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Currently on Lialda, Canasa, Hydrocortisone (enema), and 40 mg Prednisone

Introduction:

HI!! I am Karen! I was diagnosed back in 2008 with very mild colitis. After going through some difficult times from the end of 2011 to 2012 I ended up with a bad flare up and getting re diagnosed this time with severe Ulcerative Colitis. In the past year I have only had about 3 good months being symptom free!

Some more about me:

I am from the USA in New Jersey! I have a passion for photography!! I take photos of everything and anything! Especially my nieces and nephews!

Current Colitis Symptoms:

I have bleeding every day..lots of discomfort. Nothing pleasant have been in a flare up almost non stop since November of 2012!

My Story:

After being diagnosed in 2008 I was ok for a while but than back in 2012 I got really bad and got re diagnosed with severe UC. IT’s been a long tiring journey this apst year! My goal is to one day be in remission and off all these medications.
What do others feel have worked best for them during a flare up? What is the best form of exercise during a flare up as well?

As far as my family helping me.. I haven’t seeked out much help recently until this past week. My chiropractor is actually helping me get on a strict diet this week and making me stick to it to see how I feel in a couple of weeks.

I think UC has definitely changed me and making me wonder why do I have this and why am I the only one in the family that deals with it. I ask questions like is it genetic? Did something trigger this when I was younger? Like when I had salmonella poisoning when I was 8 years old I also about 13 years ago started struggling with sinus infections and was always on anit biotics did something trigger me and I ended up with UC. It sucks and I hope one day there is a cure. I am just getting more actively involved with the CCFA. I will be participating in the Take Steps Walk in June. My first time ever walking to support a good cause.

The most difficult thing is knowing what do eat and being that I am just starting prednisone I am always hungry. I am trying to eat more healthy now that this flare up has not calmed down. I am tired of being on so many medications and tired of running to the doctor all the time.

Medications:

  • Lialda
  • Canasa
  • Hydrocortisone (enema)
  • just started 40 mg of Prednisone a day.

written by Karen

submitted in the colitis venting area