Ulcerative Colitis Tips


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Diagnosed May 25th 2012 with Ulcerative Colitis

Trevor at a partyTrevor’s Bio:

Was a party animal in my early 20’s and had a diet of fast food and mostly junk. Worked 2 jobs for a while and had no time to cook. Around age 30 I eventually decided to change my diet and cut drinking down to a minimum. Moved onto great organic foods and ate all sorts of healthy things. Starting seeing symptoms in 2007. I was about to get an examination, but a few weeks before my appointment, I went into remission so I said to myself “ah, that was just a little hemorrhoid or something, no need to get checked” Since then I had no problems till around 2011, when I thought I had an infection in my tooth. I absentmindedly went to the doctor instead of the dentist! (what was I thinking?). The doctor figured I might be infected and gave me antibiotics. Well, now that I trace back to that time, it’s when things got really bad. Saw all sorts of weird things in the toilet but strangely I felt OK! No cramps, no sickness. Just some dizziness every now and then…..but then as time went by….things progressed……….

Symptoms:

It started out with blurred vision, dizziness, running bloody poops, lots of gas, slight loss of weight (I’m skinny to begin with). It’s on and off currently….had my diagnosis just last week! Haven’t pooped more than 9 times id say. Usually I average about 3 to 5.

My Story:

I’ve been well informed about the medical system and prescriptions before this diagnosis, so when the doctor said to “take these drugs” and “eventually we usually have to cut this part of the colon”, I was not to startled (ok….honestly my heart was pumping and my face was red). I knew there would be some sort of outside information about this and holistic remedy so I walked out of the office, tossing out my prescription paper (I know..a little hard headed and arrogant). My fiance found this site, and this site led me to the great book about diet “the vicious cycle” and she bought me Adam’s book – Feeling Crappy to Feeling Happy, which totally rocks! I felt so alone until I read his book about his experience.

I was much like him, drinking, partying, and living it up thinking that the bloody poops can’t be coming from me!?!? “I’m fine and perfectly healthy..I eat well and get exercise!” The denial stage as Adam pointed out! I feel like it’s unfair how minor my case is compared to some peoples. I haven’t experienced cramps and no pain at all….just BURNING! Like someone put a lighter to my butt! My family is so supportive but also worried because I didn’t take the orders of the doctor. The only symptoms that really freaked me out, was when I almost went blind a couple times. My vision went from 20/20, to 2/2. The blood and white crap in the toilet freaked me out too, as all you UC guys can relate to. I’ve felt my hearing go in and out as well….that’s been a really freaky experience. Ulcerative colitis has changed my life in a way that makes me wanna do my homework and beat it! It’s like a cool new challenge that God has given me and it’s not his first!. Seems as soon as you think everything is ok, it’s another step back and your faced with a new dilemma. I’m currently cutting my diet down to a bare min and eating eggs, banana and chicken only. I never thought I’d come to the point where I would have a sigh of relief when I could manage expelling solids out my rectum! Oh, what a feeling!

Currently I work in a print shop as a flatbed operator and I find the chemicals and junk in the air plays a role in my colitis. I get the dizzies….wish I worked outside or in a cleaner environment. Immunity is weak currently and I’m trying the new diet….it’s hard! I have all this stuff in the fridge I bought and I can’t eat it!!! AHHH!

Where I’d Like to be in 1 Year:

Pooping solids NON-STOP! Big drinking beer again! *but no likely!*
Medications:
NO medications yet, and NO medications in the future. That will be my last option.

written by Trevor W

submitted in the colitis venting area



holistic

14 Responses to Diagnosed May 25th 2012 with Ulcerative Colitis

  1. Miller June 1, 2012 at 10:51 pm #

    You are on the right path, I’ve been there too, what the hell can I eat? (When everything gives you the runs.) Don’t forget lots of water when you are feeling dehydrated. For me what’s working is bananas and pears a lil SCD yogurt but I think I’m having issues there and SCD jello, just got some fresh cherries from the farmer’s market, mmm… so good. I think food combining is key, look into it. When you eat and mix the wrong foods causes all the problems. One food at a time, and remember God’s natural providence, fruits and when you’re ready, veggies. Best of luck and bed rest and healing to you!

