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Entocort (Budisone)

7. September 2010

1 Comment

I have UC Diagnosed about a week ago after a colonoscopy. Current treatment is Entocort (Budisone) 9mg daily. Great stuff; no side effects except to help my arthritis. Here’s the Questions: Has anyone been on Entocort long term? AstraZenaca, the manufacturer says 8 weeks at 9mg, then 3 months at 6mg, then get weaned off. [...]

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Female Facial Hair, Prednisone Please Stop It!

1. September 2010

2 Comments

Dealing with ulcerative colitis is hard. Also being a woman with facial hair from prednisone makes it even harder. Here is my story.

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Freaked Out When they Mentioned Surgery and Remicade

29. August 2010

1 Comment

I was diagnosed with UC and was hospitalized for 3 weeks and out of work for 6 weeks. Tried many medications and like prednisone the best.

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Jessica’s Day 53 on SCD Update News

27. August 2010

3 Comments

Jessica’s Day 53 on SCD Update News

Hello to my fellow UCers! Just wanted to update everyone on my progress. I am still following SCD strictly and i’m currently day 53 of the diet! I still feel great with no symptoms of UC. I can’t even say i’ve had a bad day recently. Everything in my colon seems to be happy! This weekend I [...]

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Accutane and Ulcerative Colitis, Studies Are Showing a Link

26. August 2010

6 Comments

In the past few months, there has been a bombardment in news flashes and media talk about the connections between Crohns disease/Ulcerative Colitis and acne medications.  So, I thought I would do some research to try to figure out what the hype is all about. I myself have not tried Accutane, but I have several [...]

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5 Years with Colitis, No to Prednisone, Hello to SCD

22. August 2010

2 Comments

I was Diagnosed with UC 5 years ago. I work at sea on old wooden boats and was a week away from land when the symptoms that we all are familiar with started. Sailing is very physically demanding and as the week went on, I couldn’t eat, had severe stomach ache and was passing basically [...]

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Diagnosed with Crohns Disease BUT Symptoms of UC

17. August 2010

2 Comments

What an awesome page. Adam, you are really providing an awesome service to the “IBD Community”! I just checked “I might have UC, not sure yet” because my official diagnosis is Crohn’s disease, although my symptoms are that of UC and I’m being treated like I have UC. When I had my colonoscopy, there appeared [...]

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23 Year Old Guy Taking Steroids, Azathiaprene, Topzole, and other meds for Colitis, No Workie Right Now

9. August 2010

5 Comments

I am a 23 year old male was diagnosed with UC in September of 2008. My condition has not gone into remission ever since. I have been on ASACOL 1.8g 3 times a day. But it did not help at all. I in December 2009 I was admitted into hospital due to side effects of [...]

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Recently Diagnosed, Stomachs Been Hurting for a While

5. August 2010

3 Comments

I have just been diagnosed with UC after a considerably long period of regular stomach pain, a gradual increase in tiredness, dizzy spells followed by the shock of seeing blood pouring from my back passage 4 weeks ago. My trouble first started about 8 years ago around the same time as I gave up smoking, [...]

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A New Documentary Movie about Crohn’s and Colitis People

3. August 2010

0 Comments

Hello, My name is Reid and I have Crohn’s disease. I was invited by Adam to write this blog post about what I’m doing these days and how this community can get involved with something that can positively impact a lot of people around the world. I am working on my first documentary about people [...]

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Mom of 3 and Dealing with A Nasty Colitis Flare, It’s not Easy

1. August 2010

5 Comments

My name is Michelle, I’m 35 years old and I have UC. I was diagnosed in Dec 2005, one month after my daughter was born. I currently have 3 children (via c-section) (4, 2, and 1)…so needless to say its a little busy around here. I have had flare ups before but always have been [...]

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I Urge Anyone Suffering with UC to Try This Diet

27. July 2010

6 Comments

I Urge Anyone Suffering with UC to Try This Diet

I was diagnosed with UC (pancolitis) last year after 2 years of being symptomatic and progressivly getting worse. I was very unaware about what this disease was and how it could affect your whole life. I am a 25 year old very socially active woman and this disease almost put me in a dehabilited state. [...]

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My Remicade Experience is Great for UC

24. July 2010

8 Comments

I was diagnosed with Ulcerative Colitis January of 2006, and it completely changed my life. Luckily my doctor was able to diagnose me quickly, and get me on a treatment plan. Unfortunately is consisted of 20 oral pills a day and presented little relief of my symptoms… With the way insurance works these days, doctors [...]

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My Girlfriend was diagnosed with UC, Help Please

20. July 2010

4 Comments

Hello! Not sure if this is the right place to post this, but here goes……………… First off, I don’t have UC myself. It is my girlfriend who has recently been diagnosed with it. My main reason for posting here is to try and get some information and to make myself feel better! I have been [...]

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Trust Your Gut…Even When it Hurts

18. July 2010

0 Comments

I was diagnosed late 2008 by an internist in a town close to home. My bleeding, frequency kept getting worse. He continuously kept switching my “preventative” meds. If I saw the slightest bit of improvement I would think hopefully “ok now I will get better”…only to get worse again. I quickly read a few books [...]

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I Ate Some Sushi and My Colitis Knew It

17. July 2010

0 Comments

I Ate Some Sushi and My Colitis Knew It

That’s right.  It seems my ulcerative colitis knew I had sushi for lunch today. It was the first time in many a months to have that stuff that I used to eat all the time.  And guess what, I surely didn’t have a hard or formed stool to show for it. I was caught in [...]

