Ulcerative Colitis Tips


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Cursed? Think Again…

Megan C fIntro:

I am 33 years old and was diagnosed in March of 2000 with UC. I am one of the oddball, overweight UC’ers who doesn’t feel like I am “cursed” because of my diagnosis.

Some more about me:

I am the captain of a running team that wears TuTu’s when we run. I try and be a positive influence to everyone around me even though I am always in pain. It isn’t always easy, but it makes the day go by faster and makes me happy to be a positive advocate for UC.

Symptoms:

Diarrhea for 14 years straight
Some blood in Stool
Uncontrollable Pain in Sigmoid area

Cursed? Think Again…

In November of 1999, my dad died from colon cancer. He died within just a week of diagnosis. He probably had symptoms, maybe even had IBD, but was one of those guys who just didn’t go to the doctor much. So there I was, 19, scared, angry, sad and generally pissed at the world and I was hiding something. I had been having stomach pain and loose stools, with blood, for awhile (months, a year, I don’t fully recall) and my mom told me she was done “playing by my rules” and dragged me to the GI during my college spring break. They got me in for a colonoscopy that week and I was diagnosed with UC. Awesome, my friends were at the beach and I was having a camera shoved where the sun don’t shine.

I am not one of the thin, frail, “something is wrong with them”, sick people. I have always battled my weight and with this new diagnosis, I was depressed, ate the things that didn’t hurt, basically carbs. I gained more weight. When I came home from school, my original GI, a young Patrick Swayze look-alike, had stopped practicing and gone into research. Great, needed to find a new guy, who at least had a sense of humor, but that didn’t happen. New doc was a jerk, at first he didn’t believe I had UC since I didn’t look like most of his patients. Awesome (insert eye roll) Next came colonoscopy number 2. Guess what?!?! I still had it and the meds I was on, weren’t doing the trick so he started talking about ostomies. Lemme tell you, I hightailed it right out of his office and never looked back. I was 20 now, in the prime of my life, I would figure it out, but I would NOT be pooping in a bag (he wasn’t very good at explaining these, but I k now now ostomies are not the end of the world) So for 10 years, I smoked a lot, I dealt with the pain, and for the most part was okay…( if you think pooping 14-20 times a day and having constant pain and diarrhea is ok.)

Fast Forward to 2013. I found running. I had lost almost 50lbs, I started running races. I took enough immodium to keep a horse backed up, but I was moving and I was happy. I still mostly hid my UC from everyone. I never had to go to the hospital for it, I guess I was one of the “lucky ones” until August hit. OH MY GOD, I thought I was dying. The pain got so bad I wanted to cry all the time. I was nauseous. If I did eat, sometimes I couldn’t keep it down, sometimes I just cried from the pain of it passing through. Something had to change. I found a new GI (got a reference from GI hottie #1) and she is close to my age which is awesome! (no more old boys club) I got meds, Asacol, tramadol for the pain and omeprazole to calm my tummy AND she got me in for a colonoscopy (only 8 years since I should have been last checked) and BOOM! Hello Inflammation! I had UC, Lymphocytic Colitis and had a precancerous polyp removed. Yikes! So we added budesonide to the mix of med s, scheduled a CT scan and kept on trucking. The CT showed a lot of inflammation as well (I guess I wasn’t as “well off” as I thought I had been) and the pain in my sigmoid area was still killing me. Nothing seemed to be working so I went on Remicade. After 2 infusions, I went in for a flex sig and another CT and the inflammation was gone but the damage I had done with all those years of ignoring my body is going to continue to cause me pain.

What does this all mean? Not a whole hell of a lot. It doesn’t change WHO I am. I am a crazy loud person who will talk to ANYONE about poop. I want everyone I know to talk to me if they think they may have a problem. I want to be that person that has an “incurable” disease that shows people life is still out there. I do not let my pain decide what I can and can’t do. I know where every bathroom is within a 5 miles radius of wherever I am. Not too long ago, a girl asked “who saw their diagnosis as a curse?” on a Facebook support group and I chimed right in. That stranger, from a random FB site is now one of my closest friends and we would have never met had we not shared this disease in common. I am not cursed, I am blessed. I have a life that I CHOOSE to live. I am not letting my body decide how my life will be lived. I can handle it. I chose to share my story because I see so many people see this diagnosis as a sentence to stop living. I want to show people that the mind can to marvelous things and if you allow yourself to believe that you can do something, you can! I hope to see you all out there, taking life by the horns and showing UC it does not define you. Maybe we can go for a run together, and no, I don’t mean to the bathroom.