  2. Trevor W June 2, 2012 at 8:25 am #

    Hey Miller! Thanks for the heads up! I was doing really well with the eggs, bananas, meat, but as soon as I introduced carrots and zucchini (cooked, maybe not cooked enough) the flares and dripping red ulcer of doom came back! So for now, I think I will be introducing veggies later. I tried blueberries and goji berries but they didn’t work to well. It’s hard not to skip steps! Maybe I should take my time with the bananas and meat until I heal hey? LOl….When I go to get food I have to put the blinders on, run in there, get my bananas and eggs, and get the hell out! There’s sooooo many things I’d like to eat…that was my hobby! Buying good organic food and eating really well….and now I have UC? WTF hey?

    I have “Breaking the vicious cycle” coming in the mail soon! I can’t wait….I’m always up for a challenge, and I like home made food and my fiance loves cooking for me (and I like cooking for myself). So this will be a neat little homework assignment!

    Thanks for your wishes…all the best to you as well!

  3. UC Family Boy
    uc family Boy June 2, 2012 at 11:16 am #

    Trevor,
    Just out of interest, why have you chosen not to take medication? I know people who have responded extremely well to it, allowed them to eat normal (though yes maybe they should re-assess what they eat). I am currently on a tapered program and to be honest it has allowed me to currently get back to ‘normal’ I know it is not the only answer, but it is part of the solution

  4. Trevor W June 2, 2012 at 1:01 pm #

    Hey there UC Fam,

    I feel it’s more of a triumph and healthy approach to go the path I’m going. This is also a cost effective way seeing as I just have to buy certain foods and be selective in what I eat. I’m also not in full swing of taking something that has a list of side effects which are known to make your immunity weak. All and all, I feel going the holistic path, where I’m helping my immunity to reestablish itself is safer. Plus you get to work hard to fight it! It’s not just the drop of a pill…..

    If the medication is good for you and it’s helping, that’s awesome! I’d look into the side effects of what your taking as well just to make sure there isn’t a detrimental cost to your immunity. You never know…that little pill could be helping the flares, but hurting another part of your body. I always keep in mind as well, that the pharmaceutical industry is one of the biggest and most profitable (multi-billion dollar)businesses in the world. There is a reason for that….they have no “cures” just life long prescriptions to sweep your health issues under the rug. From what I’m reading on this site….it saddens me to hear some of the side effects these drugs have on peoples immunity and over all life.

    Just look at Adam if you want an answer….the guys living proof that you can totally heal from this and live a normal life! As he’s saying…no Meds …just diet.

    • noelgallagirl June 2, 2012 at 5:52 pm #

      Spot on Trevor W!

      I too am med free and taking a really good probiotic only. It took a couple of months to see that it was helping, and then I weaned myself off those awful colitis drugs that I was on for 13 years!! No more drugs for me. They juast gave me other health problems, instead, and I

    • noelgallagirl June 2, 2012 at 5:55 pm #

      …instead, and I am no longer lining the pockets of the drug companies!!

      You are wise beyond your years, my friend. I believe in probiotics and diet ALL THE WAY!!

      Cheers,
      Bev:)

    • UC Family Boy
      uc family Boy June 3, 2012 at 6:17 am #

      Trevor,
      Its always good to get some feedback. I am new to this all too. But been surrounded by people who have this too (which I have only noticed since being diagnosed). One is 75 years old clap, on meds, had it since 20 odd and Ived know him 30 years and wouldn’t of guessed he has UC. Eats and Drinks like everyone else. My sister has it for 8 odd years with one flare around exam time and eats and drinks normally… Everyone is different. Yesterday i ate a Chocoloate birthday cake and it went through me (I have changed my diet and taken out all processed foods, chocolates but Milk and bread seems to be OK for me, Stools are Type 4/5 bristol Chart – been 3 months since frst meeting my Doc with this). Meds are helping considerably, my diet shift has helped, if not felt (working internally I guess) physically but mentally

