years ago when my mom died. That lasted for a couple of weeks only. I did notice that when I changed my diet while having an episode, the symptoms went away quicker. I have not had a flare up since and when I had my colonoscopy 5 years ago, there was no sign of me ever having colitis!!!! I dont know how to explain it!!!

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