Ulcerative Colitis Tips


One of the 15,000 ulcerative colitis folks using the site adds:
"Like many UCers I have spent many hours trawling the internet googling the condition and came across your website a few years ago. I read your ebook and really liked your honesty and humour. As everyone says your positivity is so encouraging and now this is my go to website when I'm thinking about UC. Thankfully my symptoms are pretty much under control at the moment but just wanted to say thanks." Kate

Colostomy Bag Change

I have to change the bag every 3-5 days depending on if I’ve been in the water or not or done some more strenuous activities within the days prior.  The only painful part is taking the tape off at the beginning, especially when you’re ripping the hair out…ouch!  It’s impossible to judge when you’re not going to have output but surprisingly I haven’t had much trouble at all in that department.  There is output from the stoma most every time you change it, but I haven’t had any problems with it.  As you can see from the video it only takes me less than 10 minutes to change it.  I have read other blogs and stories of people where they say it takes them hours to finally change it, and I just don’t see how that is possible to be honest.  I don’t know if it has anything to do with the brand of supplies that I am using compared to theirs or what, but I have had zero trouble.

I hope everyone likes the video!

Curtis

 

You can read the rest of Curtis’s stories here




colostomy

9 Responses to Colostomy Bag Change

  1. Adam
    Adam August 7, 2011 at 9:16 pm #

    YO Curtis, thx so much for making the video! I just watched it again. Way cool, and thx so much for sharing with everyone! Have a great rest of the weekend,
    Adam

  2. PrincessPP August 10, 2011 at 1:26 pm #

    Oh my GAWD! That was awesome!!!

  3. Brian Phillip Greenberg August 10, 2011 at 1:53 pm #

    Curtis, I received my ileostomy in November and haven’t had that much trouble with it. I try my best to change it ahead of time so I can do it on my schedule when I know it will be the least active. Morning is the best since I haven’t eaten a while. I actually prepare the new bag ahead of time leave everything I need to put it on quickly outside my shower. Take off the old bag and throw it in a garbage bag. Then hop in the shower right away. I clean everything very well and as soon as I get out I use one more adhesive removal to make sure I can get a good hold (usually lasting between 4-7 days depending on activity level), dry it off and slap the new one on. It is all very easy for me now that I have a system I’m used to. Hope that this helps a little bit. Brian

    • Curtis
      Curtis August 10, 2011 at 2:02 pm #

      Hey Brian,
      Thanks for the recommendations. I’ve gotten comfortable doing it the way that I do it though. It works for me, and it’s only temporary so it’s all good!

  4. Katherine August 10, 2011 at 2:04 pm #

    Curtis,

    Thank you for sharing this with us all. It has been really informative, and answers a lot of the questions i know many of us had in our heads!!

    Best wishes,

    Katherine

  5. This guy August 15, 2011 at 9:04 pm #

    Curtis,

    What up? It’s this guy (Brandon). I have posted a couple stories recently called “oh ulcerative colitis…how I’ve underestimate’d you”. Anyways, your story resonates a lot with me because my GI just told me that despite only being diagnosed for a year, he has never seen a flare up as severe as mine at this stage. Long story short….Ileostomy is in my near fututure. I’m not going to lie, I am VERY relieved that this is going to be my out. Before we begin, my parents want me to get a second opinion from another (understandably) which is going down early tomorrow morning. I am a little apprehensive about the surgery for obvious reasons…but don’t think I will ever be thankful enough to “cure” the colitis. I watched your bag change video which was a trip. But to see you be able to just pass that waste and wipe it away without all the colitis baggage is something I can’t wait to be doing! So was that video shot after surgery 2? What is the functional difference between 1 and 2?

    I am having part 1 obviously as an “emergency” procedure meaning they will get in and get out everything with speed and safety priority. I am pretty weak/run down now…but I dont think I am in as bad of shape that you were when you went under. The recovery from imcisions is obviously another beast, but is the colitis pain really just gone immediately? What advice do you have on initial recovery? Or overall bag maintenance that might help me out? Sorry for the 21 questions bro…but I think I am pretty lucky to run across your story given how awesome UC decided to be to both of us…

    Anyways, get back at me when you have a chance.

    Thanks,
    This Guy

  6. Matt September 1, 2011 at 9:55 pm #

    This page came up when I did a search for colostomy bag and soccer. I’m a lifelong soccer player but haven’t played since I got a colostomy bag because I apparently need to find some sort of protective device to wear over the ostomy when I play.

    What do you do when you play?

    Thanks,
    Matt

    • Curtis September 1, 2011 at 10:13 pm #

      What’s up Matt,

      I too have been a lifelong soccer player but since mine is only temporary, I haven’t bothered trying to play with it. I figured it would be better not to risk anything getting hurt and I also didn’t want to spend money on any protective gear for it if it’s only going to be temporary. It is KILLING me though not being able to play. I can’t wait until I can get back out there and maybe give the professional game a shot.

      Hope you find something that works for you!

      Curtis

  7. Wendy
    Wendy May 23, 2012 at 10:03 pm #

    Thanks for posting this. Is it painful at all around where the bag sticks? It’s all red. I can’t understand how a hole in your body with an organ hanging out of it is not going to hurt. Also, the other picture you had after the take-down procedure, where the iliostomy cut was healing looks pretty scary to me. The reasons for the questions is that I am going to have to have this done to me (surgery) pretty soon. I am going in for a consultation at Mayo Clinic June 25th. I wish I had those drugs you mentioned that made you feel great right before your sugery to remove your colon for every time I think of the surgery so I can just pop that pill and not care anymore.

Leave a Reply