    • UC Family Boy
      uc family Boy June 3, 2012 at 6:42 am #

      Trevor,
      Its always good to get some feedback. I am new to this all too. But been surrounded by people who have this too (which I have only noticed since being diagnosed). One is 75 years old clap, on meds, had it since 20 odd and Ived know him 30 years and wouldn’t of guessed he has UC. Eats and Drinks like everyone else. My sister has it for 8 odd years with one flare around exam time and eats and drinks normally… Everyone is different. Yesterday i ate a Chocoloate birthday cake and it went through me (I have changed my diet and taken out all processed foods, chocolates but Milk and bread seems to be OK for me, Stools are Type 4/5 bristol Chart – been 3 months since first meeting my Doc with this). Meds worked within a day of taking it and diet changes has complemented it. Everything has side effects, as you found with berries and pickles. I guess we don’t know until we try something. I agree with Cali Karen, consider meds if you need it. Once we find our right solution long term remission I believe can be achieved. :-)

  5. california karen June 2, 2012 at 6:24 pm #

    trevor, not the same stuff works for everyone! please be open minded, Ive only been diagnosed since jan 21 2012. but was in the hospital 4 days but given anti biotics,mushy food for about 2 months then ok for a month! the I to had a rotten tooth removed and given amoxicilin lord have mercy ;14days later the dam broke!ive had so much test pokes and swallow stuff ! had dh from april 26 tilmay 28th and been to ER three times finally given some meds starting to get strengh back but it takes time!the meds given to me really helped me ! if you get worse please for me accept meds! I wish you the very best! Only you know your own body !

  6. Trevor W June 2, 2012 at 7:39 pm #

    I’m still plugging away here. I had some solid poops going for a while and then I introduced goji berries and blueberries as well as pickles…..man, what a bad decision…been liquidy the last few days. I’m stickin to the eggs, meat and banana! That seemed to work at the beginning.

    “breaking the vicious cycle” just arrived in the mail. Time to read up!

  7. j June 2, 2012 at 9:16 pm #

    It is difficult to be diagnosed with a disease for which there is no cure. Denial is a pretty typical reaction. I have had UC for 40 years and have found that certain stratagies work for me. Try to be open minded about Western medicine. A combination of Rx and complemetary medicine works for some. There was an old saying regarding taking meds….”sometimes you need to put the fire out before you can heal.” By taking Rx meds you can reduce the inflamation to a point where your new diet and probiotics, or accupuncture, or meditation can help.

    Did you recently stop smoking? UC is a disease of non smokers. There are doctors who suggest that their patients smoke a few cigarettes to get out of a flare. It is in the literature http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3122262/

    Take care and wishing you better health.

  8. Trevor W June 3, 2012 at 6:34 am #

    Hey J,

    I heard about that report with the smoking. I quit on new years of 2010. That’s very strange how it can help towards remission……I don’t think I want to start up again. It was hard enough to stop. I smoked a total of 6 years. Smoked in my teens….quit when I was 19…then I started up again when I was around 28 and quit 3 years later. I took antibiotics which I think triggered this….but, of course, I don’t know for certain. 40 years you’ve been fighting this? That’s amazing. You deserve a virtual high five for that!

    That saying certainly has merit. Very true.

  9. UC Family Boy
    uc family Boy June 3, 2012 at 6:43 am #

    Trevor,
    Its always good to get some feedback. I am new to this all too. But been surrounded by people who have this too (which I have only noticed since being diagnosed). One is 75 years old clap, on meds, had it since 20 odd and Ived know him 30 years and wouldn’t of guessed he has UC. Eats and Drinks like everyone else. My sister has it for 8 odd years with one flare around exam time and eats and drinks normally… Everyone is different. Yesterday i ate a Chocoloate birthday cake and it went through me (I have changed my diet and taken out all processed foods, chocolates but Milk and bread seems to be OK for me, Stools are Type 4/5 bristol Chart – been 3 months since first meeting my Doc with this). Meds worked within a day of taking it and diet changes has complemented it. Everything has side effects, as you found with berries and pickles. I guess we don’t know until we try something. I agree with Cali Karen, consider meds if you need it. Once we find our right solution long term remission I believe can be achieved.

  10. Trevor W June 3, 2012 at 6:46 am #

    Hey california karen

    If things get wildly out of control, I know there is that option of medical care and I will probably have no choice but to try some meds. You’re correct that some things don’t work for everyone, so it will be a pretty interesting homework assignment trying to figure out what will work.

    All the best and I hope those ER visits cease to exist again. Sorry to hear that.

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