Comments for Ulcerative Colitis Stories - Colitis Symptoms, Colitis Diet, Colitis Information http://www.ihaveuc.com Sat, 04 Feb 2012 17:59:00 +0000 hourly 1 http://wordpress.org/?v=3.3.1 Comment on Proctitis is Depressing and Evil by Rainyhttp://www.ihaveuc.com/proctitis-is-depressing-and-evil/comment-page-1/#comment-14750 Rainy Sat, 04 Feb 2012 17:59:00 +0000 http://www.ihaveuc.com/?p=8918#comment-14750 Thank you George and DH, i will try to take one day at a time without dwelling on what's happening to me. I think maybe because i am so early on in the illness it's hit me hard. Listening to all you guys certainly is helping me to cope. This is a great site THANK YOU ADAM Rainy Thank you George and DH, i will try to take one day at a time without dwelling on what’s happening to me. I think maybe because i am so early on in the illness it’s hit me hard. Listening to all you guys certainly is helping me to cope.
This is a great site THANK YOU ADAM

Rainy

]]> Comment on And the Journey Continues by Nenahttp://www.ihaveuc.com/and-the-journey-continues/comment-page-1/#comment-14735 Nena Sat, 04 Feb 2012 16:06:50 +0000 http://www.ihaveuc.com/?p=8927#comment-14735 Hi, I am so sorry to hear about your bout with uc. Life is difficult enough and then some affliction hits and changes our lives forever. I will pray for you Laura. I was diagnosed over 5 years ago with complete colon uc. I had constant diarhea for two weeks with a fever of 102 that would not resolve with any type of tylenol or motrin. I was in and out of the hospital and told that i just had the flu. I was finally admitted because a chunk (excuse the graphics) of blood was in my stool. I was in the hospital for 4 days and they did a colonoscopy and found that I had uc. I was released and the next day i was having severe pain in my stomach. I had to diagnose myself. The rare part is that the inflammation from my colon spread to my appendicts and I had to have er surgery to get them removed.I was in the hospital for 7 days. This was horrible and devastating to me. Afterwards I was on a round of drugs (steroids colozal) after for about two months my dr. took me off and said i was in remission. I have not had any problems since that time. I did go and get a colonoscopy last year and it came out normal no polyps etc. I am praying that God will heal me. Hi,
I am so sorry to hear about your bout with uc. Life is difficult enough and then some affliction hits and changes our lives forever. I will pray for you Laura.
I was diagnosed over 5 years ago with complete colon uc. I had constant diarhea for two weeks with a fever of 102 that would not resolve with any type of tylenol or motrin. I was in and out of the hospital and told that i just had the flu. I was finally admitted because a chunk (excuse the graphics) of blood was in my stool. I was in the hospital for 4 days and they did a colonoscopy and found that I had uc. I was released and the next day i was having severe pain in my stomach. I had to diagnose myself. The rare part is that the inflammation from my colon spread to my appendicts and I had to have er surgery to get them removed.I was in the hospital for 7 days. This was horrible and devastating to me. Afterwards I was on a round of drugs (steroids colozal) after for about two months my dr. took me off and said i was in remission. I have not had any problems since that time. I did go and get a colonoscopy last year and it came out normal no polyps etc. I am praying that God will heal me.

]]> Comment on How to Handle a Colitis Flare by Adamhttp://www.ihaveuc.com/how-to-handle-a-colitis-flare/comment-page-1/#comment-14734 Adam Sat, 04 Feb 2012 15:31:21 +0000 http://www.ihaveuc.com/?p=1101#comment-14734 it's essential that he sees a doctor if he is pooping blood! that's not something to wait around with, in the hopes of it just getting better on it's own. I've heard of and seen WAY too many people dreaming for that to happen, and it doesn't. it can lead to a ruptured colon which is exactly what nobody wants. my advice would be for him to see a doctor ASAP. that's what he needs. it’s essential that he sees a doctor if he is pooping blood! that’s not something to wait around with, in the hopes of it just getting better on it’s own. I’ve heard of and seen WAY too many people dreaming for that to happen, and it doesn’t. it can lead to a ruptured colon which is exactly what nobody wants. my advice would be for him to see a doctor ASAP. that’s what he needs.

]]> Comment on Help Getting Better by Peter Ryehttp://www.ihaveuc.com/help-getting-better/comment-page-1/#comment-14731 Peter Rye Sat, 04 Feb 2012 14:17:46 +0000 http://www.ihaveuc.com/?p=8936#comment-14731 Hello Adele, I live in Suffolk not that far away from you ! I am sorry to hear of your condition but do NOT despair! Things will get better with time. I assume that you are seeing a Gastro Consultant Doctor and he has got you on ASACOL 400mg 6x per day. I am also on MESALAZINE, but my medication is called PENTASA and I am taking 8 x 500mg per day which seems a stronger dose than yours, but since being on this since March 2010 have had NO bleeding at all which is very reassuring. A Hospital Dietician recommended LINUSIT GOLD, which are Golden Linseed Seeds which are rich in Omega 3 fatty acids & fibre, gluten free & lactose free and I have been taking 1 desert tablespoonful in a Probiotic Yoghurt per day for the last 2 weeks & I have noticed an improvement ! Well worth trying some ! Incidentally have you joined Crohn's & Colitis UK ??? They have a website: www.crohnsandcolitis.org.uk I have been a member since 2010 and I find them very helpful indeed. I Wish you all the Best in the future. Hello Adele,