Ask Adam:

No questions just a “Hello!” and a “helluva nice site you have here” :)

written by Megan C

submitted in the colitis venting area




16 Responses to Cursed? Think Again…

  1. Adam
    Adam May 7, 2014 at 4:58 am #

    Amazing story Megan!!!

    Thank you so much for sharing, we need more of you on this planet!!

  2. Sica May 7, 2014 at 6:37 am #

    Megan you are such an inspiration and I’m so grateful to not only have you as my favorite UC partner, but also as a bestie <3 I love ya girl! Together we will kick the shit out of shit!

  3. Joe H
    Joe Hay May 7, 2014 at 7:03 am #

    You Rock, Megan! Your attitude makes me wanna shout … UC YOU CAN’T BEAT ME!!

    As an update … off all meds since Dec. 2013, taking Ultimate Flora Probiotics and following a modified SC Diet.
    :D Just one BM/day, firm stools and no blood for 5 months now!

    • Megan C
      Megan C. May 7, 2014 at 7:07 am #

      Awesome Joe! Thanks for your positivity!

      • Joe H
        Joe Hay May 8, 2014 at 2:48 am #

        Thanks Meg!

    • bev May 7, 2014 at 9:54 pm #

      Yey Joe!!! Rockin’ good news!!

      :)

      • Joe H
        Joe Hay May 8, 2014 at 2:49 am #

        Thanks Bev, Your posts were a big help!

        • bev May 8, 2014 at 6:35 am #

          There are no words, Joe…

          Nothing is better than this…

  4. Megan C
    Megan C. May 7, 2014 at 7:06 am #

    Thanks Adam! I appreciate you sharing my story :)

  5. Rosanne
    Rosanne May 7, 2014 at 7:33 am #

    Nice story Megan!! I thought i was one of the only overweight UCer’s. Seems if you have some meat on your bones what is ailing you can’t be too bad! Love your hutzpah!! 32 years and I am still kicking!! UC will always be a part of me…not by choice. I have had it more than I have not. But like you say…don’t let it define you!!
    Good Luck in all you do!

  6. Ashish Shrivastava May 7, 2014 at 8:44 am #

    WOW!!!
    You rock…
    God bless you..

  7. barb May 7, 2014 at 10:35 am #

    Hi Megan,

    Awesome story! I am feeling the same way after this past year of having C-diff which flared my UC took a good 8 months to get under control but I am now on remicade and a happier path and I will not let this define me. I am still a outgoing person and try to do as much physical activities I can..I have been battling this disease for 16 years now and will continue to fight! Thanks for posting your story. I hope inspires people to keep moving forward =).

    Barb

  8. shelly in maine May 7, 2014 at 5:55 pm #

    Hey Megan…what you said! I always say that UC is a curse and a gift…we work hard are determined…perseverence plus, nutritionists, Dr.’s, nurses, Guinea pigs, know our bodies inside and out, see the grass is never greener…and we appreciate all the little things! :-)
    Best and stay positive,
    Shelly. (UC lifer! Official diagnosis of 31+ yrs.) :-)

  9. HEATHEN HOLIDAY May 7, 2014 at 7:09 pm #

    This is one of the most honest and non-annoying positive stories I have read. Truly inspired me, thank you.

  10. Megan C
    Megan C. May 7, 2014 at 7:26 pm #

    Thank you everyone for your kind words :)

  11. Mary M May 14, 2014 at 11:34 pm #

    Well Megan you woke me up again. I am ashamed to say I’ve been wallowing for the past several weeks. Feeling very sorry for myself because nothing seems to work for me so far. I’m on Remicade and Azathioprine and ironically these meds meant for RA have given me what seems like instant arthritis. I have had a hard time maintaining my previously active lifestyle and so have allowed myself to get really depressed.

    After reading your story I am ready to start trying again. As someone else said, your positive story wasn’t irritating (I have to admit sometimes I want to whack some of the people around me who tell me I have to “stay positive) and inspired me. I’ve worked out two days in a row and while I spent more time than I’d like in the pot, it lifted my spirits. I need to take a leaf out of your book. Stop with the I’m tired of life crap and move on. Thank you!

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