I am 46 years old. I am a patient of ulcerative colitis since 2002. I am into business. Initially I started having stomach trouble in the form of diarrhea and severe irritation in the stomach.
On the advice of my brother in law we started showing to family doctor who put me on heavy medication but to no avail. My wife got very worried and insisted to go and visit a specialist. We went to a super specialty hospital where full colonoscopy disclosed ulcerations of the big intestines and I was diagnosed with Pancolitis! I was put on aggressive treatment of steroids and Mesacol medicine and after couple of months my condition stabilized. For a year or more I continued with the medicines and gradually stopped taking it. In place of it I started taking food supplements. I continued with my life in remission since then.
I am a husband, father and an entrepreneur from India, aged 45 years. I am fun loving and friendly guy. I am a UC patient for the last 12 years.
Some more background:
I am an eternally optimistic person and the first patient of UC treated by FMT (fecal microbiota transplants) in India !!
Manas’s Story about FMT
In 2009-10 I started having some irritation of the bowel and seeing that I restarted Mesacol. In 2012 I had partial colonoscopy which revealed the ulcers again. I was put on steroids for about two months and I responded well. But after that I had a flare. Then losing faith with the allopathic medicines we started holistic medicines for almost a month in January 2012. After seeing no result we opted for homeopathy in Feb-March 2012. We had an immediate result with it but unfortunately, on my insistence the homeopathy doctor completely stopped allopathic medicines. As a result of that I had a severe relapse in July 2012. Nevertheless we continued with it till Jan 2013 and seeing no improvement we stopped with them. In mid 2013 I had another colonoscopy which showed Grade IV status. Consequently I was put on 40mg steroids and full dose of Mesacol in July 2013 and continued on steroids for approximately for seven months or so. I was also given imm unosuppressant Azoran 50 with the full dose. Meanwhile we also went to couple of ayurvedic doctors and took their medicines but had no result in the stopping of bleeding and which stopped only in December/ January 2015.
The allopathic doctor who has been working on me has been a great human being. First he suggested me to go for Infliximab then later on he came up with the idea of FMT. Since it was a very new kind of treatment in India he had to work hard to get it approved in his hospital. Finally we went ahead with the first cycle of it in this month only. And with great joy I have to inform fellow UC sufferers that I have achieved a great result. In terms of physical discomfort it is almost 80% better and there is 50% reduction in frequency of stools. This automatically has reduced the bleeding also. We are waiting for the next cycle of it which is due at the end of this month. Mine is among the first FMT case in India. I am also planning to start my blog to help millions of UC patients in India as well as outside. Unfortunately in my country there are no statistics of UC sufferers. This might be a good help to them.
Hi Adam. I am writing after a long time and I am super excited. I wanted to wait a while for my results to become more conclusive before I wrote to you. I have had my periodic biopsy results which are showing consistent results. My UC is leaving me gradually. I am on the tapering of my immuno suppressants. Hats off to poop (FMT) !!
Finally, the aim of my great doctor is to stop the anti inflammatory drugs too. But that will still take some more time. The results of FMT have been astounding as far as I am concern. The credit goes first to my doctor. He has been an open minded person. He introduced me to FMT & then my brother in law who was more than willing to help me out and lastly to my great wife. She has been the pillar of my strength.
You and anybody interested in my detailed story can go to my site ihavenouc.com. I and my doctor would want to help as many people possible in getting treated. If any one living in a country where FMT is still not approved for UC, Crohn’s etc they can contact me. I will be more than willing to help. We have the world class hospital here in India where I was given the treatment (FMT). They will be able to avail the best of facilities & practices. They can also avoid their colon getting removed after surgery and the other drugs especially steroids & immuno suppressants which do more harm than good.
Lastly, thanks Adam for inspiring me. Your website and fellow sufferers made me hopeful and I kept looking for the light at the end of the tunnel. And here I am going great guns for the last five months !
written by Manas
submitted in the colitis venting area