I live in Suffolk not that far away from you ! I am sorry to hear of your condition but do NOT despair!
Things will get better with time. I assume that you are seeing a Gastro Consultant Doctor and he has got you on ASACOL 400mg 6x per day. I am also on MESALAZINE, but my medication is called PENTASA and I am taking 8 x 500mg per day which seems a stronger dose than yours, but since being on this since March 2010 have had NO bleeding at all which is very reassuring. A Hospital Dietician recommended LINUSIT GOLD, which are Golden Linseed Seeds which are rich in Omega 3 fatty acids & fibre, gluten free & lactose free and I have been taking 1 desert tablespoonful in a Probiotic Yoghurt per day for the last 2 weeks & I have noticed an improvement ! Well worth trying some ! Incidentally have you joined Crohn’s & Colitis UK ??? They have a website: http://www.crohnsandcolitis.org.uk I have been a member since 2010 and I find them very helpful indeed.
I Wish you all the Best in the future.

]]> Comment on Help Getting Better by Peter Ryehttp://www.ihaveuc.com/help-getting-better/comment-page-1/#comment-14727 Peter Rye Sat, 04 Feb 2012 13:31:08 +0000 http://www.ihaveuc.com/?p=8936#comment-14727 Hi DocWithUC I still have active UC & I have got an appointment to have a Colonoscopy in a few week's time. The Hospital have sent me a sachet containing an Enema which I need to take the day before to empty the Colon. However, on the back of the sachet it clearly states, 'Do not take if you have active UC' !!! I am confused as to what I should do. Your advice would be greatly appreciated ! Hi DocWithUC

I still have active UC & I have got an appointment to have a Colonoscopy in a few week’s time. The Hospital have sent me a sachet containing an Enema which I need to take the day before to empty the Colon. However, on the back of the sachet it clearly states, ‘Do not take if you have active UC’ !!!
I am confused as to what I should do. Your advice would be greatly appreciated !

]]> Comment on How to Handle a Colitis Flare by Fallenhttp://www.ihaveuc.com/how-to-handle-a-colitis-flare/comment-page-1/#comment-14724 Fallen Sat, 04 Feb 2012 12:34:56 +0000 http://www.ihaveuc.com/?p=1101#comment-14724 I forgot to add, that he is in huge amounts of pain with his joints and limbs. I forgot to add, that he is in huge amounts of pain with his joints and limbs.

]]> Comment on How to Handle a Colitis Flare by Fallenhttp://www.ihaveuc.com/how-to-handle-a-colitis-flare/comment-page-1/#comment-14723 Fallen Sat, 04 Feb 2012 12:32:53 +0000 http://www.ihaveuc.com/?p=1101#comment-14723 My partner has UC. He is having a flare up right now and it's awful. He is moody and mean, he is pooping a lot of blood and I just don't know what to do. He wont go to a doctor and I can't find anything on how to make it better. He was drinking a LOT of soda and alcohol until just recently. I'm at my wits end. I want to help but I can't. I feel so helpless. Any advice on what he can do to help his issues? He eats nothing but junk as well *eye roll*. My partner has UC. He is having a flare up right now and it’s awful. He is moody and mean, he is pooping a lot of blood and I just don’t know what to do. He wont go to a doctor and I can’t find anything on how to make it better. He was drinking a LOT of soda and alcohol until just recently. I’m at my wits end. I want to help but I can’t. I feel so helpless. Any advice on what he can do to help his issues? He eats nothing but junk as well *eye roll*.

]]> Comment on Proctitis is Depressing and Evil by Desperate Husbandhttp://www.ihaveuc.com/proctitis-is-depressing-and-evil/comment-page-1/#comment-14720 Desperate Husband Sat, 04 Feb 2012 11:46:42 +0000 http://www.ihaveuc.com/?p=8918#comment-14720 Rainy, I sure hope mood improves. For the past year since diagnosis, I've been up and down. What puts me down is when I dwell on the future and think of how this disease is for life. That depresses me hardcore. When I don't think of that, and go day by day while keeping my mind preoccupied on other this helps. I'd say that I haven't yet coped mentally so you and I are the same. I sure hope you and I pull through this. -DH Rainy,

I sure hope mood improves. For the past year since diagnosis, I’ve been up and down. What puts me down is when I dwell on the future and think of how this disease is for life. That depresses me hardcore. When I don’t think of that, and go day by day while keeping my mind preoccupied on other this helps. I’d say that I haven’t yet coped mentally so you and I are the same. I sure hope you and I pull through this.