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Just Diagnosed with Colitis in South Dakota

14. July 2010

4 Comments

Just Diagnosed with Colitis in South Dakota

From South Dakota/recently diagnosed with UC May 2010. Received my second loading dose of Remicade and still on 10 mg of Prednisone. I am getting better/ more energy since starting Remicade and have not had diarrhea for 3 weeks! I can not tolerate any high fiber foods/raw vegies or fruits at this time. I am [...]

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SCD Experiences So Far

12. July 2010

4 Comments

When I last posted, I was having some decent success with the SCD intro diet. But the next few days really went downhill. My body seemed to rebel and I couldn’t keep any food in me. And to make matters worse, my energy levels were at an all time low. I really wasn’t able to [...]

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Stopping Ulcerative Colitis with Enemas in Cyprus

5. July 2010

1 Comment

I was diagnosed with UC about 6 months ago. As I caught this really bad virus, I started having diarrhea and bleeding. It had probably started one and a half years ago when I started having episodes of diarhhea (lasting 1-2 months) with severe bloating and gasses. I just assumed it was some virus and [...]

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Getting Ready to Start SCD

4. July 2010

3 Comments

Well, it is Sunday and on Monday I’ll start the Specific Carbohydrate Diet. I’m full of mixed emotions about this decision to go on SCD. Honestly, I really didn’t want to get to this point where I’m no longer able to control my ulcerative colitis flares with a “traditional” diet of clean eating and a [...]

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One Vodka and 3 Craps

3. July 2010

3 Comments

One Vodka and 3 Craps

Hey Everyone with Colitis, This must be the third or fourth post now on the site on the idea of “What’s the deal of Alcohol being OK for UC” And I wanted to share a quick experience. I have been taking 1-2 symptom free craps for about two weeks now.  Yesterday, I drank ONE vodka [...]

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Constant Pain, Blood and Depression with Ulcerative Colitis

3. July 2010

2 Comments

Diagnosed in 1998. This is my 3rd hospital stay with a flare-up. they get worse each time. Solumedrol worked before, but is not doing the trick this time. Constant pain, blood, depression, you know the drill. Can’t take pain meds so i can be lucid enough to run to the toilet 40 times each day. [...]

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I Discovered the SCD Diet for UC

3. July 2010

4 Comments

Hello my name is Steve, I am 29 yrs old. I have had ulcerative colitis since I was 24 yrs old doctors have told me its mild to moderate, and that diet and exercise will do nothing and that I will have to take pills the rest of my life. I have been told by [...]

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Anyone else started UC after a very emotional event?

1. July 2010

1 Comment

My Story : First signes of UC in November 2007, after a very traumatic event. I had been abandoned by my boyfriend pregnant and I had a miscarriage at the 4th month …I had right away a colonscopy….ah, it was painfull!!! sedation not enough ARGHH! ((and no diagnosis possible, because they did not understand what [...]

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Is Salad Bad For Colitis?

29. June 2010

3 Comments

I think salad is great for colitis. No, I don’t think salad is bad. But I didn’t always think that way. Ever since starting the SCD diet, a few things are for certain. And one of those is that I eat a whole bunch more salad than ever before. It surely isn’t because I am [...]

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Salofalk Suppositories at Night for Colitis

8. June 2010

3 Comments

Hello I was diagnosed in December 2009 with UC. Have been on pred and Salofalk since December, at one pred every other day but having a flare up for the last month. See my GI this week, not sure where we will go from there.   Also taking salofalk suppositories at night, but not sure if [...]

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I’ve Tried Every Colitis Drug, and now on SCD

31. May 2010

1 Comment

Below is a posting from an anonymous person who as you can see has taken many many medications for ulcerative colitis.  I thought it might be helpful for some other UC patients to see how it is not always easy to go from being diagnosed to finding a solution that works for you.  Thanks for [...]

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Side Effects of Prednisone are As Bad as the UC Illness, Help!

20. May 2010

11 Comments

I am currently tapering off prednizone I feel like the side effects of prednisone and other medications I am on are as bad as the illness itself. I was diagnosed with UC at a severe level at the start of 2010 and I am still struggling to get into remission but slowly getting  there. I [...]

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Figuring Out An Ulcerative Colitis Diet

17. May 2010

0 Comments

Figuring Out An Ulcerative Colitis Diet

Once I was diagnosed with UC, I knew that there was something that needed to be done with my diet. I mean it was only common sense to know that you are what you eat. So I stopped eating meat, ate more vegetables, fruits, grains, and gluten free, wheat free products. At first it worked [...]

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Diagnosed with UC and Now Taking Lialda

13. May 2010

1 Comment

About a month ago I was diagnosed with UC. After reading up on several UC support group websites, I pretty much thought life was over and I assumed my colon would have to be removed. Prior to being diagnosed, I spent my entire workday running to the bathroom in my classroom every 10 minutes. I [...]

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I See Blood in My Poop, Is it an Ulcer or Colitis?

11. May 2010

22 Comments

I See Blood in My Poop, Is it an Ulcer or Colitis?

When I see blood in my poop, that for me means ulcerative colitis.  And like most good things, the 8 months of pretty much symptom free living has finally come to a close.  Good old colitis man seems to have found a way to make it back into the old colon. But, before I go [...]

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In Case You have not read the Book Yet, "Breaking the Vicious Cycle" is a must read for UC people. This book was written by the woman who discovered the SCD Diet.