-DH

]]> Comment on Update: One Month After Colon Removal by Blakehttp://www.ihaveuc.com/update-one-month-after-colon-removal/comment-page-1/#comment-14698 Blake Sat, 04 Feb 2012 06:37:17 +0000 http://www.ihaveuc.com/?p=8551#comment-14698 Ha ha, good question Mohammed. I didn't even know I had a drain up my butt until the doctor said something about it, then I became aware of it and felt like I could feel it everytime I moved. I don't know the medical reason, but it was there just to drain out what was coming out of there. It was almost like a dark brown, blackish liquid. It was pretty nasty and it wasn't pleasant getting it pulled out by the nurse. The answer to the other question, how does it feel when food goes through your ileostomy, I can't even feel it most of the time. Sometimes you know it's happening cause you hear noises or you feel your bag getting bigger, but most of the time it happens and I'm not even aware it's happening. I can't tell you how awesome it feels to be able to sit around and not get up every 10 minutes to go to the bathroom. I can just sit around for hours now and only get up when I want to empty the bag. I do have to say that I still have to use the toilet about once every day, or every other day still because I still have a rectum and that is still inflammed. So technically, I still have UC. I still see blood and puss, but it's not that bad and is easy to control. Ha ha, good question Mohammed. I didn’t even know I had a drain up my butt until the doctor said something about it, then I became aware of it and felt like I could feel it everytime I moved. I don’t know the medical reason, but it was there just to drain out what was coming out of there. It was almost like a dark brown, blackish liquid. It was pretty nasty and it wasn’t pleasant getting it pulled out by the nurse. The answer to the other question, how does it feel when food goes through your ileostomy, I can’t even feel it most of the time. Sometimes you know it’s happening cause you hear noises or you feel your bag getting bigger, but most of the time it happens and I’m not even aware it’s happening. I can’t tell you how awesome it feels to be able to sit around and not get up every 10 minutes to go to the bathroom. I can just sit around for hours now and only get up when I want to empty the bag. I do have to say that I still have to use the toilet about once every day, or every other day still because I still have a rectum and that is still inflammed. So technically, I still have UC. I still see blood and puss, but it’s not that bad and is easy to control.

]]> Comment on Update: One Month After Colon Removal by Blakehttp://www.ihaveuc.com/update-one-month-after-colon-removal/comment-page-1/#comment-14697 Blake Sat, 04 Feb 2012 06:26:56 +0000 http://www.ihaveuc.com/?p=8551#comment-14697 Vinny, yeah buddy. I lost a lot of strength after surgery. It's depressing to go to the gym sometimes and realize how much strength I lost, but it's coming back. I benched 215lbs the other day for 3 reps. Before surgery I could get it about 12 reps. But I'm happy about not having to take a crap in between sets anymore. I'm pretty sure it will all come back with time, just gotta be patient. When the weight comes back, the strength will too. The 3 part J pouch surgery is exactly what you're getting, except in 3 steps instead of 2. My first surgery was just colon removal and ileostomy. Next surgery they will create my J Pouch and remove my rectum, third surgery they'll hook it back up. That's probably why your taking more time to recover, cause you had your colon removed and they created the J Pouch all at the same time. You're way ahead of me. I'm sure my 2nd surgery will be a little bit more recovery time and painful, so be thankful you already had that done. My roomate in the hospital got the same surgery you'll be getting next and he seemed to be in a lot less pain than I was, and he was probably 45 years old. He was walking around on his own the day after surgery. I think your next surgery will be a walk in the park compared to your first. I'm also going to take a bit more recovery time in between the 3 surgeries. Doctor said all I need is 3 months, but I'll probably do more than that. I'm not sure. Anyway, take pictures and make a story out of it on your next surgery. I'd be interested to see them. Good luck bud! Vinny, yeah buddy. I lost a lot of strength after surgery. It’s depressing to go to the gym sometimes and realize how much strength I lost, but it’s coming back. I benched 215lbs the other day for 3 reps. Before surgery I could get it about 12 reps. But I’m happy about not having to take a crap in between sets anymore. I’m pretty sure it will all come back with time, just gotta be patient. When the weight comes back, the strength will too. The 3 part J pouch surgery is exactly what you’re getting, except in 3 steps instead of 2. My first surgery was just colon removal and ileostomy. Next surgery they will create my J Pouch and remove my rectum, third surgery they’ll hook it back up. That’s probably why your taking more time to recover, cause you had your colon removed and they created the J Pouch all at the same time. You’re way ahead of me. I’m sure my 2nd surgery will be a little bit more recovery time and painful, so be thankful you already had that done. My roomate in the hospital got the same surgery you’ll be getting next and he seemed to be in a lot less pain than I was, and he was probably 45 years old. He was walking around on his own the day after surgery. I think your next surgery will be a walk in the park compared to your first. I’m also going to take a bit more recovery time in between the 3 surgeries. Doctor said all I need is 3 months, but I’ll probably do more than that. I’m not sure. Anyway, take pictures and make a story out of it on your next surgery. I’d be interested to see them. Good luck bud!

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